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                    <text>reACT-Believe
,

Fall 1994 Volume 7, hue HI

“ASK QUESTIONS. TALK ABOUT
IT. BREAK THE SILENCE.”
This year’s AIDS Awareness Week will
focus on creating healthy altitudes
about youth and sexuality and a positive
social environment lor HIV positive
youth. The 1994 slogan is: “Ask
questions. Talk about it. Break the
Silence,”
I'hc key is to impress upon our commu­
nity the importance of providing youth
with clear, complete and unbiased
information on HTV/A1DS and sexuality.
Recognizing that young people make
important decisions every day, AIDS
Awareness Week 94 is all about giving
them the information and skills they
need.
Despite a basic knowledge of HIV/AIDS,
young people today are not practising
safer sex consistently. With 30,000
unplanned pregnancies and 75,000 cases
of STD’s among Canada’s youth every
year, we know young people are having
unprotected sex, and also placing them­
selves at risk for HIV infection. Skills
around confidence building, safer sex
negotiation and condom use need to be
developed among adolescents to help
them deal with the important decisions
they face.
Infection is now spreading faster among
the youth population (age 15-25) than it
is in the general public in Canada. Here
in Thunder Bay, we may still have lime
to impede the spread of AIDS in this
population if we act fast. This will
depend largely on initiatives, like AIDS
Awareness Week 94, that are focused

AIDS Committee of Thunder Bay
P.0. Box 24025, Downtown North Postal Outlet
Thunder Bay, Ontario P7A 4T0 (807)345-1516
AIDS Infoline 345-SAFE

specifically on young people. The week
pesents a variety of interesting events.
Information tables, as well as our ART
AIDS MURAL will be on display at the
college, the university and high schools

The key is to impress upon
our community the importance
of providing youth with clear,
complete and unbiased infor­
mation on HIVIAIDS and
sexuality. "
"

during the week. The annual Candlelight
Vigil and Tree Planting will again
provide the community with an occasion
for important reflection and emotional
release. Another event appropriate to
the week’s theme will be a youth “Coffee
House” with the Regional Multicultural
Youth Council on Friday evening,
featuring entertainment and discussion.
A “Women’s Healthy Sex Night” which
will be held the following evening, prom­
ises to be a lively night for all involved.
Details of these events will be available
soon. Keep your eyes open for a sched­
ule of events in various publications
around the city.
Over the summer, youth outreach
initiatives have been developed to
include young people in the planning of
AIDS Awareness Week. If yourself or
any friends arc interested in participating
please call Tara at the AIDS Committee.

WEEK
OPEN CALL TO ALL ACT-B
MEMBERS CONCERNING
THE 1994 ANNUAL
GENERAL MEETING.
The 1994 ACT-B Annual General
Meeting will be held in November.
An exact date and location have not
yet been confirmed. To be eligible to
vole at the AGM, you must have a
valid current membership, or take out
a new membership at least thirty days
in advance of the AGM. Please check
your membership card. If it does not
say valid for the calendar year 1994,
you’ve expired! GoodGricfl Hurry
to renew your membership. Call
ACT-B, drop in to our office, or use
the handy membership form located
elsewhere in this newsletter.

�TED ROMANOWSKI
Ted Romanowski, dedicated past board
member and hard working volunteer, died
on August 24, 1994. Ted was first
appointed to the ACT-B Board in 1991
and re-elected to another term in 1992.
During his time on the board he repre­
sented ACT-B at two Annual Meetings of
the Canadian AIDS Society (in Halifax,
1992 and Montreal, 1993) as well as nu­
merous meetings of the Ontario AIDS
Network. Ted was especially dedicated
to fundraising for ACT-B’s Emergency
Financial Assistance Fund. The Fund
makes emergency financial aid available
directly to people living with HIV/AIDS.
He regularly assisted at agency yard sales,
flea markets and monthly bingos. He
played a key role in the visit of the
Canadian AIDS Quill to Thunder Bay in
the fall of 1992. Ted was named our Vol­
unteer of the Year in May 1993 and given
a special tribuLe when he stepped down
from the Board last November. He was a
generous, kind and caring individual.
We remember.

STAFF CHANGES
The AIDS Committee of Thunder Bay
extends generous thanks to Bart Johnston,
who was on placement with the agency
for the summer. Ban assisted our Support
Services department, as well as staffed
our phones and reception desk. We wish
him well in his continued studies this fall.
As well, we extend our appreciation to
Tara Lewis, who has been our summer
Education Assistant. Tara developed
various education initiatives concerning
t hunder Bay youth. She too will be
reluming to school this fall (but will still
be associated with ACT-B). We are
pleased to welcome Sheila Berry, our new
Support Services Coordinator, Jo-Ann
Jacomb, our new Volunteer Coordinator
and Tara Lewis, our 1994 AIDS Aware­
ness Week Coordinator.

MINISTRY OF HEALTH CON­
SIDERING THUNDER BAY
NEEDLE-EXCHANGE PRO­
POSAL
Earlier this summer, ACT-B, together
with other members of a local planning
committee, completed a proposal for the
establishment of a formal needleexchange program in Thunder Bay. The
proposal had unanimous endorsement
from various local agencies represented
on the planning committee. It also
received approval from the Board of the
Thunder Bay District Health Unit. It has
now been forwarded to the Ministry of
Health for consideration. We are hopeful
that this long needed program will soon
be a reality in Thunder Bay.

OPEN CALL FOR NOMINA­
TIONS TO THE ACT-B
BOARD OF DIRECTORS
The 1994-95 Board of Directors will be
elected at the Annual General Meeting in
November. This is an open call to
anyone interested in serving on the
Board. Consider joining a team of
experienced and dedicated board mem­
bers. People living with HIV/AIDS arc
encouraged to consider running for the
board. If interested, call the ACT-B
office: 345-1516 for an interview and in­
formation package. The Nominating
Committee will consider applicants until
November 1st.

play and hopes to perform parts of it in
our Safer Sex Cabaret. She regularly
performs with the trio Broadway Bound!
Jo-Ann brings a wealth of experience
from her previous life as a "helping
professional”. She spent 10 years
working at various non profit agencies in
Thunder Bay. Her last vocational
challenge was instructing in the Develop­
mental Services Worker Program at
Confederation College. She has also
worked at the Canadian Mental Health
Association, the Lakehead Association
for Community living and Hogarth/
Westmount Hospital.
Jo-Ann believes strongly in volunteering
and is eager to meet all of the dedicated
ACT-B volunteers. She is proud to be a
member of the ACT-B crew and is
ETERNALLY GRATEFUL that Sheila
Berry is here to provide training and
support

In Memorium
We remember
with respect and appreciation:
Kevin, Vivienne
and
Ted

HELLO
On August 2,1994, Jo-Ann Jacomb
joined the ACT-B team as volunteer co­
ordinator. She comes to us from the
“arts” community where her primary
focus has been music and theatre. She
graduated from Lakehead University
with a Fine Arts Degree in Music,
majoring in voice and also an Arts
Administration Diploma from Confedera­
tion College. Jo-Ann won the 1992
“Thunder Bay’s Funniest Person” award.
She has written and produced her own

i

QUESTIONS
CREATING HE AITHY ATTITUDE S
ABOUT YOUTH A SEXUALITY

TALK

ABOUT

IT

BREAK THE SILENCE
AiDt AWAHNttt WtK* OCTOIH J-f. It«4

�ACT-B ADVISORY COUNCIL
Fred Ball
Beth Huston

Director, Public Health Laboratory
Director of Administration,
Kinna-Aweya Legal Clinic
Public Health Nurse, Thunder Buy
District Health Unit
Family Physician
Co-chair, Businessman
Supervisor of Infection Control,
Port Arthur General Hospital
Reverend, United Church,
Council of Clergy
Co-chair, Health &amp; Safety Officer,
Lakehead Board of Education

Vivian Johnsluri
Dr. Gordon Milne
Boh Richardson
Nicky Tittlcy
Don Uhryniw
Derek Zulcsky

ACT-B BOARD OF DIRECTORS
Treasurer
Director
Director
Director
President
Director
Director
Vice President
Director
Director
Director
Secretary

Rick Atkinson
Sarah Bunn
A. Downey-Baxtcr
Mahlon Inksetter
Guil Linklater
Ed Prinselaar
Bob Richardson
Diane Roberts
Ron Rodgers
Rob Shepherd
Pius White
Derek Zulesky

ACT-B STAFF
Christa Alsch
David Belrose
Sheila Berry
John Books
Lawrence Korhoncn
Tara I .ewis
lan Ritchie
Michael Sobola
Jo-Ann Jacomb

Secretary
Education Coordinator
Support Service Coordinator
Fundraising/Communications
Office Manager
A.A.W. Coordinator
Support Worker/Health Promoter
Executive Director
Volunteer Coordinator

UNITED WAY SUPPORT
ACT-B is the recipient of a 1994 United Way “New Initia­
tives” grant. This grant is specifically for ACT-B to increase
library resources in the subject areas of abuse and family
support. The amount is $450, and will be made available to
us in January, 1995. This is a one time grant only. Our
agency docs not currently receive on-going support from the
United Way. We are grateful for this financial assistance,
and thank the United Way.

Gay and Lesbian Positive Alanon Family Group
Meeting every Thursday at 6 pm.
at the Unitarian House, 129 S. Algoma Street, back door.
For details, call 344-5980.

FAREWELL TO DARYLE
After two years of service Daryle Dollan our Support Serv­
ices Coordinator has left to retire in the bush up in
Armstrong. Daryle brought a lot of unique and interesting
characteristics to the job. We all wish Daryle the
best of luck.

VITAMINS, VITAMINS, VITAMINS
The AIDS Committee of Thunder Bay has worked out an
arrangement with “Buyers Club” to purchase vitamin and
nutritional supplements. If you need further information
concerning vitamins please contact Ian.
Subsidies are available.

Please address any comments on reACT Believe to:
P.O. Box 24025
Dontown North Postal Outlet
Thunder Bay, Ontario
P7A4T0
(807) 345-1516

(9:30 a.m. - 5:00 p.m.)

John Books, Editor
Heidi Jeske, Assistant Editor
lan Ritchie, Editor of Treatment Pages
Tlie opinions and medical information offered by reACTBelieve are those of the individual authors and not
necessarily those of the staff or Board of Directors of the
AIDS Committee of Thunder Bay. Medical information
offered by re.ACT-Believe should be used with your own

THANK YOU
The AIDS Committee of Thunder Bay acknowledges and
thanks our various funders;
: Ontario Ministry of Health
: Health Promotion and Social Development Office,
Ontario Branch, Health Canada
: Ontario Trillium Foundation
: All of the people involved in general fundraising and the
support of many local businesses and individuals.
We especially would like to acknowledge recent donations
from: Anita MacDonald, the students of McKenzie School,
the Kidney Foundation of Canada, the Sear’s Employees
Charity Fund, Bearskin Airlines and Sportop Marketing.

3

��RESOURCE CENTRE
The ACT-B Resource Centre Library is a collection of
materials in a variety of formats containing information on
HIV/AIDS and related issues. We subscribe to specific
treatment information newsletters with the latest information
on HIV/AIDS treatments.
This information is available to everyone with a personal,
professional or academic interest in HIV infection, AIDS or
related issues.
The Resource Centre Library is located at 217 S. Algoma
Street, at the comer of Algoma and Cornwall.
Come in and take a look from 9:30 to 5:00 weekdays.
See what we have available.
SOME RECENT ACQUISITIONS
BOOKS
AIDS Treatment News Volume 3 (Compilation) 1994
AIDS: A Global Health Crisis (Posters by Burroughs
WcUcome) 1993
The Anarchist AIDS Medical Formulary: A Guide to Guerilla
Immunology 1993
Dying With Dignity: Understanding Euthanasia 1992
The Essential Guide To Prescription Dmgs 1994
Living with Dying, Dying at Home (Care Team Resource
Manual) 1993
Living With The AIDS Virus: A Strategy for Long-term
Survival 1991
A Time For Caring: A Pastoral Approach for persons with
AIDS 1989
Two Teenagers In Twenty: Writings by gay and lesbian youth
1994
Understanding Sexual Identity 1990
VIDEO
A Time For Caring: Pastoral Care For Persons With AIDS
1989 30 min.
Forefront: An HIV Update 1994 Edition 7 20 min.
Forefront: An HIV Update 1993 Edition 6 20 min.
Healthy Sex Cabaret (ACT-B) March 12,1994 Tapes 1&amp;2
240 min.
Homosexuality: What The Bible Docs And Does Not Say
1985 70 min.
Nutrition And HIV Workshop: Lark Lands and Chester Myers
Thunder Bay, Feb. 26,1994 Parts 1&amp;.2 200 min.
Scared To Death (homophobia) 1993 29 min.

TREATMENT RESOURCES AVAILABLE
IN ACT-B’S LIBRARY - PART 1
The following is a list of newsletters and journals that we
subscribe to and are available either in our library or
they can usually be found on Ian's desk. They are available
to anyone but must be either read in the library or
photocopied. If you need any more information or would
like to read any current or back issues see Ian.
AIDS Treatment News- Published twice monthly by John S.
James out of San Francisco, Ca. Contains reports
on experimental and standard treatments, interviews with
physicians, scientists, other health care professionals and
people living with HIV/AIDS. They also collect information
from meetings, conferences, medical journals, and
computer databases. Free to those who cannot afford a
subscription. 1-800-TREAT-1-2 or 1-800-873-2812
Treatment Update Published monthly by the Community
AIDS Treatment Information Exchange (CATIE) in
Toronto, Ontario as a resource for individuals considering
experimental treatments and/or therapies for AIDS and
HIV - related illnesses. Free to those who cannot afford a
subscription. 1-800-263-1638
Treatment Issues- Published monthly by The Gay Men’s
Health Crisis in New York. Contains information on
experimental AIDS therapies, new treatment therapies,
information on approved and underground drugs, clinical
trials and other information related to HIV/AIDS. This
newsletter offers a sliding scale for PHA's.
BETA- Published quarterly by the San Francisco AIDS
Foundation. This bulletin contains information on
alternative AIDS and HIV research, meetings, conferences
and clinical trials. 1-800-959-1059
Being Alive- Published by Being Alive, People with HIV/
AIDS Action Coalition, Los Angeles CA. This
newsletter contains information on medical treatment,
nutritional information and personal stories. Free to those
who cannot afford a subscription. 1 -213-667-3262.
Journal of the Physicians Association for AIDS CarePublished monthly, this journal contains information on
conferences, new treatments and new drug therapies.
In our next newsletter, Part 2 will contain treatment and
health promotion books that are available in our library.

5

�AIDS AWARENESS WEEK 1994
CREATING HEALTHY ATTITUDES ABOUT
YOUTH &amp; SEXUALITY
SATURDAY, OCT. 1,1994
Positively Well Speaker
Francis Robichaud
Lecture, video and discussion on DNCB
for people living with HIV/AIDS
MONDAY, OCT. 3, 1994
Tree Planting Ceremony - Marina Park 12 noon
ART AIDS MURAL to visit high schools
TUESDAY, OCT. 4,1994
ART AIDS MURAL at Lakehead University
and Confederation College
WEDNESDAY, OCT. 5, 1994
ART AIDS MURAL at Lakehead University
and Confederation College
THURSDAY, OCT. 6,1994
ART AIDS MURAL visits high schools
Candlelight Vigil - 7:30pm Meet at ACT-B
for silent walk to Unitarian Hall
FRIDAY, OCT. 7, 1994
“Coffeehouse” Youth Social with
Regional Multicultural Youth Council
8:00pm Victoriaville
ART AIDS MITRAL visits high schools
SATURDAY, OCT. 8, 1994
Women’s Healthy Sex Night - 8 pm
ART AIDS MURAL at Intercity Mall
Condom Blitz at selected local bars
SUNDAY, OCT. 9, 1994
ART AIDS MURAL at Intercity Mall
Other possible events include university &amp; college workshops. Club VIP
event, social marketing initiatives and various displays set up throughout
the city in connection with youth groups.
For more information:
call Tara Lewis at the AIDS Committtee of Thunder Bay 345-1516.

6

“OPENING MORE DOORS”
3rd Annual
Northwestern Ontario Regional
HIV/AIDS
Counselling Conference

Thanks to the Ontario Ministry of Health,
the AIDS Committee of Thunder Bay is
hosting its third annual “Opening More
Doors “ counselling conference regarding
HiV/AIDS. It will be held at the Prince
Arthur Hotel here in Thunder Bay,
Ontario, on October 20 and 21, 1994.
On the evening of Thursday, October 20,
1994 there will be a session on “Issues
relating to smaller centers, interaction
with PHA’s (Persons Having HIV/AIDS),
barriers that PHA’s face living in North­
western Ontario”, followed by a network
and socializing period when refreshments
will be served. On Friday, October 21,
1994 during our day session, various
workshops will be held on:
1) Pre and post test counselling
2) Counselling family members and
psycho-social issues
3) Issues relating to the grief process
4) Women’s issues creating risk
awareness.
Breakfast and a light lunch will be served
at intermissions during these workshops.
We currently have a broad range of
participation from many smaller commu­
nities throughout Northwestern Ontario.
A small registration fee is required
although accommodations and travel
grants for out of town guests are avail­
able. All PHA's (Persons Having HTV/
AIDS) will have the registration
fee waived. If you would like further
information on our upcoming, 3rd
Annual, “Opening More Doors” North­
western Ontario Regional HIV/AIDS
Counselling Conference please call the
conference coordinator, Karen
Ferland, at 1-807-345-1516 or
1-807-768-0699.
Registrations are limited but we do have
some space available.

�MOTHER’S CLIPBOARD
BUDDY PROGRAM
The AIDS Committee of Thunder Bay
has been running a food bank in our
agency for the last year. Thanks to
the generous donations from our commu­
nity we have managed to provide food
I'or people who are in need.
Unfortunately we have exhausted our
supply of food and Mother’s Cupboard is
now bare. If you or your organization
wish to donate food or start a food drive
please call Ian.

POSITIVELY WELL
This year’s “Positively Well” program
will have more of a complementary
therapy focus.
The first presenter will be Francis
Robichaud. Francis, a DNCB advocate
and user, will give a presentation on
DNCB which is a complementary
therapy. He is a volunteer for the PWA
foundation in Toronto where he also
facilitates a DNCB support group.
Francis will be in Thunder Bay on
Saturday October 1st.
Chester Myers will be reluming to
Thunder Bay on November 19-20,1994.
Chester will be speaking on diet and
nutrition with HTV.
The nexL presenter is Sandra Johnson
from the “RISE Program”. The “RISE
Program" was designed as a health
education course, for stress management
and lifestyle modification through mental
focusing and meditation.
1 would like to thank the steering com­
mittee who sat down and decided who
they would like to see and hear. Without
their input this year’s Positively Well
would not be as focused and client
driven. For more information call Ian.

The Buddy Program, long in coming, has
been running for about six months. Vol­
unteers with a special interest in working
with clients, must invest about 35 hours
in training and then commit to a mini­
mum of one year to the person with
whom they are matched. Buddies are
there for support: sometimes spending
time together, talking on the phone,
running errands, bringing some home
cooking by, driving someone to an
appointment, or accompanying someone
on an afternoon out. The terms of the
relationship arc agreed upon between the
client and the buddy. ACT-B’s role is
mainly that of support to both the buddy
and the client. I know that one person
living with AIDS in their own apartment
found the regular telephone contact com­
forting. Requests continue to come in for
buddies, and we are doing our best to
make good matches. If you are inter­
ested in the buddy experience, call Sheila
or Jo-Ann at 345-1516.

WImember
r

O

THE

THUNDER BAY LOTTERY CORP.

SUPPORT

Q

COMMITTEE DITTY
by Leslie Lipson,
University of California
at Berkeley
Oh give me your pity!
I'm on a committee,
Which means that from morning to night.
We attend and amend
And contend and defend
Without a conclusion in sight.
We confer and concur.
We defer and demur,
An reiterate thoughts of all sorts.
We revise the agenda
With frequent addenda
And consider a load of reports.
We compose and propose,
We suppose and oppose,
And the points of procedure are fun.

l 0 IT l I T

t I C f N c £

*

f ♦ ! j ♦ I 3

But though various notions
Are brought up as motions,
There's terribly little gets done.
We resolve and absolve,
But we never dissolve,
Since it's out of the question for us

&amp;
AVAILABLE FROM
THE AIDS
COMMITTEE

To bring out committee
To end like this ditty
Which stops with a period - thus.

WE thank SPORTOP MARKETING
FOR THEIR GENEROUS ASSISTANCE!

7

�SUCCESSFUL FUNDRAISING
Donning iheir red ribbon caps or red
ribbon T-shirts, over 145 people partici­
pated in the 1994 From All Walks of Life
fun run/pledge walk. Our run fun at
Boulevard Lake met its goal of raising
S6.000 for the AIDS Committee. It was
the biggest and best in the six years
we’ve had this event. Our thanks go out
to the many dedicated volunteers for
their help organizing the fun run and to
the many local businesses which contrib­
uted prizes.
The top ihree pledgers and the prizes
they were awarded were:
1. Mike Topp: tickets for two to
Toronto donated by Canadian Airlines,
Lakehead Travel and The Westbury
Howard Johnson Plaza Hotel

2. Maria Fiorot: a sports bag donated
by Collegiate Sports
3. Brad Hetsler: a gift certificate for a
massage and green fees.
Thanks to all of you who gathered
pledges, no matter how much.

AHEAD
Look for the Big Picture: the AIDS
Mural this fall. During AIDS Awareness
Week, it will tour several local High
Schools, Confederation College,
Lakehead University and finish at
Intercity Mall on Saturday and Sunday,
October 8th &amp; 9th. It wll also appear at
the Regional Counselling Conference
“Opening More Doors” at the Prince

Arthur Hotel on October 21st and 22nd.
As well we hope it will find a place in
many local malls in the coming months.
This project is perfect to collect pledges
for. Call the office for pledge sheets.
Perhaps on World AIDS Day (December
1st), we could stage a day with art and
fill a lot of squares on the Mural.
As we head into the cool fall months
other events are in the planning stages.
We will have one of our famous yard
sales in October. A Pancake Breakfast
will occur sometime in November. It
will be scheduled before you head out
for a day of Craft Sales. Planning has
already begun for the 2nd annual ART
AIDS: Art Auction which will be early in
95. Stay tuned for further developments.

NOTICE...NOTICE...NOTICE...NOTICE...NOTICE...NOTICE...NOTICE...NOTICE...NOTICE
Due to budget restraints, reACT-Believe will be issued three times a year instead of four.
As well reACT-Believe is asking nonsubscription readers to return the enclosed form if they want to continue to receive this
newsletter. Members, clients and volunteers will continue to receive the newsletter.

COMPLIMENTARY SUBSCRIPTION RENEWAL
Dear Reader:

Name

For several years you have received reACT-Believe
Organisation
at no cost. The AIDS Committee will continue to mail
you reACT-Believe at no charge if you indicate that
Address
you want to receive it. However, we need your help now.
If this newsletter is useful, let us know.
If you can help us pay for it, please do so.
Postal Code
PLEASE CHECK
Yes, I want to continue receiving reACTBelieve
I would like to make a contribution to cover
the cost of reACT-Believe. 1 am enclosing a
cheque for
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Thunder Bay. For those that can afford it, S15
would be appreciated.
___ No, I do not want to receive reACT-Believe
any longer.

Please mail this form to:
reACT-Believe c/o
AIDS Committee of Thunder Bay
P.O. Box 24025,
Downtown North Postal Outlet,
Thunder Bay, Ontario P7A 4T0
Recipients of complimentary copies of reACTBelieve that do not respond to the survey form
will be deleted from the mailing list.

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The

Committee of Thunder

7hflnk "J^ou for Caring/

^ntcr, 1995

^JYvedie &lt;£xch«nge
f)rograms; ^

1994 was a year
Response
challenges for ACT-B
new - Olliers are ongoing issues--we face c
near daily basis.
j«*»X quote from a Nov 01 article in
During the twelve months-of 199^-^ locaTTimes-News reads, "Handing, out •
we saw an increased caseload while ai the
same lime experiencing more losses than we
ever have before. We changed keyv .staff
positions and redefined their roles (Support
Services and Volunteer Coordinators). And
we were pressured by the stark realines of
frozen government funding, increased needs
and an ever more competitive local
fundraising environment.
The latter is where you deserve our
heartfelt thanks
During 1994. many, many of you
volunteered your nme specifically in ways
that helped raise needed dollars in support of
our services
Many local businesses,
employee organizations or service clubs
made direct contributions to our work.
Again and again you have
responded to our requests, from the simple
need of an extra volunteer on a community
bingo night, to assisting with die collection
of donanons for our annual holiday baskets
for clients, to direct contributions of dollars
We are struggling in very difficult
economic and emotional rimes.
Your
generosity - be it your skills or vour nme or
your dollars - has been vital to us this year
Thank you.
Each one of you is helping provide
an answer to AIDS. Each one of you is
proving tiiis is. indeed, a very caring
community.
Michael Sobota
Executive Director

gleans needles to drug users appears to cut '
their risk'of AIDS nr half, a: new tTS. study
• • • -** '
concludes
.WVI UK

..Gnrfeatly Tih • Canada,

there are
some 49 needle/exchang&amp;programs running,
nine in Ontario alone: (Projects such as The
Works in Toronto as well as projects in
Kingston, and in Sudbury operate in a
cooperative community effort to reduce die
spread of HTV amongst.injection drug users
(IDUs) and tiieir sexual partners. Looking at
the bigger picture, needle exchange
programs, when appropriately designed for
the communities they serve, can do a lot
more. IDUPs are not lunitkt-to. heroin and
cocaine. Steroidi use is also a cora&amp;riip-ask
well as home-made substances andiother'socalled "recreational intravenous drags"
A priority of any needle. exchange
program is cfeanmg . upjpj^boarhoods,"
therefore creating- safer "Streets . and
playgrounds, that are free from dirty needles.
This can. tie accomplished in .a controlled.
manner througfra. needle, exchange’ program'
by providing clear. needles or "works" m
exchange, for used or dirty ones
Used
needles :are- placed in specially designed;;:
"Sharps" ^containers ..while, waitingsfor*
transport .;£fa" a proper...disposaU^'ate;|
Simultaneously as needles are beings
exchanged^ educanon about safer :sex|
pracnces^ongorng. The importance p£nQk|
sharing, ^£:f&gt;and
cleaning needles
emphasiz^-|b prevent the spread of'j
and otherfrdjseases. both through-®'
drag use
hopes of ^--pirigfito. is^so-thdtr^ee a
rrusring relationshipestablished''with a
service user, that person would encourage
others to bring in their used needles, putting

'"Volume 8, v7ssue l

some responsibility back on the drug user to
help make the program work.
Although it would not be realistic
to expect that every injection drug user
would enter into rehabilitation, the door is
kept open for those who would choose that
route If the program is deemed trustworthy
by the people who use it—it will work!
"However, building the trust means building
community support for the program. Players
such as the police, the local district health
unit, the local .AIDS committee, other
agencies who are currently doing outreach
work, and injection drug users are integral
to a successful program.
Here in Thunder Bay we know ihai
injection drag use is happening. We know
from our feedback from the local police,
from agencies who are in direct contact with
IDUs. We also know from the Ministry of
Health and Health Canada that new
infections of HTV through intravenous drug
use are reflected in the data We know from
the experience of other successful needle
exchange programs that there is no evidence
that the programs contribute to increased
drug use, and in fact, the incidence of HIV
through injecnon drag use has decreased
significantly in some areas where needle
exchange programs are operanng.
For about the past three years, a
commmee of conscientious local people
have been working together to address the
issue of injection drug use and the
prevention of the spread of HIV/AIDS and
other diseases in our community. A lot of
careful thought and planning has gone into
the possibility of running a needle exchange
program here. Although funding is nor yet
in place, there is a more pressing issue—
getting community supporr for a well run
needle exchange, in order that IDUs will
come forward and use it!
Sheila Berry,
Coordinator of Support Services

�^ocal

^JYews

1994 {Annual Qeneval ^ecting

Thunder

Report

£7?\nnongmous Tcsl^n9

ACT-B's Annua] General Meeting was held
November 9, 1994 A record crowd of nearly 300 people
rumed out for the event
ACT-B had invited Svend Robinson (MP
Burnaby B C ) to return to Thunder Bay as the keynote
speaker for the annual meeting Mr Robinson's address
was titled "Whose Life Is It Anyway - The Ethics of
Euthanasia and Assisted Suicide" The subject is a timely
one. demonstrated b&gt; the enthusiastic crowd that came to
the meeting, and by the range of questions asked of Mr
Robinson following his address
I he meeting also featured a "silent auction" which
raised $600 for ACT-B's Emergency Financial Assistance
Program The funds in this program are available directly
to people living with HIV/AIDS who experience
emergency financial needs
ACT-B's Board of Directors was also elected at
the meeting
The U'94-95 board consists of returning

An Ontario Ministry of Health evaluation report
of anonymous HIV antibody testing indicates that people in
the Thunder Bay region choose anonymous testing over
other options by double the provincial average.
There are three options available in Ontario for
anyone who wishes to gel the antibodv test Onlv the
anonymous testing option gives you complete assurance
that no identifying infoimation about vou will he attached
to your test and that your test results will be reported only
to you
In Ontario, most people gel tested using what is
called the "nominal" system (getting tested through your
doctor). Some people chose the "non-nommal" system
(getting tested through a clinic that takes your personal
information and keeps a file on you but codes the file)
The provincial average for choosing anonymous
testing is approximately 7% However in Thunder Bay. it
is over 14% (and has been as high as 20% during some
periods)
Cteariy Thunder Flay supports anonymous
testing.
To access anonymous testing simply call 62559g 1 to ser up an appointment there are. various different
locations where you can go to be tested
Ask the
recepnonist when you call (you have more options than
being directed ro the Thunder Bay District Health Unit)
The test is free You need not give any identify ing
information Your tesi result will be reported only to you
AC I -LI supports anonymous testing We re glad
you do, too1

veteran directors Richard Atkinson. Aiarma DownevBaxter. Midi Ion Inksetter. Gail Lmklater. Bob Richardson.
Diane Roberts. Pius White and Derek Zulesky They are
joined by newly elected directors Richard DeYuono. Adele
Evans. Rob Mac Kay and Darryl Williams.
ACT-B thanks all past board members for their
skills commitment and contribution to the agency's
development, in particular Sarah Bunn. Ed Pnnselaar and
Rob Shepherd who concluded their terms of office this
year.
And congratulations to the 1994-95 Board of
Directors'

AIDS

Supports

BODY
IGNORANCE
ATTACKS THE SPIRIT
ATTACKS THE

People living with hiv aids need support and love.
You can i get HIV AIDS by being a Iriend.

Trade in fears for facts!
For more information, call •

807-345-1516
AIDS COMMITTEE OF THUNDER BAY

�^^ocus on ^Aindrnising
ZAV and

£01111119

ax cACT'-JS.....

There is something in the wind More and more
people in our community are feeling it is OK lo support our
fight against this disease and against homophobia and AIDS
stigma. Its not a lot'of people just yet but I sense a shift of
attitude which is very reassuring.
As of writing this late in December, with the warm
sun shining on the north, I wonder if there wall he any snow
for die Snowshoe Obstacle Race, at the Winter Carnival
Mediacoiii. a local advertising company, will organise and
sponsor this event on behalf of the AIDS Committee On
January' 28th. Poui person teams can enter for a registration
fee of S20 (with Carnival Pins) or $25 (without)
The evening of that same day. our second annual
art auction will take place Art AIDS: Pul Yourself in the
Picture will start at 7 pm at the Garibaldi Hall on Algoma
Street Tickers are $20 We hope to improve on the $6,000
we made at the first an auction .. time will tell. If you are
keen on being part of an evening of magic and compassion,
fine an and stimulating company i$2u is too small a price
for ail of this) please, join us at the Garibaldi

ij

tAe moat paateiljut etnuiueA

ohc

•iuccec-i.
"2(lAe*t (fou do a tAiucf. eta it atitA alt (four atiCfAt.
“ ut (yum atAole tout i*cto it.
p
it UMt-k (four tcrAoHdiitif.
"Se active. l$e cuen^etic. S*e entAuJcaotic cutd
faUttyul.
a*td &lt;fOU atilt aco*nfiti-lA (four objective.

IRalfiA TtJaldo s&amp;tercau

£ommittec of ^Thunder
acknowledges
There will be a Casino at the Ortona Legion Hall
on February 7. X and 9th
March will feature our coinboxes in Robin's
Donut locations during the Nordic Games Our volunteers
will once again be canvassing door-to-door with rhe Kidney
Foundation
A portion of the funds collected will be
allocated to the AIDS Committee.
And we will finish off the month and rhe fiscal
year with the inimitable and very popular I leaithv Sex
Cabaret. Our seventh annual Cabaret will run for two
days
March 31st and April Fools day Dr Double Bill
will be the Master of Ceremonies and entertainments
during an evening of ribald satire and hot music

and

thanks

our

various funders;
Ontario Ministry of Health
Health Promotion and Social Development Office
Ontario Region Health Canada
Ontario Trillium Foundation
All of the people involved in general fundraising and the
support of many local businesses and individuals.
We would especially like 10 acknowledge ail Those who
contributed to Ail AIDS, in particular rhe many anists.
Bearskin Airlines and McEachem Marketing: also our
thanks to W, Bovvers for donating a fridge to rhe office.

�Education jVews
Social ‘YKJcirketing £ampcngn
Social marketing is "the design, implementation
and control of programs designed to influence the
acceptability of a social idea or cause by a target group "
[Philip Kotler] Social marketing can be used to inform,
persuade, or remind people about a particular issue or idea.
ACT-B has been funded through the AIDS
Community Action Program (ACAP) of Health Canada to
earn out a social marketing campaign. The overall goal of
the ACAP project is to reduce barriers and create
supportive social environments lor people living with
HIV7AIDS, while the specific objective is to create and
place a local and regional print advertising campaign, based
on ihe concepi of social marketing The basic thrust of this
campaign is to develop advertising messages about various
subjects related to HIV AIDS and place these ads in
newspapers throughout Northwestern Ontario.
The
campaign focuses essentially on print media for two
reasons it is economical compared to electronic media and
because local newspapers have historically shown wide and
consistent readership
I or the first year of this campaign, we decided on
an "anti-stigma" focus relating to 11I V AIDS We began by
consulting with staff, with other health care professionals
with clients, and with our Advisory Council to get
suggestions for the campaign on anti-stigma We have run
a series of three small size print ads. appearing September.
October and December of 1994 The ads have appeared in
14 regional newspapers as well as the ChronicleJournal Times-N'ews and the Thunder Bay Post The fourth
ad in the series will appear about the time this newsletter is
distributed
Two of
the ads are displayed in this
newsletter
In order 10 evaluate the effectiveness of the
campaign, we have developed a tracking survey. Our plan
was to make phone calls to about 60 individuals throughout
the region alter each ad placement, with an additional six
calls as controls each time This has been a major effort
involving the diligent and much-appreciated efforts of a
group of four volunteers
The results of this tracking
survey are just now being tabulated and assessed. One
preliminarv result seems to indicate that, while attitudes
towards HIV AIDS and people with HTV AIDS are not as
negative as vve might have thought, many people still base
their level of support on the manner in which a person
became infected I he results of the survey, along with the
observations of our volunteer surveyors, will help to shape
the development of the campaign over the next two years
In the second and third vear a poster and brochure

4

will be published to accompany the campaign Ihese will
carry the messages into specific locations and be less time
limited.
We need your assistance in this process If you
have seen any of our ads. please give us your feedback on
them. If you have ideas about the direction the social
marketing campaign should take, please let us know

HIV DOES NOT
DISCRIMINATE
PEOPLE DO
The virus Coes not care about gender, race,
or sexual orientation. By the end of 1993.
13 3?9 people in Ontario, from all walks of life,
had been diagnosed with HIV infection.

Trade in fears for facts!
For more information, call:

807-345-1516
AIDS COMMUTES OF THUNDER HAY

J/outh v7ssues f}xoject
As the Ontario representative to the Canadian
AIDS Society's newly developed NATIONAL PROJECT
WORKING GROUP on youth issues. I am excited to
bring a new focus lo my work with ACT-B This YOUTH
ISSUES PROJECT is committed to creating ait
opportunity for youth to speak out about their own realities
and experiences around HIV AIDS
What are tite issues for youth with respect to
HIV AIDS prevennon education, care and support’
Ultimately, this project is a needs assessment for youth ji
nsk on a national level Risk groups include young gay
men. young heterosexual women, youth in care and street
involved youth The goal of the project is to coordinate 20
consultations across the country, including one in Thunder
Bay Having this consultation in our city, will ensure that
the voices of Thunder Bay youth will be heard on a
national and regional level
I am in the process of identifying potential
participants for the consultation, as well as am
organizations willing to sponsor participants from outlying
communities to attend.
Ifvou or your organization know of any youth that
would benefit from attending tins meeting or have any
questions or thoughts about the project, please contact
Tara Lewis at 345-1516

�TV

s5^e

c&amp;

^7oin us for an

fashioned

^leigh

%'de!

We appreciate our volunteers!

yhc ^/uture

has happened to our society
when

we

willfully

living

and

sleeping

children

cast

out

because

of sexual

accept
on

of

people

the

street

their

homes

orientation

and

men and women dying alone because
they
To show our appreciation foi your dedication to
voluniecring. ACT-B will be hosting a sleigh ride
at Gammondale Farm on Thursday. March 2. 1995
from 7 00 p.m lo 9 00 p m All volunteers and
their families are welcomed! There's lots for
'kids" of all ages to do
visit the animals in the
bam. swing on the tire in the has loft
sip on hot
chocolate. . . and enjoy a horse drawn sleigh ride!
Please make plans to come! RSVP lo Jo-ann
(345-1516) b&gt; Februarv 29th,
To gel to Gammondale Farm:
Take highway 61 approximately I kilometres past
the airport. ! urn right on the 4th concession road.
Gammondales is located approximately 2
kilometres down 4th concession on the right hand
side

/petition
AC 1 -13 has posted a petition calling parliament to
act quickly to amend the Canadian Human Rights
Act to prohibit discrimination on the basis of
sexual orientation and to adopt all necessary
measures to recognize the lull equality of same-sex
relationships in federal law. Please drop by the
office at 217 S Algoma if you are interested in
signing this petition

have

contracted

^/j/7bar values and
instilling

in

a

disease.

beliefs are

our children?

we

^bey

(earn from example and their example
is us.

\y7h&lt;\X are we doing to the

future of our civilization?
anonymous

�JOIN THE AIDS
COMMITTEE OF
THUNDER BAY
TODAY!

I want to be a member of the AIDS
Committee of Thunder Bay!

___
__

Our strength is our people! People who
give time and money. People who show
their support by becoming MEMBERS.

Enclosed is my $10.00 membership
fee.
I want to be a Supporting
Member. I have enclosed $25.00.
I would like to help more! Here is
a donation of $

________

Marne:
Address:
City:

Where does your membership contribution
go? Directly into the Emergency Financial
Assistance Program. This money supports
people living with HIV/AIDS in our
community. It helps to cover health
related expenses (such as
vitamins or paying the heat

By becoming a member of ACT-B, you also
have a say in the direction that the agency
takes. You may:

¥

attend and vote at the Annual
General meeting;

¥

stand for nomination to the Board;

¥

elect the incoming Board members.

Province:
Postal Code:
Telephone:
ACT-B is a registered charity. Receipts for
income tax purposes will be issued for
every donation of $10.00 or more.
(Receipts will NOT be issued for
Memberships, only for donations.)

Please mail cheque to:
AIDS Committee of Thunder
Bay
Box 24025
Downtown North Postal
Outlet
Thunder Bay ON P7A 4T0

�profiles
/people are our life blood/ ^erc we take rhc opportunity to profile a
cherished volunteer and a staff member.

^/Jinda

^beiln

Terrific volunteers enter the doors of the AIDS
Committee regularly and Linda MacKay is one of these
treasured people Linda has only been volunteering since
the fall of 1994. bur has made a substantial contribution to
ACT-B already'
The eldest of 10 children. Linda was bom in
Halifax and moved to Thunder Bay at the age of 3
Surrounded by family, she soon learned to give time and
help to others. Linda began volunteering over 20 years ago
when her two children were young.
She was a
parent, teacher at Corpus Cliristi school and then moved on
to volunteer at St Joseph's Hospital in the Psvdiologv
Department.
When asked why volunteering is so important.
Linda modestly replies. "1 like helping people
I don't
expect to get anything out of it. I’m more of a giving than
a receiving person. It makes me feel good and I like to led
like I'm part of the team. "
At the AIDS Committee. Linda assists with
reception and clerical work two times each week She was
also instrumental in organising the donations for the silent
auction at the Annual General Meeting. With her help, vve
raised $600 for the client Emergency Financial Assistance
Fund. The AIDS Committee could not function without
the tireless dedication of volunteers Thank-you I .inda'

Sheila Berry has worked at the AIDS Committee
for the past four years, first as Volunteer Coordinator and
now as Support Services Coordinator
Her interest in
people has been evident from an early age "I've always had
that social pull. 1 can remember when I was really young
my sisters and I used to pul on a variety show in the from
yard - make a tent raid invite people and charge 25 cents
admission. I have a picture of six of us who had put on a
show and donated the proceeds ro the Red Cross. I’ve
always remembered myself as being social" It would have
been difficult to be anti-social in the Bern household.
Sheila comes from a blended family of I s 1
Sheila's vocational travels have been diverse; from
R.YA to Copytrox Technician She explored the technical
world and received an Electrical Diploma from South
Porcupine College in I immins L pon graduation. Sheila
gained employment at a woodworking factory
T never
realized that 1 had a knack tor working with thy hands
Through the woodworking shop. I worked at various
machines, learning how to operate the equipment, and
made high quality pine furniture

&lt;SHCi
Always a believer in education. Sheila began
working toward psychology degree "because I knew that
someday J would once again like to work with people"
Her background in management and RNA training made
Iter a good candidate for the position of volunteer
coordinator
Sheila finds her new posnnon quire challenging
and wants to focus her energy on building community
support for people living with HIV AIDS "Situations can
be very complex at times for individuals and families. The
best that I can do is be sincere and supportive."

•• •

�yi)(*nk you thunder Jgny!
JT}e

CommUtcc °f

^7bunder Jgag wishes to thank the following

businesses for donating goods and services in 1994-

A &amp; P Foods
Alexander &amp; Alexander, Reed
Stenhouse Lrd
Athlete's Foot
Atwood Shaw Labine
Bearskin Airlines
Bell Canada
Bev Porter's Limited
Boston Pizza
C &amp; D Sports
Canadian Airlines
Canadian Tire (County Fair)
CBQ Radio
Centennial Golf Course
Chapleau Cree First Nation
Cineplex Odeon Films, Canada
C.J.S D. Incorporated
Collegiate Sports
Command &amp; Post Transfer
Corporanon
Condom Companion
Cranton Wellness Centre
Emco Distnbution Group
Everest of Thunder Bay
Fresh Air Experience
Hammerskjold High School
Student's Council
J U. Colonego Construction
Limited

Janzen's Pharmacy
Jennifer's Antiques
Lakehead University
Lakehead Travel I .imited
Lakehead Board of Education
Linda Lundstrom Fashions
(Toronto)
SSR &amp; Garrison Junior Rank Club
M &amp; M Meats
MDS Laboratory
Magnus Theatre
Marlin Travel
Merlin's Tea Room
Mid Can OK Tires
Ming Auto Beauty Centre
Molson Breweries
Mount Bald\ Ski Area
Nipigon Red Rock District High
School Student’s Council
Non-Teaching Charity Fund of
Lakehead Board of Education
North Star Audio Video
Northco Foods
People’s Co-op
Prince Arthur Hotel
Prospector Restaurant
Rainbow Printers
.Secondary School Teachers Charily
Fund

‘TVJother's £upboard
A huge thanks to the newly formed Mother's Cupboard
food bank committee Our first meeting was a success
The members are Pius WTute, Linda MacKay, Erin
McCarthy, Paula Pterman, Ann Garwood, Don Uhrymw
and Ian Ritchie. We would also like to thank the following
organizations for donating food in December.
Current River United Church
Knox United Church
Beta Sigma Phi, Ontario Psi Master Chapter
If you or your organization wishes to make a donation of
non-perishable food items, you can contact Ian Ritchie at
345 1516 or drop off vour donation to 217 S Algomu St.

Seais Employees Chanty' f und
Sheai Heaven
Silver Mountain Store
Sooler Photo
Sporlop Marketing
St. James Stereo
St Joseph Heritage Staff Fund
Superior Trailers

Sweet Thursday Bookshop
Talcher Office Products Inc
Students of McKenzie School
The Framing Post
The Painted Turtle
The Bodv Shop
The Finnish Bookstore
File Senator Norman M Paterson
Foundation
Thompson Timber Inc.
I hunder Bay Travel Limited
Thunder Bay Symphony Orchestra
Thunder Bay Auto Pans
T hunder Bay Wins'
Unpainted Furniture
Vanderwees Poulrrv Farms
Western lire Auto Supply
W omen of the Moose Port Arthur
Chapter *1212
Zellers (County l air)

7

�/potpourri
^hristuins Jgaskers

I his Christmas, 20 baskets were delivered to clients and their families. Without the generosity of businesses and
volunteers, this event would not be possible. Thanks go out to the following people who made tins year's endeavour such
a success. A special thanks is extended to the coordinator Trish Broeckel. Thank-you Trish, for your hard work and
dedication1 You are indeed our "Good Fairy"!

Zellers Intercity
Zellers County Fair Plaza
Safeway Arthur St.
Safeway Redwood
Safewav CFP
Safeway Court St
Safeway Red River Road
The Body Shop
Global Experience
Video Village
Merlin's Tea Room
McDonalds

Bandito Video
Galaxy Bowl
cjlb’
Boston Pizza
The Kidney Foundation
Thunder Bav Symphony
Orchestra
Magnus Theatre
Linda MacKav
Mildred Arnold
Matilda Arnold

Anita McDonald
Lakohead University
Students
Adele Evans
David Abramskv
Ed Pnnselaar
Eva Green
Trish Broeckel
Hazel Wohm
Bern Kruzick
Anne Ciemnv

Jan Bell
Coral Peterson
Kim Mauro
Floranne Faulkner
Richard DeY'uono
Kathryn Arnold
Stan Weisheimer
Maryanne Gabriel
Marge Cross
Marla Hollingsworth
Sonja Matijek

Resource ^/librnrn
The ACT-B Resource Centre Library has a
collection of materials in a variety of formats covering
information on HIV AIDS and related issues We subscribe
to sev eral treatment information newsletters with the latest
information on HIV Sc AIDS treatments
This information is available to everyone with an
interest Much of the material is available for loan, while
the remainder may be used in the library
Reference
material may be photocopied at ten cents a page
Wo have recently purchased some new' resource
materials. From a spiritual perspective, there are two books
that offer valuable support Gavin Harrison has written a
very powerful book titled In The Lap Of The Buddha
From a background of abuse and as a person living with
AIDS, he offers suggestions around meditation that are both
practical and simple to understand. Gardening with Clay:
Reflections on AIDS by Ronald 0 Valdiserri is a
compelling senes of essays dedicated to the author's brother
who died of AIDS.
The issues of euthanasia and assisted suicide have
been in the public eye recently. Dying With Dignity Final
Exit, and El THAN ASIA: Assisted Suicide and AIDS all
explore aspects of this difficult subject
There are a number of hooks for children, or for

♦••

people working with children, that help to address the issue
of death and dying Tiger Flowers. Losing Uncle Tim are
written for a very young audience, w hile When Heroes Die
is aimed more at young teens The Gift of Goodbye: A
Workbook for C hildren offers a chance to work with the
process of dying, while Explaining Death To Children
provides a more theoretical framework.
Homophobia is still a serious barrier in HIV/AIDS
work, and support for gay. lesbian and bisexual youth is
vital for effective prevention education Two Teenagers In
Twenty, Understanding Sexual Identity, Is It A Choice?
and Growing Up Gay. Growing Up Lesbian are all useful
resources
Not A Total \\ aste explores a mother's reactions
to the loss of her son
OTHER RECENT ACQUISITIONS
IIIV &amp; AIDS: A Public Health Perspective
1093
HTV AIDS A: Disability' Building Partnerships 1994
Palliative Care And HIV/AIDS: Canadian Directory Of
Services 1994
Practice. Guidelines For Obstetrical .And Gynaecological
Care 1994
Staying Healthy With HIV 1994
Virus In The Steel, The HTV/AIDS In Prisons. 1994

7

�porting (jinnee
S7C
Glaxo has announced upcoming international trials of the
3TC/AZT combination. There will be 10 trials sites in Canada,
enroling a total of 200 volunteers. Dr Julio Montaner of Vancouver
is the principal investigator. Negotiations about the trials sites are
still underway, so Gaxo was unable to confirm the other centres
Enrolment is expected to begin in March 1995
The enrolment
period will last for 3 months only In a progressive move, volunteers
will be allowed to remain on their current antiviral therapy, as long
as AZT forms some part of it This means people who have been
clinically stable for 4 months on AZT or AZT/ddl or AZT/ddC can
remain on that therapy while taking part in the trial Volunteers will
he randomized to
1)
remain on their current antivirJU therapy: OR
2)
remain on their current anuviral therapy while
ADDING 3TC; OR
3)
remain on their current antiviral therapy while
ADDING 3TC and Loveride*
(‘"Lovende is a reverse transcriptase inhibitor produced by Janssen
Pharmaceuticals, currently in Phase II trials.)
Entry catena are fairly standard, with CD4 counts between
25-250.
The pnmaiy endpoint is time to progression.
Other
evaluations will be made on the basis of adverse events, laboratory
tests, and Health-Related Quality of Life measures.
If you have any questions about the combination trials,
piease contact Deidre Maclean, Community AIDS Treatment
Information Exchange, 1-800-263-1638 or Ian Ritchie, ACT-B, 807345-1516.

The opinions and medical information offered by reACT- Believe are
those of the individual authors and not necessarily those of the staff
or Board of Directors of the AIDS Committee of Thunder Bay.
Medical information offered by reACT-Beheve should be used with
vour own discretion Please consult your doctor
Please address any comments about reACT-Believe to:
P O Box 24025
Dontown North Postal Outlet
Tli under Bay, Ontano
P7A 4T0
(807) 345-1516

(9:30 a.m. - 5.00 p.m.)

Jo-Ann Jacomb, Editor
Gerald Taylor, Assistant Editor

cACy'~'JZ c^dvisorjj Council

Fred Ball
Beth Huston
Vivian Johnston
Dr Gordon Milne
Bob Richardson
Nicky Tittley
Rev. Don Uhiyniw
Derek Zulesky

cACJ*-JZ

Rick Atkinson
Rick DeVuono
A Downey-Baxter
Adele Evans
Mahlon Inksetter
Gail Lmklater
Rob MacKay
Bob Richardson
Diane Roberts
Pius White
Darryl Williams
Derek Zulesky

Director, Public Health Laboratory
Director of Administration.
Kinna-weya Legal Clinic
Public Health Nurse, Thunder Bay
Distnct Health Unit
Family Physician
Co-chair, Businessman
Supervisor of Infection Control. Port
Arthur General Hospital
Current River United Church. Council
of Clergy
Co-ehair, Health &amp; Safety Officer
Lakehead Board of Education

directors

Treasurer
Director
Director
Director
Secretary
Director
Director
Vice President
President
Director
Director
Director

&lt;5

&lt;AC7

Chnsta Alsch
David Belrose
Sheila Berry
John Books
Jo-Ann Jacomb
Lawrence Korhonen
Tara Lewis
Ian Ritchie

Secretary
Education Coordinator
Support Services Coordinator
Fundraising'Communicanons
Volunteer Coordinator
Office Manager
AIDS Awareness Week Coordinator
Support Worker/Health Promoter

Michael Sobota

Executive Director

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                    <text>Tke AIDS Committee of Thunder Bay

Spring, 1995

Volume 8, Issue 2

C7*\li cAbout '"Volunteers . . .
April 24 - 29 was national volunteer
week.
All across the country,
organizations like ours were
celebrating, praising and promoting
vol unteers, .We- have been blessed
at ACT-IB. Tn 1994, 160 of you
volunteered 4,839 hours of your
time. Thisi$ a phenomenal show of
support for AIDS work in Thunder'
Bay!
—
We celebrated National Volunteer
Week too. We hosted an informal
awards evening, with "Theatre
Games"
being the
featured
entertainment. Fifty people were
present and laughter was the theme
of the night. I would like to thank
Sheena Albanese, Carmen Classen
and Wayne Faulkoner for their high
energy performance!
Volunteers come to us from all
walks of life - home working
mothers,
students,
university
professors and letter carriers, and
from every age of the spectrum.
Over the past eight months, I have /
had the pleasure of getting to know
our volunteers, and I would like tp
recount a few stories about my
experience.
In September, the university and

college students came into town and
seemed to descend on ACT-B. I
was overwhelmed by the deluge of
new faces, sometimes ten of you a
jlay. The most memorable moment
waspne particularly harried falj day.
I had just processed half a dozen
new intakes and I was sitting at my_.
desk catching my breath ACT-B is
Ideated on a very busy intersection,
so I use my window "as free
advertising space for volunteerism.
Five young wmpn were reading my
signs and banners as they waited for
the traffic light to change. I gave
them a friendly wave and smile.
The light turned green and they
began to cross the street. Suddenly,
they alt niade an about face tup and
came back to ACT-B to volunteer
their time. That
how tCristy,
Nicole, Heather, Kan and Zoe
became volunteers!

together long enough to respond,
“1®don’t know about that.
That is mc$ethan ANYONE could
ever want to fipow about David!"
The shrieks ^f laughter didn't
subside untifJanet's shift was over.
To elajborate: David uses a wooden
'
illustrate proper condom
use
Someone, had borrowed
"Woody" to take up to a remote
Northern reserve. Eproute, there
was a plane crash and poor
laifned on the
"Woody"
frozen
woman was
calling fork re
ent!
Volunteers bridge Joy! You help
us to see* the bigger picture and to
remember that|wfejdon’t work in
isolation. You show us that the
entire community calks about AIDS.
You sir^fhe hand that teaches out to
help. Ydp are mfeyoteiejon the other
lo says yes
end offhet
to some
arre requests. Thankyou volur |rs
^rour continued
ink-ytrti for being such
support,
kind, givfr ' and caring people. I’ll
be calling you soon! You never
know what newlseheme we have in
the works*

Reception volunteers have always
played a key role at ACT-B. We are
honoured to have Janet Stewardson
here Wednesday mornings. Janet’s
robust laugh is a breath of fresh air
on our sometimes bleak landscape.
One day, Janet fielded a call from a
h
woman who a^ed, eOoes Davi(!'
X.- !
(the Education Coordinator) have a Jo-Ann Jacomb,
wooden penis?"
Janet held it Volunteer Coordinator

�Jn Review
c^\ ^^nificdnt ^nniversdrif
approaches...
This coming fall/winter will mark the 10th
anniversary of ACT-B’s existence in Thunder Bay.
It was during the late summer and fall of 1985, that
a small group of concerned people in Thunder Bay
began meeting to share their feelings and ideas about
AIDS. There were no public education or prevention
programs in existence in Thunder Bay, and there
were alarming and confusing stories in the media.
In the fall of 1985, the first publicly identified case
of AIDS surfaced at McKellar Hospital, resulting in
further media frenzy'. The concerned individuals
continued to meet and strategize, and in January' 1986
formally organized themselves as the AIDS
Committee of Thunder Bay (ACT-B). They had no
funding, no staff, no office - they were passionate
and committed volunteers.
Now, as we approach a decade of service in Thunder
Bay and Northwestern Ontario, we invite you to think
about this anniversary, what it means to you, to our
communities. We invite your suggestions about how
we may give attention to this past decade, as well as
where we find ourselves ten years after ACT-B
began.
Please let us hear from you: how should we
address our 10th anniversary?

"Trial Xi/Tuhout £n4"
by June Callwood
A review by Michael Sobota
Trial Without End is a detailed telling of how one
man, Charles Ssenyonga, came to infect at least five
women with HIV. As a result of the women's
willingness to come forward and talk about their
experiences, criminal charges were laid against Mr.
Ssenyonga in London, Ontario. The trial lasted three
months, but Mr. Ssenyonga died before the judge
delivered his decision. Thus, we have one literal
interpretation of June Callwood’s title for her
book.

The story of Mr. Ssenyonga is much more complex
than the above summary. Mr. Ssenyonga knew he
was HIV infected when he had unprotected
intercourse with numerous women. He had received
counselling from physicians, a public health nurse, he
had made a connection with the local community
based AIDS organization, he had been directly
questioned about his HIV status by several of the
women he had unprotected sex with, and he had a
public health order written against him in an attempt
to prevent him from further transmission of HIV.
None of these actions worked. Thus, a second
interpretation of the author’s title refers to each
individual involved in the unfolding story, each
personal trial they carried, inside the larger story.
June Callwood's research is detailed and extensive.
The book reveals Mr. Ssenyonga's story and the
women involved with him, mostly through first
person interviews.
When statements are not
corroborated, we are expected to take them at face
value. In addition Ms.Callwood writes with clear
bias, using colourful, connotative words and
descriptions as she presents her information.
The reader should precede through this wealth of
material with caution. The debate about how to
address people who knowingly infect others with
HIV is a serious one, and it has been going on for
some time. Mr. Ssenyonga is only one of a few
individual cases that have surfaced in Canada and
been given media attention. It is important in
addressing those few individuals who knowingly
infect others, that care be taken not to stigmatize all
people living with HIV.
Meanwhile, I consider Trial Without End essential
reading for front line workers, for policy makers and
for anyone try ing to understand the complex reality
of living with AIDS. The accumulative power of the
book is substantial: I finished it with sadness,
frustration...but not without hope. There are no easy
answers to the complex issues raised. But we are
getting better at understanding the issues clearly.
June Callwood has made a significant contribution by
laying out the field in Trial Without End.

�^Cocus on ^Awd Raising
1994 ^Cund Rising Qoal Otjet/
Rough figures indicate more than $72,000 was raised
in the past year, a 25% increase over last year!. In a
very competitive fund raising environment, that is a
remarkable achievement. We finished the year with
Art AIDS 95 and the Cabaret, both of which were
significant successes.
On behalf of the AIDS
Committee, I salute the
many individuals and
local businesses who
have contributed to the
fight against AIDS in
our community.
We
also extend our heart
felt thanks to the
volunteers who serve on
the
Fund
Raising
Committee, the Art
AIDS Committee and
our Bingo and Casino
volunteers.
Their
generous contribution
of time, expertise and
energy
was...
and
continues to be invaluable.
Here are some events you can look forward to over
the summer months:
*+ On the May long weekend, we will have a casino
at Casey's on Memorial Avenue.
*** In June, the Canadian AIDS Society will launch a
series of nation wide PSA's to promote awareness of
community based organizations like ACT-B. We
will follow that with a direct mail campaign.
**Wc will be selling tickets for two Whiskey Jack
games (June 14th and July 26th). If you know any
baseball enthusiasts, please consider selling advance
tickets for ACT-B.

** We have cancelled the Fun Run scheduled for
June 10th. Other events and opportunities required
our attention. We hope to return with this event in
1996 and apologise to those who were looking
forward to it.
*+ July brings us Harbourfest. The AIDS Committee
was recently chosen to
be the "Host Charity" of
the 1995 Harbourfest,
July 6, 7 &amp; 8. Among
other activities, we will
have a Dunk Tank and
the AIDS Mural. This is
an
exceptional
opportunity for the
AIDS Committee to let
the
community
of
Thunder Bay know our
role in the fight against
AIDS.
Looking
ahead,
preparations are under
way for our biggest
event of the year. From All Walks of Life will
kick off AIDS Awareness Week on October 1st.
Thunder Bay along with 30 other communities
across Canada will hold a pledge walk on that day.
Last year 2,500,000 dollars was raised for
community AIDS organizations. All funds raised in
Thunder Bay will stay here. Pledge forms will be
ready by mid August. If you are going to collect
pledges come in and pick up a Pledge Form. We will
be encouraging people to collect at their place of
work and to challenge schools, businesses and
organizations to compete for the most money raised.
Let's make this an even better year than the last one!
Have a good summer.
c^obn Jgooks, ^Aind Raising Coordinator

3

�£ducAtion %JVews
Disclaimer: Statistics for HIV infection and AIDS are limited in accuracy by a number of factors.
Often, it is only possible to give estimates of numbers.
prepared March 15, 1995
by David Belrose, Education Coordinator. AIDS Committee of Thunder Bay
THUNDER BAY
17 cases of AIDS reported in Thunder Bay up to end of 1st quarter of 1994 based on health unit area
of residence at time of onset/diagnosis (Source: AIDS in Ontario, Ontario Ministry of Health, 1st
quarter, 1994): ACT-B has more clients than this, and has seen many more clients die than this
number. Over 40 cases of HIV infection reported to Medical Officer of Health. ACT-B estimates
approximately 100 to 200 cases of HIV infection/AIDS in Thunder Bay.
ONTARIO
4429 AIDS cases, 3597 known deaths - 95.8% male. 4.2% female
50.3% in Toronto (at time of diagnosis)
number of HIV positive tests through Lab. Services Branch (November. 1985- September, 1994)
14,473 of which 1.173 are female (8.1%)
number of HIV positive tests through Lab. Services Branch from Jan - Sep. 1994 - 1094 of which
190 are female (17.4%)
CANADA
Dec. 31. 1994 (Quarterly Surveillance Update: AIDS in Canada. Health Canada)
total 10,689 AIDS cases, dead-7.471
10,576 adult (10,000 men 94.5%, 576 women 5.5%) 113 pediatric(59 M. 54 F)
Statistical adjustment (delays and underreporting) based on figures to June. 1993
total reported - 9,651 total delay adjusted - 11,676 total adjusted for delay and corrected for
underreporting - 13,737
HIV seroprevalence rate in pregnant women (rate per 10,000) (Oct. 1993)
Manitoba 0.72, Ontario 1.9, British Columbia 4.95, Quebec 5.2. Newfoundland 12.0
WORLD
US - 401,789 .AIDS cases reported as of Sept.,
1994 est. 1.1+million HIV
WORLD - 1,025,073 AIDS cases reported to
World Health Organization by December 31,
1994, - estimated 4,500,000+ AIDS cases.
As of late 1994, it is estimated that 18 million
adults and 1.5 million children have been infected
with HIV.
As of Jan. 1994, it was estimated that 5,000
people per day w'ere becoming infected with
HIV7 (1,825,000 per year)

THE PERSON WITH HIV/AIDS
MAY BE YOUR MOTHER,
FATHER, SON, DAUGHTER,
SISTER, BROTHER.
HIV AIDS TOUCHES US ALL.
Hy the end or i99.&lt; 13 3/9 people in Ontario.
o* ciitterinq ago gender race, and orientation,
nact ooen diagnosed with HIV infection.

Trade in fears for facts!
For more information, call:

807 345-1516
-

AIDS COMMITTEE OF THUNDER BAY

4

�health promotion

/fttging^/or your ^rugs ^pril 199?
Are You Getting What You’re Entitled To?
The basic antivirals, AZT, ddC,ddI and pentamidine are
made available by the government free of charge to all
people with HTV through a special programme. You or
your insurance company must pay for all other medications
unless you qualify for an Ontario Drug Benefits (ODB)
card.
There are now three ways to qualify for an ODB card It is
provided to you automatically if you are on welfare or
receiving homecare.
Effective April 1, 1995, you can
apply under the Trillium Drug Program if your total drug
costs in a year are excessive. For a person with an income
up to $20,000 you must pay a deductible of $500; for a
person with an income over $20,000 the deductible is
based on 4.5% of your net income. The exact amount of
the deductible varies according to your income and whether
you are single, or in a family of two, three, or four or more.
You are eligible once you have paid this amount in drug
costs, and you will receive an ODB card for the balance of
the year. You must save all receipts for prescription drugs
and show your income tax return for the previous year to
establish your net income.
How ODB Works
Even if you do qualify for ODB, the system can be
complicated. There are four ways you can get your drug
costs covered under ODB
Formulary List
This is a list of drugs which are paid for if you have an
ODB card. You must show your card to the pharmacist
when ordering your medication. The list includes common
drugs
like
Septrafoactrim,
dapsone,
ethambutol,
ciprofloxacin, amphotericin B etc.
Non-formulary List
This is a list of drugs which are only covered under certain
circumstances. It requires some paperwork on the part of
your physician. You must present your pharmacist with a
"Non-formulary Benefits Form" signed by your doctor. The
list includes lomotil, immodium,
trental, and liquid
nutritional supplements.
Facilitated Access List
This is a special list of AIDS/HIV drugs which registered
doctors may prescribe. Many pharmacists are unaware of
this list so you may have to insist. Some common drugs on
this list include rifabutin, fluconazole, ganciclovir, and
acyclovir.
Section 8 Requests
This is a procedure where a doctor applies for coverage for
a particular drug not on any of these lists, for an individual
patient. This can be a long cumbersome paper-heavy
process. Presently you need to make a Section 8 request to
get clarithromycin for MAC,
• ••

Mepron for PCP, Itraconazole for histoplasmosis or
candidiasis, or somastatin for diarrhea, among others.
How the ODB Doesn’t Work
Unfortunately the government did not take the opportunity
provided by creating the Trillium Drag Programme to solve
a number of the problems people with AIDS encounter
with the ODB, namely:
1)
There is no coverage of experimental therapies.
For example, a person with CMV retinitis who has failed
IV ganciclovir and foscamet is faced with the option of
obtaining a ganciclovir implant at a cost of $5000 or going
blind. While most experimental therapies are provided free
of charge by the manufacturer, a few must be paid for, such
as GM-CSF, growth hormone and the ganciclovir implant.
Even where a patient has exhausted all therapeutic options,
the government has refused to cover costs.
2)
There is no coverage for complementary therapies.
For example Chinese herbs, L-Camitine, NAC, and
vitamins are not covered. The government has refused to
even make a commitment to examine coverage of
complementary therapies.
3)
The facilitated access list for people living with
HIV needs to be immediately expanded. Too many drugs
can only be obtained through section 8 applications which
some physicians will not make because of all the
paperwork involved
4)
A mechanism is needed for continual amendments
to the facilitated access list to keep up with therapeutic
developments. A specialized AIDS committee should be
established, including consumer input, with a power to
recommend additions to the list. If recommendations are
not accepted, written reasons for not covering the drug
should be provided.
Meanwhile...
If you still need financial assistance to pay for your drugs
ask about assistance programs at your local AIDS service
organization.
What You Can Do...
.AIDS ACTION NOW! has been calling for the deficiencies
of the current ODB to be rectified and for a truly
comprehensive programme to be introduced. If you are not
happy with the way the system currently works (no
coverage of experimental or complementary therapies, too
many section 8 applications etc ), or if you feel that the
amount of the deductible is unfair, phone your MPP to
explain why we need improvements to this plan and
demand to know what she or he is going to do about it.
The upcoming election is a good time to seek commitments
from the candidates in your riding to improve drug funding
in Ontario.

�^ealtb promotion
#eiki JTiernpy
(reproduced from Mainliners issue 54 March 1995)
What is Reiki? (Pronounced Ray Key)
The word REEK! is from the Japanese and means
"Universal Life Energy" and builds on the belief that
energy lives within us and around us. Reiki is a method of
channelling this energy by the practitioner laying hands on
the client.
History of Reiki
The Usui System of Reiki evolves from the techniques of
Dr Mikao Usui, a Japanese Professor of Theology who
lived last century. Dr Usui travelled extensively and this
healing system was developed following research and
meditation and is based on ancient Sanskrit teachings. The
Usui system continues to be taught by Reiki masters today.
You do not have to be religious or follow any prescribed
belief system to benefit from Reiki - you need only be able
to receive.
To Receive
"Just for the moment set aside your conditioned ideas and
expectations. Make yourself empty for moment. Be open.
Receive."
The Benefits of Reiki
Following the philosophy of channelling Universal Life
Energy, Reiki can:
**
relieve stress
assist the body in healing itself
**•
revitalise body and soul
**promote relaxation
**■
produce a feeling of well-being
benefit physically, mentally, emotionally
and spiritually
**
loosen energy blocks
**
cleanse the body of poisons
How is Reiki given?
No diagnosis or prescription is needed for treatment and the
client is totally passive. Treatment is given fully clothed on
a treatment couch. A trained practitioner lays hands on
various parts of the body and Reiki energy flows.
During this simple, yet powerful process the client usually
feels relaxed and calm and often experiences a sense of
profound well-being.
Where to Get Reiki in Thunder Bay?
Jennifer Tett offers Reiki in Thunder Bay. She has agreed
to offer our clients a sliding scale rate of $15.00 for a
complete treatment. You can reach Jennifer at 344-9411
She is located in the Medical Arts Building on Cumberland
St. Satisfied clients return again and again to enjoy the
If you need any further information
Reiki experience.
please contact Ian Ritchie at 345-1516.

positively |^ell ^/f/?orkshops
We bid a fond farewell to the second series of "Positively
Well" workshops. To recap last years efforts, Richard
Robichaud from Toronto came to Thunder Bay to speak
about DNCB. Next, Chester Myers made his third trip to
Thunder Bay to speak about "HIV and Nutrition". The
final workshop featured Sandra Johnson from the RISE
Program in Toronto. Sandra gave a instructional workshop
on Therapeutic Touch and relaxation techniques. I would
like to thank the focus group that selected the presenters
and of course, many thanks to the presenters for coming to
Thunder Bay and sharing their knowledge with us.
I am in the process of planning this years exciting
"Positively Well" sessions, and I would like to assemble
a focus group to assist with the project. I need ideas about
guest speakers, our target audience, and implementation
suggestions. If you would like to participate in this project,
please call me at 345-1516. I am tentatively planning the
first meeting for Monday July 10, 1995 at 5pm.

LDH

Return J)cvcls

^

predictor Of PCP
In my treatment research, I came across an article that
appeared in the Canadian Journal of Infectious Diseases
titled "The spectrum of pulmonary diseases in patients with
HIV infection". The article describes the many respiratory
infections that people living with HTV/AIDS experience.
One of the most useful pieces of information that I found
was the fact that using "the lactate dehydrogenase (LDH)
serum level has proved to be extremely useful in ruling out
PCP" (Canadian Journal of Infectious Diseases Vol.5 Sept.
1994 p.34E)
This is very interesting because PCP is
sometimes hard to confirm because the presenting
symptoms can be nonspecific and could also be symptoms
of either bacterial pneumonia, Mycobacterium tuberculosis
or other respiratory infections that might be unrelated to
HIV infection. The LDH serum level is a quick laboratory
test that most hospitals can do onsite in 30 minutes. It
should be noted that elevated LDH serum levels can also be
associated with hemolysis, lymphomas, pulmonary
embolism, liver disease and dapsone therapy, it would
therefore be important to rule these out first. If you would
like a copy of this article or any other information on
treatment please contact me at 345-1516
‘Montaner J, Spour L, Carlos Z, "The Spectrum of
pulmonary disease in patients with HIV infection"
Canadian Journal of Infectious Diseases Volume 5 Suppl E
September 1994.
p 34E-39E.

�Resources

We have good news about our resource library.
First of all, one of our volunteers, Kristen Poluyko, has
agreed to take on the task of Librarian. We expect that this
will result in a more efficient cataloguing of materials.
Kristen will also work on a new look for the library over
time, with a view to enhancing ease of use
Secondly, we have been able to augment our
holdings as a result of several generous contributions. A
grant from the Ontario Ministry of Health has allowed us to
replace a number of materials which had been lost over
time, as well as acquiring duplicate copies of some material
in high demand. The United Way provided us with a small
grant to purchase materials related to abuse and family
support issues. We are also grateful for the generous
personal donation of a number of books by a local resident.
People from other centres have commented on the
quality of our resource library. We encourage you to make
use of the material we have available, and to let others
know of its existence. The library is open during regular
office hours, Monday to Friday, 9:30 to 5:00 pm

HIV-Positive Shire, Amy
Facing The Fire Lee
The Family And HIV Bor
The Family Heart Dlew
For Those We Love: A Spiritual Perspective on AIDS
Gay Theology Without Apology Comstock
Helping The Bereaved Cook
Lesbian &amp; Gay: Chemical Dependency &amp; HIV/AIDS
Weinstein, Dava
Lesbian Health Guide Vespry/McClure
Lesbian Health: What Are The Issues? Stern
The Rainbow Book: Ontario Directory of Community
Services
Safety In Numbers: Safer Sex &amp; Gay Men King
Speaking Of Christ: A Lesbian Feminist Voice Heyward
Theory And Practice Of HIV Counselling Boretal
Treatment of Complicated Mourning Rando
Trial Without End Callwood
What The Bible Really Says About Homosexuality
Helminiak

Here are some of the new materials we have recently
received.

VIDEO

NEW BOOKS
AIDS, Sharing The Pain Kirkpatrick
AIDS: A Guide To Clinical Counselling Miller &amp; Bor
AIDS Caregivers Handbook(updated) Eidson
Breaking The Surface Greg Louganis
Coming Out To Parents Mary V. Borhek
Creating Compassion Weezman
Everything You Need To Know When A Parent Has AIDS
Draimin, Barbara
Everything You Need To Know About Being Being

The Cause Of AIDS: Fact And Speculation (4 videotapes)
Doctors With Heart NFB
The Legacy of Jon Gates
Growing Up Gay and Lesbian McNaught
Homophobia In The Workplace McNaught
Healing Spirit NFB
Living With AIDS Thru Yoga &amp; Meditation Petrich
OUT: Stories Of Lesbian And Gay Youth NFB
The Tibetan Book Of The Dead NFB
(2 videotapes and
book)

Slippy Kisses
_________ ____
Although it involves a bodilyJIutd;1assing is considered to Be~a relatively safe sexual activity. HIV
is not readily transnjittetfthrough saliva and researchers have wondered for years why it is so

5

�profiles
J&lt;w Ritchie
When Ian Ritchie bursts into a room, he exudes a
sense of invincible youth and self-confidence. His
contagious laugh is undeniably one of his most
attractive qualities, although his long flowing hair
comes in a close second! An avid tennis player, lan
spends his off time on the court and with his new
love, Marla. The youngest member of the ACT-B
team, Ian is a welcome addition.
Originally from Ottawa, Ian
came to Thunder Bay to
attend Lakehead University.
He earned a degree in
Sociology in 1992 and still
continues his studies on a
part-time basis, working
towards a Social Work degree.
What brought Ian to the AIDS Committee?
"My brother told me he was gay and so I
wanted to learn more about it. The only thing I
knew about was the connection between being
gay and AIDS so I came to the AIDS
Committee. I got the information here. I
signed up to volunteer and a while later got
a job." That was two years ago and Ian's
still going strong!
lan has two jobs at the AIDS Committee;
health promotion and support services. He
explains the differences and the
similarities. "Health promotion is about
giving people information on healthy living and what
they can do to maintain good health. It's letting them
make the choice of what they want to do or how they
want to live their life. I run "Positively Well" which
is a group of speakers we bring in to talk about
nutrition, alternative or complimentary therapies. I do
research about any new drugs that come out or about
clinical trials people want to get into. Support work
is more direct counselling. Counselling around
psychosocial issues, grief, disclosure, drug and
alchohol counselling, "social worky" stuff. The two
areas go hand in hand. I have an established
relationship with clients so it is easier to give them #

6

health promotion information."
AIDS work is grief work. How does Ian handle the
losses? "It's difficult. I've never had to deal with
death before. I've never lost anyone close to me.
When I started working, I didn't know how to handle
it, which in some ways is good because I don't have
baggage. I don’t know how I'm supposed to act. It's
hard in the sense that I work with people for a year
and a half. 1 develop a relationship. We don't see
someone for only 10 sessions - it's
long term.
From my own
personal perspective, it's an
honour to be there and share
.someone's journey."
What brings you joy and
keeps you going in this
work? "My clients keep me
going. Sometimes I get caught up in
political turmoil and frustration. My
clients bring me back to the ground and
remind me why I'm here. All the other stuff
around me is secondary. That grounds me
and kind of saves me."
When asked to talk about his personal
philosophy. Ian explained. "Have an
open mind and an open heart. Be
yourself."
We are glad that you are "yourself' Ian!
Keep up the good work!

^ius Xtfhtte
When it comes to juggling. Pius White has become a
master. He is presently serving his second term on
the Board of Directors at ACT-B. he is an active
volunteer and also a client of the agency.
In the early 70's, Pius left his home town of Atikokan
to seek his fortune in Toronto. He worked in the
hospitality industry as a bar manager for many years.
As his circle of friends widened and grew, Pius began
to meet more and more people who were sick with
AIDS. His own HIV+ diagnosis came seven years
»««■

�profiles continued . . .
ago. Pius had by this time developed a strong
support system in Toronto. He never sought support
or went to the AIDS organizations there because he
felt so well supported by his friends. About two
years ago however, Pius began experiencing some
health set-backs and decided to move to Thunder Bay
where he could be nearer to his family.
Life in Thunder Bay was quite different from that of
Toronto. Suddenly faced with unemployment, loss
of his peer group and life in a small town, Pius came
to the AIDS Committee. "I came in to do volunteer
work and the next thing you know, I was on the
Board of Directors!"
Pius soon became very
committed to ACT-B. "As somebody living with
HIV, I have to get involved personally when I can;
when my health allows me to. I figure if I can’t get
involved, I can't expect other people to do everything
for me. By doing this, I am not only empowering
myself, I am also getting information for other
people too."
As a client, Pius gains moral support from all the
staff at the agency, especially from Support Services.
"I find when I'm sick, everyone is there. When I have
a problem and lan and Sheila are not around, I know
there’s someone in the office I can talk to."

in this city because there’s not that many people that
I know who are positive. There are more but they
are not ready to go public or even meet other people.
It’s frustrating at times."
How has life changed over the past years? "I take
better care of myself, eat healthy food, take vitamins
and get lots of rest. No more staying out till 3 or 4
o'clock in the morning. The last six months have
been very tough. I was in the hospital in December.
January and February. March and April have been
good so maybe I've broken the spell. I was in a coma
this winter and one good thing that came out of it was
that my health directive or living will was used.
They honoured it. 1 am very specific about what is
allowed to be done and what is not. I have my doctor
and an advocate involved. It took six months to get
this thing together. I worked with my support worker
and doctor for many months. At the end, we brought
in my advocate. It's nice to see that it works."
"The best thing about my involvement with the AIDS
Committee is that it keeps me busy. I can't work any
more. If I didn't have the involvement with the

Board duties include being the PHA (persons living
with HIV/AIDS) delegate to the Ontario AIDS
Network. Pius also serves as the PHA representative
for the Canadian AIDS Society.
He attends
numerous conferences on behalf of the agency and
brings back valuable information to the board and
staff. We are sometimes hard pressed to find him in
town, since he jet-sets across the country so often!
Pius contributes many hours of volunteer work at
ACT-B. "I work the casinos. I sit on the Education
and Support Services committees. I also go out in the
community and speak to groups and am presently
helping to establish a speakers bureau. I tell my own
personal story."
I asked Pius if he is connected with other HIV+
people in Thunder Bay. "I have one good friend w-ho
is also HIV+. I rely a lot on that person for moral
support, especially when I am not feeling well
because that person understands alot. It’s very hard

agency, I'd most likely spend my time sitting around
and doing nothing. I enjoy doing what I'm doing
most of the time."
Our hats are off to Pius White! Thank-you for your
dedication and commitment to ACT-B!

7

�porting Qlance

&amp;

Mt

o
ACT-B Advisory Council
Fred Ball
Mary Lee Barry

WJJV'S ricketyfw*» cAC7-JSThunder Bay WINS is back on tra&amp;k. T^pe is new spirit and
commitment in making Thunder Bjjg. WINSi||give. This unique
lottery benefits over 90 charities ini&amp;hr commiih%^^nd for those
who know the odds, it is clear that$$INS offers thellfebhance of
you winning the big prize. Nowjjpb can buy your ticlcfcat the
AIDS Committee office When Thunder Bay plays, Thunder Bay
WINS!
Jf
ljv

The AIDS Committee of ThunderJBay acknowledges and
thanks our various funders:
** Ontario Ministry of Health
** Health Promotion and Social Development Office, Ontario
Region, Health Canada
**• Ontario Trillium Foundation
**- All of the people involved in generaffundraising and the
support of many local businesses and iftefcviduals.
Special thanks to Bearskin Airlines. lbr sponsoring Art AIDS 95.
This event would not be possibly without the help and support of
many local artists in our commurlfy. Thank-you for your valuable
contributions to the AIDS Committee
The opinions andsib&amp;dical information offered by "reACT- Belize"
are those of tl^pdividual authors asKfehrit necessarily thoSSROf the
staff or Board ^Pirsctt^^ilfe^AIDS Committee; Gflender Bay.
Medical informafiM': Peered by^eACTsBeffeve”* should .be, used at
your own discretion. Please con^Hp^f'doctor.
Please address any comments about "reACT-Believe" to:
P O Box 24025
Downtown North Postal Outlet
Thunder Bay, Ontario
P7A 4T0
(807) 345-1516

Jo-Ann Jacomb, Editor
Gerald Taylor, Assistant Editor
Ian Ritchie, Health Promotion Pages

Vivian Johnston
Dr. Gordon Milne
Bob Richardson
Nicky Tittley
Rev. Don Uhryniw
Derek Zulesky

Director, Public Health Laboratory
Nurse, Ogden East-End Community
Health Centre
Public Health Nurse, Thunder Bay
District Health Unit
Family Physician
Co-chair, Businessman
Supervisor of Infection Control, Port
Arthur General Hospital
Current River United Church, Council
of Clergy
Co-chair, Heatth &amp; Safety Officer,
Lakehead Board of Education

ACT*B Board of Directors
Rick Atkinson
Rick DeiVuono
A. Dovimey-Baxter
Adele Evans
MahlonBtksetter
Gad Linklater
Rob MacKay
Bob Richardson
Diane Roberts

PiigiWhitfc
Dajfryl Williams
Derek Zulesky

Treasurer
Director
Director .
Director
Secretary
Director
Director
Vice President
Director
Director
Director
Director

ACT-B Staff
Christa Alsch
David Belrose
Sheila Berry
John Books
Jo-Ann Jacomb
Lawrence Korhonen
Ian Ritchie
Michael Sobota

Secretary
Education Coordinator
Support Services Coordinator
F undraising/Communications
Volunteer Coordinator
Office Manager
Support Worker/Health Promoter
Executive Director

�</text>
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                    <text>AIDS Awareness Week
October 2 - 8,
Homophobia jmfc HIV
"It takes more than condoms to fight
AIDS. It takes your acceptance and
understanding."
This slogan for AIDS Awareness Week
in Canada this year reflects the
understanding that HIV/AIDS is much
more than just a health issue.
"During a telephone survey about a
social marketing campaign, a significant
number of people indicate that support
for people living with HIV/AIDS
depends on how they got infected (if
infected as babies or from blood
products they deserve support but if
infected as a result of sex or drug use
they deserve to be sick."
"A young man leaves his hometown in
northwestern Ontario, because he gets
no support as a gay person. Moving to
Winnipeg, he falls prey to the
temptations of the big city. Sometime
later, his family, who have by now7
come to terms with his being gay* get a
phone call letting them know that he is
HIV-positive."
"Two HIV-positive men move to a
very small community in Northwestern
Ontario (the hometown of one of the
men). Very quickly, the whole town
knows their status, and they are
shunned. In addition, they have to
travel several hours each way to get to a
community for
medical treatment.
After several months, they feel forced

to return to the large city they had tried
to escape."
These are real stories of the damage
caused by the effects of homophobia.
(Homophobia is defined as negative
personal attitudes or behaviour towards
gays, lesbians and bisexuals.) Over
years of dealing with the HIV/AIDS
epidemic, we have come to see that
social attitudes play a very’ important
part in the way we deal with this
disease. This is not a new7 thing. When
I was a young boy, the big disease that
people only talked about in whispers
was cancer. Now the disease that most
stigmatizes people is HIV/AIDS.
What does homophobia have to do w'ith
HIV/AIDS?
Almost everything.
Homophobia and HIV/AIDS are so
firmly linked in the minds of many
Canadians that their response to a
person with HIV/AIDS often can't be
separated from their response to
homosexuality.
These negative
perceptions and attitudes about die gay
community have been identified by
some, as the biggest obstacles to an
effective, compassionate response to
HiV/AIDS in Canada.
Viruses do not target specific groups or
discriminate on the basis of sexual
orientation. While in North America ifs
the gay community that has been most
seriously affected by HIV/AIDS, this is
an issue for society7 as a whole.
Heterosexual women, men, and children
have suffered and died of AIDS. The

isolation and fear that results from
society's homophobic attitudes towards
people with HIV/AIDS hurts them, too,
just as hatred and any form of
discrimination hurts us all. People
living with HIV/AIDS sometimes find
it difficult to get support and treatment,
especially in smaller communities.
Young people are not offered the
training to help them make informed
choices about their sexual behaviour,
particularly if they are gay, lesbian, or
bisexual. Young gays, lesbians, and
bisexuals are often forced to leave their
homes in Northwestern Ontario to look
for acceptance and community7. Many
people (including women, youth,
aboriginals) still think .AIDS is a gay
disease so they don't consider that they
could be at risk.
As a society we need to work to end all
forms of oppression,
including
homophobia, if we want to try7 to find
effective ways of dealing with
HTV/AIDS. We need to examine our
own attitudes and beliefs. We need to
look
at
the assumptions
and
generalizations we make about other
people.
We need to try7 and put
ourselves in the other person’s shoes, to
better understand them.
While homophobia is an insidious and
pervasive form of oppression, there are
simple steps that each of us can take to
make a difference. We can all be part
of the solution rather than part of the
problem.

�It takes more
than condoms
to fight AIDS.
It takes your
acceptance and
understanding.

WHAT YOV CAN DO TO COMBAT HOMOPHOBIA
Educate Yourself
▼
▼

T
▼

attend workshops on homophobia
read books and other materials (make sure they are current and up to date)
see films featuring lesbian, gay and bisexual persons and experiences
bring up homosexuality in discussions with friends, co-workers

Rcco$*iizc Your Own Homophobia
▼
▼
▼
▼
▼

stop using homophobic slurs (fag, queer, dyke etc.)
when hearing jokes targeted at gays, don't laugh or remain silent
identify how homophobia effects the way you live (your dress, your mannerisms, your
behaviours etc.)
confront the expectations and beliefs you have about gay men, lesbians and bisexuals
don't assume all of your friends, family and colleagues are heterosexual!

Abbrcss Homophobic Behaviour Arovmt&gt; You
▼
▼

establish guidelines at your workplace for harassment and teasing that treat homophobic
interactions as seriously as racial or sexual offenses
make it known that homophobic innuendoes, jokes and teasing are offensive and unacceptable to
you

TaUc Simple But Effective Steps
▼

T
▼
▼
▼

add books and magazines about homosexuality to your workplace's library or resource bank and
put them in a visible place
monitor your resources to ensure books are up to date and suggest materials (for your resource
person to order)
request staff development training on homophobia in organizations such as yours
show your support for gay, lesbian and bisexual colleagues
contact the AIDS Committee for resource materials, or for workshops on homophobia at
345-1516

What is homophobia?
It is the fear of lesbians, gay males, and bisexuals, and the hatred, intolerance, disgust, and prejudice that
this fear brings.
Homophobia refers to individual negative personal prejudice and discriminatory behaviour.

What is hctcrosexism?
It is the promotion by institutions of the inherent superiority of heterosexuality and the assumption that
everyone is and must be heterosexual. Like racism, sexism, and other forms of prejudice and
discrimination, heterosexism awards privilege to members of the group with more power (heterosexuals).

�ACT-B Activities
AIDS Awareness Week 1995
Activities

"HomopkobU

*tib

HIV"

SaturbAif, September 10
Community Dance for Gays, Lesbians,
Bisexuals and Friends
St. John’s Ambulance
518 Fort William Road
9:00 p.m. - 1:00 a.m.

SvmfcAvp October 1
AIDS Walk - " Walk For Life"
registration at Ortona Legion 12:00 noon.
Walk begins at 1:00 p.m.
Entertainment and refreshments will be provided
between 2:00 p.m. and 4:00 p.m.

"Openly More Doors”
Northwestern Ontario Ro5iona1
H1V/A1DS Covinselling Conference
The AIDS Committee of Thunder Bay is proud to
be hosting its fourth annual counselling conference
on October 19 and 20th at the Prince Arthur Hotel.
This will be a one and a half day event covering
such topics as:

fa
fa
fa
fa
fa

MotibAVj, October 2
Tree Planting - Marina Park 11:30 a m.
"Closets Are For Clothes, Not People"
Homophobia workshop - Waverley Library
Auditorium
7:00 p.m. to 9:00 p.m.

TwcsfcAVf. October 1
Men's Healthy Sex Night
L.U. Residence Conference Centre - 7:00 p.m.
Guest speaker - David Belrose
ART AIDS Mural - Keskus Mall 9:30 - 5:30
ART AIDS Mural - Victoriaville Mall 9:30-5:30

WetmcsiJAVf, October 4
Women's Healthy Sex Night
L.U. Residence Conference Center - 7:00 p.m.
Guest speaker - Sandi Covino
Condom Blitz at Sharkey's Pub (College).
ART AIDS Mural - Keskus Mall 9:30 - 5:30
ART AIDS Mural - Victoriaville Mall 9:30-5:30

TkwrsfcAVf, October f
Candlelight Vigil 7:30 p.m.
silent walk from ACT-B to Unitarian Fellowship
Condom Blitz at the Outpost (University).

fa
fa
fa

A review of current medical options
Issues relating to dying, death and the
grieving process
Counselling Native Populations
Women's Issues: creating risk awareness
for women leading to the early diagnosis
of the HIV/AIDS virus and its symptoms
Issues relating to youth, peer pressure,
sexuality and STD's
Legal, ethical issues regarding
HIV/AJDS
Understanding the fundamentals of
counselling
Counselling issues relating to drugs,
alcohol, and/or other chemical
dependencies

Last year our counselling conference proved to
informative and educational. With each new year
the demands seem to be ever increasing in the area
of counselling and HIV/AIDS.
Registrations are currently from communities
throughout Northwestern Ontario. We have some
local spaces available. We have started a waiting
list for out of town registrants who want to attend.
High out of town registrations have restricted our
travel budget.
If you would like more information about
registering or if you are from out of town and
would like to get on our waiting list, please call
Karen Ferland at (807)768-0699 or (807)345-1516
between 9:30 a.m. and 5:00 p.m.

FribAvp October 6
"Darling Divas" (a benefit drag show)
8:30 p.m. to 1:00 a.m.
admission $5.00
Lakehead University Outpost

Canada Has
AIDS

�Focus on Fvmt&gt; R^isms
Thurfoer Bavj AIDS WaIL
A WaIU for Life
Hop, skip, amble or stroll; whatever suits your style.
Join us on Sunday, October 1st for the AIDS Walk.
As you walk, people in over 40 communities across
Canada will also be walking to raise money for their
local AIDS service organizations. We want this to be
the biggest and most successful charity event ever for
the AIDS Committee of Thunder Bay.

exercise and uncommonly nice people will leave you
feeling like you couldn't have spent your valuable
time in a better way.

Pledge sheets can be picked up from the office or call
us and we will mail one to you. Before you begin
collecting pledges call our office and we will assign
you a registration number.
There is no registration fee. We will provide food,
This years Walk is being sponored nationally by: The
entertainment, prizes and fun. What
Canadian
Life &amp;
Health
THUNDER BAY
we ask of you is to collect pledges.
Insurance Association, Molson,
Ask your friends, neighbours,
CBC/SRC, Maclean's/L'actualite
family, co-workers or fellow
&amp; Canadian Corporate News.
students. Then bring your pledges to
Local sponsors &amp; contributors
the Walk (or avoid the rush and drop
are: 94 FM &amp; 580 CKPR radio,
them off at the AIDS Committee
Lehto
Printers,
Medicom,
office the week before). Whether it
Provincial Papers, Investors
be $50 or $500 your contribution
Group - Mary Ann Gabriele,
will be appreciated. Last year the
Mari - 1, Thunder Bay
average amount collected was
Telephone, Wanson Lumber,
$134.00. Remember, many small
Westfort
Credit
Union,
steps make a difference. So every
Lakehead
Travel
Agency,
pledge, no matter the amount, brings
Canadian
Airlines,
Robin's
us closer to our goal.
Foods, Northern Crystal, Pepsi
Cola
Canada,
Beatrice,
The walk will start at the Ortona
European Meats &amp; Deli, The
Legion and wind its way through
White Fox Inn, Magnus Theatre,
trails around the Friendship Gardens,
The Thunder Bay Symphony
over to Confederation College and
Orchestra, Toronto Colony Hotel
back to the Legion - a lovely 5km
and MacEachem Marketing.
autumn stroll. Afterward, let us
entertain you with music and feast on
a late afternoon lunch.
Cut-A-Thon

A Walk for Life.

Everyone knows about AIDS. This
is your chance to do something about
it. We need your help. Your participation will
ensure that the AIDS Committee can continue to
offer quality services. All funds will stay in Thunder
Bay to provide HIV/AIDS education, prevention,
care and support.
The Walk is a "We” event. Walk with those you
care about. Your steps will help fight AIDS.
Ultimately, you will feel great about yourself and
what you have accomplished - the combination of

Hair stylists from Michael's
Hair Design will be sponsoring
a fund raising Cut-A-Thon on Sunday, October 8
from 1:00 to 4:00 p.m. Discounts will be given on
all regular hair cuts (no chemical processing will be
offered - only hair cuts) with proceeds benefitting
ACT-B. 10% discount will apply to all haircuts.
20% off to those who bring a donation of canned
goods for ACT-B's "Mothers' Cupboard". No
appointments will be taken so get there early! Plan to
get your new fall look at Michael's Hair Design, 1715
East Victoria Avenue on October 8.

�Health Promotion*
All About Protease Inhibitors
Protease inhibitors are a new type of anti-HIV drug.
Protease inhibitors are meant to inhibit, or block, a
piece of HIV's machinery called protease. When this
protease is blocked, HIV makes defective copies of
itself. Protease inhibitors are different from
nucleoside analogue^A^T^dCTTWk d4T, and 3TC)
tfays. They are more specific in what
th£y do. Protease inhibitors block infected cells ffoin
proahdng new viru!^\ybrt€"3rugs like AZT cannot
prevenK«me"production of new virus. Bec&amp;pse of
their specl%activity, proteasarifflubitors most likely
do less danTOgeTO’TEflTrthan nucleoside analogies.
Studies have shov^ithat protease^nhithtots reduce
the amount of HIV vTfusTHat is measurable
blood. In some cases, protease
increased T4 cell counts even when/tney were
These results have encouraged two [drug 1cefrtpanies;
that make protease inhibitors to start
treatment programs for people wittiMo
counts.
Most researchers believe that any protease/fnhibitpi
will need to be taken with one or more other drijgs
such as 3TC (an AZT- like drug expected to xje

bvj Uh Ritchie

Many questions about protease inhibitors are still
unanswered. Despite concerns about resistance, this
class of drugs could be a promising treatment for
HIV infection. Combining two or more protease
inhibitors, or combining them with other anti-HIV
drugs may slow dow n the development of resistance.
Protease inhibitors are still experimental
drugs. The mor^ata TharTS-coMected from people
who are actually taking them'
ctombinati is, the more answers we'll be able/to
provide.
Jseywith permissit&gt;n4£om Treatment^
\1J3S Treatment Data Netwo?1C,OKP?l5vp%s treatment
bnnario«r^duTwe4ing, educational services and
:ase/ anagement support catf(212)260-8868 for
fnJbmuition.

iTC

Access Vro$r*ni Changes

AS£il
e experimental anti-HIV drug 3TC has been
avadhbhrwough an expanded access program for
time now. 3TC is a nucleoside analog like the
approved anti-HIV drugs AZT, ddl. ddC and
Studies seem to indicate that it has less side
approved by the FDA very shortly) to get the most
is tnan the approved drugs, and works
benefit. It is also believed that protease inhibitor
parbcukuly well in combination with other anti- HIV
monotherapy - taking one protease inhibitor qt a timb\ drugs.^Doctors have been able to obtain the drug for
- won't produce the best results, but no finical Th^ir parents directly from the company that makes
studies are presently testing any protease fihibitoik^ it, &amp;te*(o Wellcome. Due to problems with drug
combinations. Testing one protease inhibitor arsj time
rly, jthe entry criteria for this program were
may. however, get at least one or more c(f them recefrdv'Vestricted so that only people with under 100
approved more quickly.
vf cell£ could be enrolled, and a maximum of 350
Studies have shown that, in some cases^thg
could enter the program each week.Glaxo
beneficial effects of protease inhibitors used zkone vWelh)ome has now announced that as of August 15th
quickly wears off, most likely due to
l99p, people with less than 300 T cells can ask their
development of resistance. Resistance occurs because Ntocjbr to enroll them in the program by calling
HIV makes billions of copies of itself every dky.
1.SP0.248.9757. The number of people that can be
Each new HIV virus that gets made is slightly '■'enrolled each week has also been increased to 650.
different, which means that the protease part of tKe
virus might be slightly different, too. This new kin
of protease may not be affected by a drug meant to "Researchers
Fmt&gt;
AIDS
Drug
stop the old kind of protease. Signs of resistance have Combination"
already been seen in people taking all three of the Washington Times (08/04/95) P. A6
protease inhibitors that are currently in the final
stretch of development. Test tube studies have also
Researchers at the Wellcome Research Laboratories
shown that newer protease inhibitors like Agouron’s in England report that, when used together, the drugs
AG 1343 may not be effective in people who have AZT and 3TC appear to be the most effective
developed resistance to other protease inhibitors. No combination found thus far to fight HIV. In the
one yet agrees on the extent or significance of journal “Science”, the scientists note that when AZT
resistance, but there are different opinions.
is taken with 3TC. the "cocktail" overcomes the

E

�HesAtb Promotion
viral resistance that decreases the effectiveness of
either drug when taken individually.
The
24-week-long tests of HIV-infected individuals
indicate that the combination reduced the level of
viral infection and increased the number of CD4
cells.

"Wastmg Svfvtorome-Afforfc^blc Treatments’
AIDS Treatment News (07/07/95) No. 226, P. 6;
James. John S.
There are inexpensive treatments for AIDS wasting
syndrome, which is defined as the extreme loss of
lean body mass not due to obvious causes such as
nutritional deficiency or intestinal infection. Early
data indicates that most patients can be
successfully treated using these approaches. One
affordable treatment for non-severe. AIDS-related
weight loss is testosterone enanthate. when used
in combination with an exercise program. The
drug has not been proven in clinical trials, but
according to Dr. Marcus Conant in San Francisco,
it has offered good results. Conant's team has
found that people with true wasting respond very
well to human growth hormone. Fourteen of 16
severely wasting patients gained weight with the
hormone, after finding no success with the
approved treatments Megace and Marinol.
Ketotifen is another possibility for treatment,
though not much research has been done yet on
using it for AIDS-related wasting, ft is believed to
be very' safe, and is used widely in Europe for
asthma and allergies.
A third possibility is
thalidomide, which is now available though an
"underground compassionate access" program
through the PWA Health Group in New York or
Healing Alternatives in San Francisco. The two
FDA-approved drugs for AIDS-related wasting are
expensive, and their effectiveness for increasing
lean body mass is controversial.

"Biaxin OKct&gt; for MAC"
POZ (08/95-09/95) No. 9, P. 22
Abbott Laboratories will soon begin selling its
pneumonia drug Biaxin (clarithromycin) as a
preventive treatment for Mycobacterium avium
complex (MAC), pending U.S. Food and Drug
Administration approval. Clinical trials indicate

that Biaxin successfully fights off MAC, a
common AIDS infection in individuals with CD4
counts less than 100. The drug, however, has not
been compared to the current MAC prophylaxis,
Mycobutin (rifabutin) from Pharmacia. One
potential problem is that more than 50 percent of
the patients who developed MAC while taking
Biaxin became resistant to the drug, which only
makes treatment of the illness more difficult.

"Cancer an&amp; AIDS P«xm KKanagcvncnt
Services on WWW"
Information Today (07/95-08/95) Vol. 12, No. 7,
P. 56
A new World Wide Web site offers educational
materials on cancer and AIDS pain management
from Roxane Laboratories and the Roxane Pain
Institute. Users can easily obtain newsletters,
clinical articles, and a schedule of future pain
management seminars.
"We consolidated
information available to health care providers and
designed a user-friendly program that provides
up-to-date clinical information on managing pain
in cancer and AIDS," explains Dr. Kirk V.
Shepard of the Roxane Pain Institute and Roxane
Laboratories. According to Roxane, it is the first
pharmaceutical company to develop an Internet
program with the primary focus on pain
management. Other services the Roxane Pain
Institute offers include an 800 number for health
care professionals to access its information
program, and a scholars’ programs to educate
doctors, nurses, and pharmacists on the treatment
of pain and the administration of analgesia.

’"New Strategies Against Virus"
USA Today (08/17/95) P. ID
A new understanding of how HIV functions is
stimulating the search for a treatment. Although
scientists used to think that HIV slowly worked its
way through the immune system, a recent study
indicates that HIV attacks aggressively and does
not let up. Dr. David Ho of the Aaron Diamond
AIDS Research Center in New York City says
that administering potent antiviral drugs before
HIV has an opportunity to reproduce many times
over and develop drug-resistant strains may
increase the immune system's ability7 to survive.

�Potpourri
TELL YOV/R STORY!!!
HELP VS HONOUR THE PAST
DECADE Of WORKING WITH AND
AGAINST AIDS
This fall/winter marks the tenth anniversary of the
AIDS Committee of Thunder Bay. We have decided
to mark this important anniversary by telling "our
stories". We invite you to write us a letter, jot down
your experience, tell us your story about what
HIV/AIDS has been for you during the past ten years.
If you have been associated with us - a volunteer, a
client, a board member, a staff person, a friend - tell
us what the AIDS Committee has meant to you.
We will collect all the stories and experiences
submitted by October 15, and put them in a binder,
to be read and shared through out the coming
anniversary year. We hope to publish a selection of
the stories, in an economical format, for wider
distribution.
So please: help us honour ten years of work in the
field of AIDS. Share your experience of ACT-B.
Help us tell "our stories".

THE EXCHANGE
Thunder Bay's long awaited needle exchange
program "The Exchange" is in its final planning
stages. Two staff, Janet Adams, Program Co­
ordinator/Outreach Worker, and Don Young,
Outreach Worker, have been hired and are currently
working to get the program running by the end of
September.
Two fixed exchange sites are confirmed and program
staff plan to get two more sites "on line" in the near
future. Staff will also provide street outreach
services including discussions around HIV/AIDS,
"

............................

Hepatitis B &amp; C, safer sex and safer injection
behaviours, and harm reduction methods. The needle
exchanges will be done on a straight one-for-one
basis.
The goals of "The Exchange" are to prevent the
spread of blood borne diseases, especially HIV,
Hepatitis B and Hepatitis C; to promote safe disposal
of needles; to educate on injection drug use and risk
reduction; and to advocate on risk reduction issues.
For more information about "The Exchange" please
contact Janet or Don at (807) 625-9767.

Support Groups
ACT-B will be running three support groups this fall.
They are:
HIV Positive Group (for people living with
HIWAIDS)
8 sessions - 2.5 hours each (first hour - topic
presentation and discussion, second hour - personal
experience sharing)

Moms of Positive Children
For mothers whose children are living with
HIWAIDS or who have experienced a death of a son
or daughter.
5 sessions - 2.5 hours (first hour - topic presentation
and discussion - second hour - sharing personal
stories)
Bwfctnf’s Support Group (For Buddies of
ACT-B)
4 sessions (first hour - topic presentation, second
hour personal experience sharing)
Please call Sheila at 345-1516 for specific details
relating to any of the groups.
HAIR CVTS BY KR1ST1EN!
Hair stylist Kristien will provide FREE hair cuts for
ACT-B clients. To arrange a new do, call your
support worker.

~

^

OPEN CALL TO ALL ACT-B MEMBERS CONCERNING THE I99f
ANNVAL GENERAL MEETING
The 1995 ACT-B Annual General Meeting will be held in November. An exact date and location
have not yet been confirmed. To be eligible to vote at the AGM, you must have a valid current
membership, or take out a new membership, at least thirty days in advance of the AGM. Please
check your membership card. If it does not say "valid for the calendar year 1995", you've expired!
Good grief! Hurry up and renew your membership. Call ACT-B to renew today!

�Parting device
Thanks to all who helped with the AIDS Committee's
participation in the Harbourfest '95 events (especially to those
who braved the chilling dunk tank). Your efforts resulted in
$4,700 being raised. Thanks also to those who donated to
and worked at the yard sale. Our recycling effort raised $950!
If you have anything which can be used in the Annual General
Meeting silent auction, please bring it into the office in
October.

ACT-B Afcvisorvj Council
Fred Ball
Beth Huston
Dr. Gordon Milne
Bob Richardson
Nicky Tittley
Rev. Don Uhryniw

Volunteers are needed to serve on the committee organizing
the late winter Art Auction. If you are interested call John at
the office.
Or?

St?

St?

S^i
.

1
to be a member of the AIDS
Committee of Jhuri&amp;cr B^vf!
_____Enclosed is my $10.00 membership fee.
_____ 1 want to be a Supporting Member. I have
enclosed $25.00.
___
1 would like to help more! Here is a donation of
$
Name:
Address:
City:
Province:
Postal Code:
Telephone:

The AIDS Committee of Thunder Bay acknowledges and
thanks our various funders:
Ontario Ministry of Health
*+
Health Promotion and Social Development Office,
Ontario Region, Health Canada
Ontario Trillium Foundation
All of the people involved in general fundraising and the
support of many local businesses and individuals.

Jo-Ann Jacomb, Editor
Gerald Taylor, Assistant Editor
lan Ritchie, Health Promotion Pages
Noel Ward, Writer

Director, Public Health Laboratory
Director of Administration
Kinna-weya Legal Clinic
Family Physician
Co-chair, Businessman
Supervisor of Infection Control, Port
Arthur General Hospital
Current River United Church, Council
of Clergy

ACT-B Bo^rfc of Directors
Rick Atkinson
Rick DeVuono
A Downey-Baxter
Adele Evans
Mahlon lnksetter
Gail Linklater
Rob MacKay
Bob Richardson
Diane Roberts
Pius White
Darryl Williams

Treasurer
Director
Director
Vice President
Secretary
Director
Director
President
Director
Director
Director

ACT-B St^ff
Christa Alsch
David Belrose
Sheila Berry
John Books
Ryan Bureyko
Karen Ferland
Jo-Ann Jacomb
Lawrence Korhonen
Steacie LaChance
lan Ritchie
Michael Sobota

SecretaryEducation Coordinator
Support Services Coordinator
Fundraising/Communications
Futures Program Placement Student
Counselling Conference Coordinator
Volunteer Coordinator
Office Manager
Aids Awareness Week Coordinator
Support Worker/Health Promoter
Executive Director

The opinions and medical information offered by "rcACTBelieve" are those of the individual authors and not necessarily
those of the staff or Board of Directors of the AIDS Committee of
Thunder Bay. Medical information offered by "rcACTBelievc" should be used at your own discretion. Please consult
your doctor.
Please address any comments about "rcACT-BcIlcvc" to:
P O Box 24025
Downtown North Postal Outlet
Thunder Bay, Ontario
P7A 4T0
(807)345-1516

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                    <text>Tke AIDS Committee of TliunJer Bay Winter, 1996 Volume 9f Issue 1

Impact Of New Provincial Government Initiatives
In this issue of reACT-Believe, Michael Sobota, ACT-B's Executive Director answers questions about the recent
government initiatives.

Wc bear a lot about
moves tbc new provincial
government
bas
mabe.
How have these affected
people
living
witb
HIV/AIDS in Thunder Bav&lt;?
Shortly after taking over power
last summer, the government made a
series of announcements including the
reduction in the amount of monthly
welfare payments, the freezing and/or
reduction of non-profit housing
initiatives, and cuts to hospitals - mainly
in their capital and equipment budgets.
There were also numerous reductions in
funding for programs assisting women.
One peice that has affected our
clients is mandatory user fees for each
and every prescription filled.
The
nature of our clients' health needs
usually requires a range of prescriptions
for different treatments. And they are
filled often.
If you consider the
provincial accumulative effect, the
government will collect millions of new
"health dollars", by hitting individuals
who already have financial difficulties
every month.

1 can see how this will
impact people living with
HIV/AIDS.
But what
impact does this have on
ACT-B?
These moves heighten the
atmosphere of insecurity about health
care. Already vulnerable people are
having more stress added to their lives.
We expect greater pressures on our

Emergency ty Financial ■ Assistance
Program (EFAP), .and to see more
complex counselling issues arise.
ACT-B's core [funding has not
been affected yet, and we acknowledge
that the Minister of Health, Jim Wilson,
has publicly stated that AIDS is a
priority within his Ministry.
It is
important that the Minister has publicly
taken this stand, as he must be our voice
of advocacy within the Provincial
cabinet when more reduction initiatives
are being discussed.

(tests, referrals) as a matter of
economics first, rather than health care
first.
The bill will also give the
Minister the power to control where
doctors can practice. It is not illogical
to project that we may lose physicians
and much needed specialists.
The real danger of this
legislation is that it is so complex (the
draft runs to more than 211 pages) we
will not see all of its potential negative
ramifications until they begin to be
applied.

What about Bill 26 - the
government's
"omnibus
bill"?

Overall, how bas this
government
responbefc
to H1V/A1DS so far?

The nature and sweep of this
legislation is so broad that it is difficult
to completely understand its impact.
For example, the Minister of
Health (or his designate) will have the
authority to view your personal health
records. This authority will be free of
litigation, should any of your
confidential
information
become
publicly known.
That is, the
government will not be able to be held
at fault, should there be any leak of
information. The intent of this power is
to review and reduce the costs of
"unnecessary tests and referrals" being
done by physicians. The nature of the
progression of HIV requires tests and
referrals to specialists, perhaps more so
than with other life threatening illnesses.
There are two issues here: a challenge to
the sacred concept of your health
information being confidential, and
looking at the application of health care

Again, it is important to restate
that the Minister holds AIDS as a
priority within his health mandate, and
that he has stated this publicly. Direct,
core funding to community based AIDS
service organizations is stable, so far.
The Premier and the Minister have been
open to meetings with various
community representatives (AIDS
Action Now and the Co-Chairs of the
Ontario AIDS Network). The Minister
has stated his commitment to continuing
the Ontario Advisory Committee on
HIV/AIDS (OACHA) and ACT-B has
representation on the committee. This
relationship has to be strengthened and
built upon.
At the same time, we need to
network and build our alliances with
other affected communities to address
major, major reductions in the overall
social safety net.
We have some
difficult years ahead of us.

�10 Years of Service
1995 Atitivial General Meeting - a Celebration!
ACT-B’s Annual General Meeting took place
on November 15, 1995. The event, which marked
our tenth anniversary in this work, was opened by a
Native prayer ceremony delivered by Gabe
Kakeeway. In addition to the usual business of
reports, appointment of auditors, etc.
the
membership elected our 1995-96 Board of Directors.
An Annual Report was distributed.
Following the "business portion" of the
meeting, a panel of ten invited community members
spoke on their experience of ACT-B and HIV/AIDS
over the past decade. Panellists were chosen to
represent a broad spectrum of personal experience
and/or connection with ACT-B during the last ten
years. Panel members included Dr. Fred Ball, Norm

Bowers, Ryan Bureyko, Marge Cross, Gabe
Kakeeway, Betty Kruzick. Rob MacKay. Rev. Don
Uhryniw, Pius White and Hazel Wohni. The personal
stories were powerful, emotional, not without
humour and ultimately very, very moving. This
panel was our first effort to pay attention to and give
honour to all the individuals in Thunder Bay who
have contributed to the struggle against HIV/AIDS
during the past decade. We hope to have other
events, marking this decade, through out the coming
year.
Five new directors were elected to the Board,
together with seven continuing veterans. For a full
listing of the 1996 Board of Directors, please refer to
the last page of reACT-Believe.

Mvj Greatest Wish
So many gone - so many
lost to a fight that no one should
have to face alone, but all too
often do. My only wish - my last
request if I had one more minute
with all those who are gone,
would be to thank them for all that
they have left me - for entrusting
me with the treasure that was and
still is them. My voice will never
fall silent - for if it does then their
story, their hopes and dreams,
may cease to be part of the chorus
that many of us now find
ourselves in.
My friend Ron has shown
me so much - both while he was
here and now that he is gone - and
I am so thankful for all the things
we shared. There are still Says
that 1 get angry that he is not here
to enjoy the changes that he
worked so hard to bring about.
His greatest wish was to know that

I would be all right after he was
gone. Today I grant him his last
request as I go on with my life missing him - but so much the
^richer for knowing him.
Death may be final, but
love continues never ending. The
love we show each other is the
thread - the chorus - that will
continue long after We have
moved on. It will thread its way
through time, weaving a pattern of
love, strength and compassion. I
have become an unwilling player
in this chorus, but I find great
pride in being able to add my
voice to the song - and humility in
knowing my part is only one in
thousands - beautiful in its own
ktght, but truly miraculous when
added to the voices of so many
others walking a similar path as I.
Today I give thanks for
being allowed the privilege of

knowing so many men. women
and children who are no longer
here today. 1 recognize the inner
strength it takes to acknowledge
and appreciate my loss and the
courage it takes to continue in my
journey in spite of the pain and
grief that comes with that loss.
Most of all I am thankful
to the Creator for allowing me the
honour of being able to call these
people my friends. They are
greatly missed.
I can never
express the love and gratitude to
all who have been part of my
journey - except to tell them all
that they are loved and
remembered in a thousand ways
for every day that sees the sun rise
and set over the path I have
chosen to walk.
In Love and Light....
Trevor Weenink.

�EfyitcMwn News
NEW IN THE LIBRARY
Here is a list of materials that have recently been put
into our library. The library7 is open to anyone with
an interest; professional, academic or personal.
We thank Dorene and Kelson Selliff for their
generous donations of educational resource material
over the past year or so. This kind of support is
greatly appreciated.

PRINT MATERIALS
HIV/AIDS COMMUNITY RESOURCE
DIRECTORY FOR FAMILY PHYSICIANS
by Family Medicine North Residency Program and
ACT-B
THE HIV DRUG BOOK by Project Inform
Comprehensively Illustrated Guide to the mostused HIV/AIDS treatments
MORNING LIGHT by Margaret Merrifield
An educational story book for children and their
caregivers about HIV/AIDS and saying goodbye.
EMOTIONAL FIRST AID by Sean Haldane
A crisis Handbook Coping with Grief. Anger. Fear
LAST WATCH OF THE NIGHT by Paul
Monette Essays Too Personal and Otherwise
MY OWN COUNTRY by Abraham Verghese
A Doctor's Stoiy of a Tow n and its People in the
Age of AIDS
HIV-NEGATIVE by William Johnston
How' the Uninfected are Affected by AIDS
BISEXUALITY AND HIV/AIDS edited by
Robert Tielman et al
A Global Perspective
A ROCK AND A HARD PLACE by Anthony
Godby Johnson
One Boy’s Triumphant Story
GRIEF, HIV AND AIDS by Canadian
Hemophilia Society'
A Personal Manual for Comfort. Guidance And
Information
AIDS: THE GOOD NEWS...TIIE BAD
NEWS... by Peter Duesberg and John
Yiamouyiannis
A look at controversial theory of Duesberg denying
the role of HIV in AIDS
THE LIVING RESOURCE
A Workbook for People Living with HIV

OUTING YOURSELF by Michelangelo Signorile
How to come out as Lesbian or Gay to your
Family. Friends, and Coworkers
SAFER SEXY by Peter Tatchell
The Guide to Gay Sex Safely
HOW WE DIE by Sherwin Nuland
Reflections on Life’s Final chapter
EIGIITY-SIXED by David Feinberg (novel)
CANADIAN GUIDELINES FOR SEXUAL
HEALTH EDUCATION by Health Canada
NOW THAT YOU KNOW by Betty Fairchild
and Nancy Hayward
What Every Parent Should Know about
Homosexuality Updated, with new chapter. AIDS
and The Family

VIDEOS
FIT by Parkdale Community Health Centre
This video focuses on harm reduction for injection
drug users
WORKING IT OUT by HIV Centre, New York
Stories from the Lives of Gay and Lesbian Youth

Is there anything gay about it?

iI

Think about your reaction to meeting someone with HIV
or AIDS. Are you seeing a person or judging a lifestyle?
People with HIV / AIDS deserve the same
acceptance and care as anyone else
with a seriojs life-threatening illness.
Trade fears for facts. For a free
brochure call 1 -807-345-1516
Alps Lummiitee
at Thundef Bay

I__ -_______________________ _______

�focus on Fvmb Jloosmg
available at the AIDS Committee office in March.
Chances are that the Cabaret will be in a different
venue...so stay tuned.

"There is a crack m everything,
that's how the light get’s in
that’s how the light get’s m"
...Lconarb Cohen
ACT-B is fortunate to have a Fundraising Committee
which has been tireless in ifs efforts to achieve our
goals. They have done a remarkable job this past
year. I would like to commend Richard DeVuono.
Adele Evans, Cheryl 1 Everall. Mary Ann Gabriele.
JoAnn Jacomb. Sonya Matijek, and Robert Shepherd
for their dedication and perseverance.
I also
acknowledge the contribution of the many volunteers
who work at every fundraising event and in particular
those who help us with bingos and casinos. Each of
these volunteers helps the light get in.
Briefly, a few comments about a very busy AIDS
Awareness Week which saw a lot of fund raising
activity. ACT-B thanks the Darling Divas for the
generous donation of the door receipts from their
show. And our thanks to Ryan Burevko and JoAnn
Jacomb for organizing the Social. Of singular note,
was the response of many local businesses to the
AIDS Walk. In particular, we are grateful for the
generous assistance from Lehto Printers. Corporate
Graphics, Unisource and Mediacom. Over SI0,000
in pledges were collected for the Walk. Planning for
next years Walk has already begun.
The Healthy Sex Cabaret will run for two nights.
March 15 and 16. Tickets are $15 and will be

The quote which leads off this article is also the
theme of Art AIDS 96. The auction will be on
March 23, at the Nor Wester Resort Hotel. There
will be some wonderful an and crafts up for bid.
Also this year, the live auction will include several
lifestyle and service packages in ifs list. Tickets are
S20 for an exciting evening of fine ait. jazz. wine,
hors d’oeuvres and camaraderie.
Indeed, this will be a interesting year. Many service
organizations are experiencing cuts to their budgets
and will be fundraising in earnest. I am confident
with the help of our new Board of Directors, the
Fundraising Committee and many volunteers that
ACT-B will once again meet its goals.

Th^nh-Vou Thunder B&lt;\Vjl
Our Holiday Basket project was again a success in
1995. 17 festive baskets and nine overflowing
envelopes were distributed to clients and their
families. ACT-B would like to thank project co­
ordinators Kristen and Nikki Myles for their hard
work and dedication to this project. Their volunteer
efforts are gratefully appreciated by all! We would
also like to thank the following individuals for thengenerous donations to our baskets: Kim MauroHopkins. Eva Green. Michael Sobota. Linda
MacKay, Helen Rose. Betty Kruzick. Ruth Racic and
Richard DeVuono.

lou are cordially mated
to the
RIT)S (on in utter of Thunder 13ay s
Third Rnnual

IUyT flLDS Q6 - Spreading Lite Light
art auction

|k

Tickets: $20.00

lllarch 2.3, IQQO

(available at ft(T~13 office)

llor Wester Resort I [otvl

includes complimentary hors d oeuvres
cash bar
sjxmsored by C13Q Radio

J:00 p.m.
the Chronicle Journal

�Health Promotion
PMPA in Perspecfive
by John S. James
PMPA is the experimental anti-HIV drug which gained
national attention in mid November, after a governmentfunded study, published in Science, reported that oncedaily doses for four weeks completely protected macaque
monkeys from SIV (a virus which is closely related to HIV)
even when given 24 houj&gt;-afteTexposure to the virus; all
the untreated-monkeys developed infectionand disease.
No drug\toxicity was found. No other potential treatment
has been able to do this. .AZT, for example.\gave sfx
percent pro^ctidTrwfrerTgiven before exposure and zerd
protection after closure (in othej; studies, which wefe no^
exactly comparabtei^M^hdther antiviral, PMEA, which
is chemically related^to PMPA, .protected -40 of f2
monkeys when given before exposure, but only one M five
monkeys which received the treatment fottr hours after
exposure to the virus.
/
/ *
f
While the recent media coverage may s6.em excessive j
especially since PMPA has never been taken by even a
single person, and human toxicity is unknown - vVe^elieve
that the new results are of first - rate importance/ Besicjes}
the obvious potential uses in preventing infection after
needle - stick injury, and in preventing material-infhptj
transmission (which is believed to usually occur at the time
of birth), PMPA is clearly an important lead as a possible
treatment for established infection. Of course no one
knows if it will be useful for this purpose until it i^tried.
AIDS Treatment News could not finish an in-depth
investigation of PMPA in time for this issue. Butidue to
the widespread interest, we wanted to mention s few
background points:
#
Some people have tended to dismiss the finding
that this drug can protect monkeys after exposure, sibce
PMPA is chemically very close to PMEA, which is w&amp;U
known and already in clinical trials. We believe suc^
quick judgement is a mistake. Even though the chemi&amp;d
change is small, PMPA is a new chemical entity. Even a"
small chemical change can have a huge impact on the
safety', efficacy, and clinical potential of a new drug.
%
PMPA, PMEA. another derivative of PMEA called
bis-POM PMEA, as well as some other antivirals now
being developed for human use, are members of a new
class of drugs called nucleotide analogs (as opposed to
nucleoside analogs such as AZT and ddl). Like nucleoside
analogs, nucleotide analogs stop HIV replication by
providing false building blocks which are incorporated into

bvf

RitcVnc

new viral particles when they are formed. But nucleotide
analogs do not need the chemical processing inside the cell
which nucleoside analogs do; therefore, they are
potentially able to work in all cells, not only cells which
can provide the processing which nucleoside analogs
require.
#
Nucleotide analogs are being developed by Gilead
Sciences. INC., of Poster-City, California, not only for use
in treating HfV, but also for treating CMV and mother
Viruses. At this time it appears that the first nucleotide
apalog likely to reach widespread human use for treating
-HIV may’ be bis-POM PMEA - b^eattse4t-s£eths to have a
bettertherapeutic window between active .arid toxic doses
than PMEA itself, it canl)e4ak««-oraffiy. and it is already
in human tjialsv- No one knows how bis-POM PMEA will
compare with PMPA. " -... ~
kIt may be hard to tell quickly how well nucleotide
Analogs, are working. For reasons which are unknow n,
viral load usually shows only modest reductions comparable to that from AZT - even when other
informatietl suggests that these drugs may be working
better than the viral load changes imply. (We would
Suggest u^jng symptom-reduction trials to study this kind
pf cJVug - $mall. rapid human trials to see if an anti-HIV
jjpig can help people recover from ongoing AIDS-related
symptoms which have been resistant to conventional
treatments.
#
, PMPA illustrates some of the problems of delay in
AIDS dtyig development. The newly-published results on
protecting monkeys with PMPA were mostly available
about a year ago (untreated monkeys were clearly infected
at three weeks after exposure to the virus, but the paper
reports results for up to 56 weeks after exposure). During
this' year few people knew about PMPA, which was
previously mentioned in only two published AIDS-related
articles, both highly technical; many who might have been
involved in advancing this line of work were not. (We do
pot blame Gilead Sciences for the delay, as it was not their
-Study, but a government study - and Gilead's plate is full
with at least six different treatments it is now developing
for HIV and related conditions, as well as other treatments
for other diseases. The paper was submitted to Science in
April 1995, and accepted in September.)
PMPA is now undergoing standard animal toxicology
testing, in preparation for human trials as a potential
treatment. The first human test, however, will only use a
single dose, to determine whether the drug can be
absorbed orally (it was injected in the monkey-protection

�study). If the drug is not orally available, development
will probably w'ait until an oral version can be designed.
For years there has been a myth that an injected HIV
treatment would not be acceptable in the marketplace: and
there is also a regulatory disincentive to proceed
immediately with a treatment that must be injected, as the
company will later have to start over again if it wants an
oral version.
These delays do not appear to be anyone's fault. But they
do show that we have a problem which needs to be
addressed. It is not being addressed today.
reproduced from AIDS Treatment News, Issue Number
236, December I, 1995

Ttaltoom toe's Elusive Access
by Dave Gilden
In September, Treatment Issues reported the imminent
availability of thalidomide through a compassionate use
program for those with AIDS-related wasting.
Thalidomide, which blocks tumor necrosis factor (TNF)
production in the body, is a possible alternative to the
largely expensive human growth hormone - another
experimental anti-wasting treatment. (For more on human
growth hormone and thalidomide, see the May. 1995
Treatment Issues.)
Lamentably, the expanded availability of thalidomide has
not come to pass. The delay has been due to the
difficulties in working out the details of the protocol under
which thalidomide is offered and the “cost recovery"
provision through which Celgene. the manufacturer, is to
charge for the drug.
The original version of the protocol elicited considerable
criticism from the AIDS community. The thalidomide
expanded access program sounded almost like a trial to
many. It was to randomly assign applicants in a blinded
fashion to a relatively low dose (50 mg) or a high dose
(200 mg) of the drug and record their response. Program
participants would have to pay $550 for a three-month
drug supply regardless of which dose they were receiving a price that was only approved by the FDA on October 13.
“The issue is that in trying to avoid granting another
compassionate use program, the FDA has created a far
worse problem: undoing years of a simple ethical standard
that keeps pharmaceutical companies from charging trial
participants to be guinea pigs," complained Sally Cooper
in a widely circulated open letter. Cooper is director of
New York's PWA Health Group, a buyers club for
unapproved drugs with AIDS- related applications.

In a meeting between FDA officials, Celgene and AIDS
activists on October 24. the randomized dose portion of
the program was eliminated. Patients' physicians will
determine the dose of thalidomide they will receive, and
the data collection effort will focus on safety information.
"Now. (the protocol) will have a more compassionate use
slant." said Sol Barer, president of Celgene. The company
will still charge for the drug but is committed to providing
thalidomide free to a substantial number of people who
could not otherwise obtain it.
While awaiting the start of the Celgene program,
thalidomide is available to people with AIDS-related
wasting in three ways. The first way is through one of
several trials, including Celgene's placebo-controlled eightweek trial for people with AIDS-related wasting and not
active or recent opportunistic infections.
(Call
800/TR1ALS-A for more information).
Free thalidomide may be obtained temporarily through an
FDA screening process that previously was only concerned
with thalidomide for people with aphthous ulcers, but now
is also trying to bridge the gap until Celgene puts into
practice the expanded access protocol. The FDA does not
ship thalidomide but rather authorizes Celgene to send out
drug on an individual basis to those in need, to whom
there is no charge. The FDA says its eligibility criteria are
very loose - there is no specific percentage of weight loss
to qualify, for example. For more information, call the
Food and Drug Administration at 301/443-9553 or fax
301/443-8445.
Another way to obtain thalidomide is through two buyers
clubs. New York's PWA Health Group and San Francisco's
Healing Alternatives Foundation. The PWA Health Group
charges $22.50 for a ten-day supply ($15.50 for people on
Medicaid) - less than half of Celgene's "cost recovery"
charge. Like the FDA. the buyers clubs say they will end
their distribution of thalidomide when Celgene commences
its program.
When the thalidomide expanded access protocol goes into
effect, people with HIV and an involuntary weight loss of
ten percent will be eligible to receive thalidomide,
regardless of concomitant opportunistic infections or other
medications (including other anti-wasting therapies).
Because of thalidomide's propensity to cause severe birth
defects, women engaging in "reproductive sexual
intercourse" will be required to practice two methods of
contraception, preferably one hormonal and one barrier
method.
Celgene's "thalidomide hotline" can be reached at 1-800896-8766.
reproduced from Gay Mens Health Crists - " Treatment
Issues ” Nov. ‘95

�199f

Donors

ACT-B thanks the following businesses and Corporate supporters who so generously assisted us in 1995.
Your partnership is our lifeline!
Glaxo Wei Iconic
Lchlo Printers Limited
Bombardier Employees 4 C's Fund
Northern Crystal Inc.
Canadian Airlines
Lakehcad Travel Agcnc\ Ltd
CBC/SRC
The Canadian Life &amp; Health
Insurance Association
Maclcans/L'actualile
Canadian Corporate News
Corporate Graphics Northwest
‘&gt;4 FM/ 5X0 CKPR
European Meats and Deli
Investors Group (Man Ami Gabriele)
Magnus Theatre
Pepsi Canada
Prinlables
Robin’s Foods Inc
Thunder Bay Symphony
Thunder Bay Telephone
Unisource Canada Inc.
Valcntc's Music
While Fox Inn
Mediacorn Inc
V.B Cook Employees Charitable
Fund
Superior Trailers Ltd.
Bearskin Airlines
Secondary School Teachers Charily
Fund
Kaisu &amp; Partners
Bank of Nova Scotia
Toronto Dominion Bank
Ladies Auxiliary Fort William
Branch #6. Royal Canadian Legion

Wc tfo&lt;xv»k

our
commvmitvj
partners*.

Employees of West Fort William
Credit Union
Confederation College Students Union
Employees of Prince Arthur Hotel
Lakehcad University Student Union
Employer's Advocacy Council
Rainbow Printers Ltd
Truck &amp; Diesel Hydraulics
Bell Canada
Sunshine Painting
Non Teaching Charity Fund of the
Lakehcad Board of Education
Alexander &amp; Alexander Reed
Stenhouse
CBQ Radio
Hot Tub Express
Arthur's Used Furniture
The Kitchen Store Inc
The Black Unicom
Valhalla Inn
Lowery's Ltd.
Port Arthur Brasserie
Black's Photography (County Fair)
Rainbow Books
Grand &amp; Toy
Kelly 's Nutrition Centre
Mister J Men's Fashions
Shopper’s Drug Mart
Sweet Thursday Bookshop
The Body Shop
Mari - 1 Furniture Inc.
Prince Arthur Hotel
The Keg Restaurant
Dino's Bedding &amp; Decor
Creative Lighting
IntcrCity Sports

Northern Lights Antiques
The Treasurc House Ltd
Shear Heaven &amp; You
Par-t-Golf
Enviro Tec
Silk &amp; Cedar
Perl's Framing
Perth's Services
Changes - The Ultimate Music Store
Tree Top Toy s Inc
Amos &amp; Andes Imports
Harrington Court Dining Room Inc.
Floral Design One
Mount Baldy Ski Area
Power Centre
Eagle Feather Art
Esthetics by Linda
The Framing Experience
The Finnish Book Store
Boston Pi/./a
Casey's Restaurant
Pi/./a Pi/za
Domino’s Pizza
Mystic
K Mart
Canada Safeway Limited
McDonald's Restaurant
Zeller's Limited
The Kidney Foundation
GP Movie Rental
Bandito Video
Galaxy Bowling Lanes
Mario's Bowl
Merlin's Bistro
Global Experience

�Profiles
Lawrence Korlioticti
In the AIDS movement. Lawrence Korhonen
would be considered a dinosaur. He has worked at
the AIDS Committee since January 28. 1988.
Lawrence recalls those early years fondly. "Back in
1988, ACT-Bwas funded for 2.5 people. I was the
point 5 staff. I was only half as big as I am now", he
quips.
Lawrence feels that he has grown with the
position over the years. "When 1 first started, I did
lots of different things; fund raising,
education and
some
volunteer
management.
As the agency has
grown, my position here has become
more specific." Now, Lawrence is
employed full time as the Office
Manager.
Lawrence has a passion for the
arts and spends hisspare time
volunteering with a local amateur
theatre group, Cambrian Players. He
recently played the challenging role of
John Merrick, in the group's
production of The Elephant Man. He
was also in the cast of The Cocktail
Hour. Jitters and Glengarry Glenross.
Lawrence serves on the Cambrian
Board and assists with financial
matters.
One
of Lawrence's
most
notable
achievements was bungy jumping. His intent was
only to watch, but before he knew it, had a rope tied
around his ankles and was plummeting off a tower.
Any disbelievers are welcomed to view his souvenir
video!
Over the years. Lawrence has been
instrumental in many major changes at ACT-B. He
helped to facilitate the move to our new office space
by developing the blue prints and overseeing many
aspects of the operation. He organized the Annual
General Meeting for three years running and
coordinated the event that featured Svend Robinson
as the keynote speaker. Attendance at this meeting

was over 300 - a record! He participated in bringing
two Ontario AIDS Network meetings here. He
continues to support and facilitate change at ACT-B
and is a dedicated employee.

D^rrv^l Willi^ms
The mid-winter snows find me tucked away in Darry l
William's cozy apartment nestled amid his vast angel
collection. There are angels displayed everywhere;
all shapes, sizes and textures, representing
a only a small part of his collection. Every
one has a story, most are hand-made by
A
special people in Darry l's life.
Darryl is one of ACT-B's angels.
He came to us a year ago to "only serve on
the Board". Soon, he was sitting on
various committees, working the bingos
and casinos and even did a shift "sitting
above" the dunk tank at Harbourfest!
Volunteering has always been a
part of Darryl's life, starting with the Sea
Cadets and Navy League in his younger
years. After Business College, he began
volunteering at McKeller Hospital and
eventually landed a part-time job there. He
is now entering his 14th year of
employment with the Hospital and is
currently working as pharmacy stock
clerk/purchasing and inventory control.
Why did Darryl start volunteering at ACT-B?
"I knew people that were involved with ACT-B and
others who had AIDS. I thought this w'ould be a
good opportunity to be of service in the community.
I am a firm believer that one should put back into the
community rather than always taking. One should be
involved - be productive with your life."
Darryl’s future plans include entering a livein relationship with his partner. He is also eager to
continue his work with ACT-B as President of the
Board. We thank Darryl Williams for his hard work
and effort on behalf of ACT-B. He joins the ranks of
ACT-B's angels!

In IQQ5, over 2/2 Volunteers donated more than J,QOO hours of service to
the HKDS Gommittee of Thunder IBay !

Thank-you Volunteers!

�Potpourri

fiCT-B presents the
8th annuel
Healthy SEX Cabaret
March 15 &amp; 16,1996
Dr. Bill stars in
"THE SEX TRIffL CflBfiRET"

with Dab Patterson, Kim Hanson, Rodney Brown
and many more!
Two new locations to be announced!
Call 345-1516 for details

3TC
3TC (Lamivudine)has recently been
approved in Canada. As a community' based
worker, my main concern with the approval of
3TC is the accessibility of this new drug.
According to Diedre Maclean at the
Community' AIDS Treatment Information
Exchange (CATIE), this drug will cost $4.20 per
pill or $3100.00 per year. For people who are
receiving social assistance (FBA, GWA), they
are at the mercy of the Ontario Conservative
Government to add this drug to the Ontario Drug
Benefit Formulary (which is a list of drugs that
the government will provide free of charge).
Sources inside the government are reporting that
the Conservatives will NOT be adding this drug
to the formulary .
We are currently mobilizing our
resources to ask the government to add this drug
so if people wish to access it they can. We live
in a country that used to have a health and social
safety net where by every single person had
equal access to basic human needs, we are now

seeing an erosion of these basic services in
favour of "debt reduction". Is this a path that
we as citizens wish to follow? Not this kid!!!
by Ian Ritchie

WISH LIST
We are in search of a TV/VCR stand on wheels,
for use in training sessions. We also require
building supplies - sheets of plywood, 2 x 4’s,
hinges and nails to build a garbage container. If
you have any items to donate, please call Jo-Ann
at 345-1516.

OMN1BVS HEARINGS
On January 10, 1996, Michael Sobota presented
a brief to the parliamentary committee holding
hearings on the Omnibus Bill in Thunder Bay.
He voiced concerns about the confidentiality of
client's health records and anonymous testing.
We have yet to see if these hearings will have
any effect on the substance of the new bill.

�Partins Glance
The AIDS Committee of Thunder Bay acknowledges and
thanks our various funders:

ACT-B Abvisorvj Covmcil

Health Promotion and Social Development
Office, Ontario Region, Health Canada

Fred Ball
Mary Lee Berry
Richard DeVuono
Gail Linklater
Dr. Gordon Milne
Diana Smith
Nicky Tittley

Thunder Bay WINS!

Rev. Don Uhryniw

All of the people involved in general fund
raising and the support of many local
businesses and individuals.

ACT-B Bo^rt&gt; of Directors

Ontario Ministry of Health - AIDS Bureau

WI MEMBER
&lt;=» t=

the

THUNDER BAY LOTTERY COIP.

SUPPORT

Q

Rick Atkinson
Joyce Bames
James Budd
Rick DeVuono
Adele Evans
Carmen Klassen
Mahlon Inksetter
Gail Linklater
Rob MacKay
Paul Mahony
Tony McQuilter
Darryl Williams

Director, Public Health Laboratory
Ogden East End Health Centre
Co-Chair
Co-Chair
Family Physician
Thunder Bay District Health Unit
Supervisor of Infection Control,
Port Arthur General Hospital
Current River United Church,
Council of Clergy

Treasurer
Director
Director
Director
Vice President
Director
Secretary
Director
Director
Director
Director
President

ACT-B St^ff
cr'*-

cr^-

cr^-

Q~^‘

cr^*-

cl-*.

cr^-

cr^-

1 wAtit to become a member of tbc AIDS
Committee of Thunder Bav^!
_____
_____

Enclosed is my $10.00 Membership fee.
1 want to be a Supporting Member. I have
enclosed $25.00
_____ I would like to help more! Here is a
donation of $
Name:
Address:
City

Christa Alsch
David Belrose
Sheila Berry
John Books
Ryan Bureyko
Jo-Ann Jacomb
Lawrence Korhonen
Jennifer Peter
Ian Ritchie
Michael Sobota

Secretary
Education Coordinator
Support Services Coordinator
Fundraising/Communications
Futures Program Placement Student
Volunteer Coordinator
Office Manager
Social Work Placement Student
Support Worker/Health Promoter
Executive Director

The opinions and medical information offered by
“reACT-Believe'” are those of the individual authors and not
necessarily those of the staff and Board of Directors of the AIDS
Committee of Thunder Bay.
Medical information offered
should be used at your own discretion. Please consult your
doctor.
Please address any comments or concerns to:

rcACT-Believc

Province:

P O. Box 24025
Downtown North Postal Outlet
Thunder Bay ON P7A 8A9
(807)345-1516

Postal Code:
Telephone:
CL^^-

cr^-

CL^^&gt;

cr^-

cr^-

cr***-

cr^~

Cl-*-

cr^*-

c

Jo-Ann Jacomb, Editor
Gerald Taylor, Assistant Editor
Ian Ritchie, Health Promotion Pages

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                    <text>rcACT-Believc
The AIDS Committee of Thunder Bay

CaII to Renew the
"NAtiovtAl AIDS
StrAtegvj
by Michael Sobota, Executive Director

The Federal government's
National AIDS Strategy ends in
March 1998. This strategy spells
out the role and responsibility of
the Federal government in
responding to HIV and AIDS in
Canada,
and commits the
government to certain levels of
spending in making that response.
Included in the commitment to
spending, is support for research
in Canada related to HIV/AIDS,
the National AIDS Secretariat, to
the Canadian AIDS Society and
the AIDS program of Canadian
Public Health Association.
As well, the National
AIDS Strategy delivers funds
across the country to local
community
based
AIDS
organizations (ASO's) through the
AIDS
Community
Action
Program (ACAP). Locally, that
filters down to approximately
$50,000 annually to ACT-B.
These funds support our Health
Promoter position, as well as our
annual AIDS Awareness Week
activities. Healthy Sex Cabaret,

our regional social marketing
campaign and a workshop series
called "Positively Well.”
S o
the National AIDS Strategy plays
a vital role in supporting
important, national goals as well
as
significant
community
activities.
The strategy is in
danger of lapsing.
To date the government
has no plans or process put in
place to continue the work against
HIV/AIDS in Canada beyond
March, 1998.

The National AIDS Strategy,
which funds ACT-B’s Health
Promoter Position is in
danger of lapsing.

ACT-B is joining our
sister ASO's in Ontario and across
Canada, to urge action on
renewing the National Strategy as
a health priority. Meetings have
been arranged with the Federal
Health Minister to express this
urgency. The Minister, while
sympathetic, has said he needs to
hear the support of local MP's
from across the land, that
renewing the National AIDS
Strategy is important. We will be

advocating vigorously with our
local MP's.
We invite you to express
your own feelings to Thunder
Bay's two MP's:

Stan Dromisky
(Thunder Bay-Atikokan)
1500 S. James Street,
Thunder Bay ON P7E 6N7
FAX: 577-1905
Joe Comuzzi
(Thunder Bay-Nipigon)
180 Park Avenue Suite 210,
Thunder Bay ON P7B 6J4
FAX: 345-4752
A simple letter, calling for a
renewal of the National Strategy
in support of national research
funding and local, community
activities would be helpful. It is
very important that our MP's hear
from as many individuals as
possible.

Under our Cover...
Education News
AIDS in the News
Profiles
Focus on Fund Raising
Volunteer Corner
Health Promotion Insert

—..................................

2
3
4
5
6

..—

�EDUCATION SERVICES

AIDS INFORMATION PHONELINE

The AIDS Committee of Thunder Bay
has a range of services available to the
community. Most of these are easily
accessed in Thunder Bay, but we do
offer services in the region on a costrecovery basis.

345-SAFE (7233)

STAFF TRAINING,
PRESENTATIONS AND
WORKSHOPS
We will tailor presentations and/or
workshops to meet the needs of your
organization. We offer agency work­
shops for staff, clients, or both. We
can also offer workshops for schools,
community groups, or others.

RESOURCE CENTRE
217 S. Al5&lt;miA St,
ACT-B maintains a well-stocked li­
brary of books, videos, posters, pam­
phlets, information files (including
treatment information), etc. We have
a number of magazines and newslet­
ters. Most material is available free to
the public on loan, or for reference in
the resource centre. Condoms and lu­
bricant are also available free.

Here is a partial list of the areas that
can be covered:
Y working with clients who
may be HTV positive
Y HTV/AIDS updates
Y living with HIV/AIDS
Y infection control procedures
Y sexual orientation issues and/or
homophobia
Y legal and ethical issues
Y healthy choices, including safer
sex

Available anytime for a recorded message. Calls
during office hours (9:30 - 5:00 pm. weekdays) are
answered by staff who provide information or coun­
selling on issues related to HIV and AIDS.

SOCIAL MARKETING CAMPAIGN
The campaign involves placing ads in regional news­
papers designed to combat stigma and work towards
promoting a supportive social environment. We have
completed the first two years of the three year pro­
ject. The first year
involved four ads,
the second year
four ads plus a
poster,
and
a
brochure address­
ing homophobia.
A disease breeding intolerance?
Each year of the
project has been
Having HIV breading in one's body is bad enough Why
should It also txeed intolerance?
evaluated through
People with HIV / AIDS deserve the same
acceptance and care as anyone else
a regional tele­
w«h a carious Me-threalening illness.
1 rad8 tearstor tacts for a tree
brochure call 1-807-345-1518
phone survey.
AUK Canter

M

o( Thunder Bay

AIDS AWARENESS WEEK
This is an annual event, that is part of the National
AIDS Awareness campaign. Each year has a differ­
ent focus. In 1996 the theme will be "SUBSTANCE
USE AND HIV". We urge communities, organiza­
tions, and individuals to become part of this annual
effort.

ADVOCACY
ACT-B is involved in a wide range of advocacy con­
cerns. These include, but are not limited to, direct
support issues. We attempt to keep abreast of emerg­
ing issues and act when appropriate. These have in­
cluded access to treatments and drugs, the cost of
treatments, sexual orientation concerns, language
and human rights issues. We often work in concert
with the Ontario AIDS Network and the Canadian
AIDS Society.

�AIDS m the news ♦
AIDS STAMP

Canada ’s first
AIDS stamp was
unveiled on
May 8, 1996

On May 8, 1996, AIDS Service orga­
nizations and Canada Post
joined to unveil Canada's
first
commemorative
AIDS stamp. Created by
Joe Average, the design
features a multi-coloured
stained glass window of
faces with a heart at it's
centre. It was commis­
sioned for the XI Interna­
tional Conference on
AIDS, which is being held
in Vancouver from July 7
to 12, 1996.
In Thunder Bay, our presentation was
held at Keskus Mall on Saturday, May
11. Philatilists were able to purchase
limited edition stamps that were em­
bossed with a "day of issue" and
ACT-B butterfly logo stamp. The
stamps are an attractive addition to
collections. Get yours at your local
Post Office.

Center, Treatment Center, Global Link, In­
formation for Patients, Patient Support
Groups, and a Glossary. Not all of the links
are fully developed, but there is some very
useful, readily available information here.
This "web" site has some valuable medical
information. I have been to the site and
downloaded several files. Some of the more
interesting articles include:
"Evaluation and Management of Early HIV
Infection: Clinical Practice Guidelines"
This article is about 200 pages (takes 10
minutes to download) and
contains in­
formation on Drug Regimens for Adults and
Adolescents, Drug Regimens for Children,
and Standards of Care and Prophylaxis for
opportunistic disease.

If you are looking for information about
HIV/AIDS treatments, call The Network.
This is a FREE service sponsored by Health
Canada. All information is current and your
call is confidential. Check it out!

WEB SITE
The AMA has introduced a new valu­
able resource for HIV/AIDS informa­
tion supported by a grant for Glaxo
Wellcome on the Internet. The ad­
dress for this new resource is
"http://www. ama-assn. org/special
/h iv/h ivh ome. htm
It provides information in 9 cate­
gories: Journal Scan (the most recent
significant
HIV
publications),
Newsline, Practice Guidelines, Ethics

setvke Wingue disponible

The

ALL CALLS CONFIDENTIAL

Tuesday — Thursday 10:00om to 10:00pm (Eastern im)
Friday 10:00om to 7:00pm (Eastern Time)
Comprehensive, up to date information about HIV/AIDS treatments

Network
1-800-263-1638

HIV/AIDS Treatment Information
MSE.

�Profiles
by Jo-Ann Jacomb, Volunteer Coordinator

Richard DeVuono
The first time I saw
Richard DeVuono, he was wear­
ing a bright crimson coloured
sports jacket with a perfectly
matching tie. I was impressed.
The second time I saw Richard
DeVuono, I heard him laugh; one
of those laughs that cuts through
a crowded room - the contagious
kind that makes you want to
laugh along. I was impressed.
Rick is an all round
good guy. He is a de­
voted and conscientious
volunteer who brings a
wealth of business
knowledge to the AIDS
Committee. I am still
impressed.
Rick's interests
are varied and numer­
ous. He enjoys movies
(especially
foreign
films, swimming, bike
riding, cross country
skiing, gardening and
candle making. He
claims to be a "naive
home improvement specialist."
"I'm putting a bathroom in the
basement and it's almost finished
after two years!"
Richard's real passion is
cooking. "I love watching cook­
ing shows, memorizing what they
are making and then adding my
own variations. I fmd cooking a
very creative activity." With this
special skill in mind, Rick is co­
ordinating the Cheese Cake BakeOff for Harbourfest this summer!
Rick is presently serving
his second year as a Director on

ACT-B's Board. He likes his
commitment with the AIDS Com­
mittee because "everyone makes
me feel welcome".
Rick has worked on many
notable projects at ACT-B, but
the one that he remembers fondly
is last years Walk. "I think bring­
ing in a thousand dollars for the
Walk was a highlight because I

actually achieved that goal.
I
also enjoyed participating in last
years AGM."
So if you hear a great laugh
across a crowded room, and
glance up to see someone dressed
in a splashy outfit, it's probably
Richard DeVuono. Thanks Rick!

Christa Alsch
There is a desk that sits in
the middle of the office (the hub of
all we do). A woman sits, poised
by the telephone, ready to field any
questions that come her way.

The pulse of the agency, Christa
Alsch is our secretary/receptionist.
Christa has worked at ACTB for three years. Coming from the
Kinnewaya Legal Clinic, her
strength and interest in computers
has proven to be an invaluable asset.
Christa told me that she enjoys her
work at the office, " I like the people
and the atmosphere. I like the fact
that anyone coming into the office
can feel comfortable."
Although Christa was
bom and raised in Thunder
Bay, her extended family live
in Germany. Five years ago,
she made her first trip to her
parents homeland and fell in
love with the country. She
spent four weeks visiting
relatives and discovering her
cultural heritage. She also
discovered the Autobahn and
since then, her driving has
never been the same!
When not at work,
Christa enjoys crocheting,
walking her dog Senta,
bicycling,
and
learning
new
computer programs. She spends
time with her partner Wayne
refinishing their older character
home.

�Focus on Fvmt&gt; Raisins
Preparing for a busy year!
by John Books, Fund Raising Co-ordinator
e fell a little short of our
fund raising goal for 1995
and finished the fiscal year with
$73,000 brought in to this agency.
It was a very valiant and coura­
geous effort made possible only
through the dedicated work of our
fund raising committee and a
great many volunteers who con­
tributed their time and energy.
These are difficult times for many
in Thunder Bay and Ontario.
Business
and
government
changes have created an atmo­
sphere of caution and anxiety. Re­
gardless of whether one thinks the
changes are good or bad, they
have put increased pressure on all
kinds of organizations. Many of
them need more support and fi-

Ourfund raising goalfor this
year is $80,000.
nancial assistance from the com­
munity and that has resulted in
intense competition for the fund
raising dollar. This affects the
AIDS Committee at a time when
there is an increased need for our
services. In the coming year, we
must maintain our level of service
to the community.
Our goal for the coming year is
$80,000. To help us achieve this
goal, we hope to add several more
bingos to our schedule and will
concentrate our efforts on the

Our new Nevada Ticket outlet is Mike's Milk at the corner of Red River Road
and Clarkson. Buy your tickets there to support ACT-BI.

national Walk in September.
Here are some of our upcoming
events:

Klondike Casino will be June
14, 15 and 16 at Casey's. If you
would like to volunteer, please
call Jo-Ann.
Harbourfest will run from July
19 through 21 in beautiful down­
town Thunder Bay North. The
AIDS Committee will sell pop­
corn during the three day festival
and also sponsor a cheese cake
bake-off. Enter your cheese cake
at our competition and you may
win some valuable prizes!

Yard Sale will be in mid August.
Stay tuned!
The Walk will take place on
September 29. If you are inter­
ested in serving on the Walk or
the
Fundraising
Committee
please call us.
A sincere thanks to the Thunder
Bay
Lottery
Corporation
(Thunder Bay WINS) for its
donation of $1010 to the Emer­
gency Financial Assistance Pro­
gram. Your financial assistance
helps us to provide emergency
aid to our clients. Your donation
is greatly appreciated!

�Lert&amp;mg

There's no shortage of
activities for the willing
volunteer to help with!

&amp;

FUnfr

Diverse opportunities for
volunteers

MY LIFE AS A
PLACEMENT STUDENT AT
ACT-B!

Volunteers are our life line! Their
commitment and dedication penm­
ates everything we do. To give you
an idea of the enormity of their in­
volvement with the AIDS Commit­
tee of Thunder Bay, last year over
200 volunteers logged almost 8000
hours of service! This impressive
show of support translates into en­
hanced quality service.

by Jennifer Peter, Social Work Student

Working at ACT-B over the
last few months has been quite the ex­
perience. I didn't know what to ex­
pect as I have had no previous experi­
ence in the HIV/AIDS field. What I
have learned will be invaluable to me
in the future.
During my 5 month place­
ment, I have worked in both the Edu­
cation and Support Services Depart­
I am often asked about the types of
ments. Serving a dual role has been
activities that volun­
a great learning op­
Last year, over 200
teers perform while
portunity.
Some
volunteers logged almost
at the AIDS Com­
of my duties included
mittee.
There
3000 hours of service!
the Social Marketing
seems to be a pre­
Campaign,
the
conceived notion that volunteers
Health Agenda Forum, staffing edu­
only help those who are HIV+ or
cational display booths, Art Auction,
who have AIDS. However, duties
support work and other duties as re­
are diverse, with client care being
quired (a phrase just about everyone
only a small portion of the requests
in the office knows by heart). I have
that I receive. What follows is an en­
also been visiting community agen­
capsulated description of the various
cies to tell them about ACT-B and the
volunteer opportunites available
services we provide. All in all, this
here.
has been fulfilling work.
As my placement draws to a
Clerical:
close, I would like to thank all the
Upon arriving at the office, visitors
staff for their mentorship, friendship
are greeted by reception volunteers.
and humor. You have made my
These people donate 1/2 day each
placement a truly enjoyable experi­
week to answer phones, perform
ence.
clerical duties and input information
into the computer. These volunteers
play an important role in the day to
day operation of the office.
Continued on next page....

�(Volunteer Opportunities continued...)

Education:
ACT-B has a wide array of books,
magazines and treatment articles in
our library. These materials are avail­
able for use by the general public.
Volunteers assist with cataloging,
shelving and organizing the library.
They may also assist with special ed­
ucation projects such as the organiza­
tion of AIDS Awareness week (first
week in October), and the Social
Marketing Survey.

Voionteers lend a
deiping dand in
many ways. We
gratefoiiy
appreciate yoor
donation of 2
doors of service
per wontd or 20
doors!

Fund Raising:
This continues to be an area where
volunteer committment is needed on
an ongoing basis. Our goal is to raise
$80,000 this year. The Fund Raising
Committee (comprised of volunteers)
designs innovative ways to raise
money.
Volunteers are always
needed to assist with the actual events
- which are numerous. They include:
a monthly bingo, casinos. The Walk,
bake sales, yard sales, raffles, Harbourfest, socials, Art AIDS (the art
auction) etc... etc... etc...
Committee Work:
Volunteers serve on all committees
attached to ACT-B. 12 people serve
on our Board of Directors and 8 com­
munity members sit on our Advisory
Board. A core group of volunteers
assists each of the Education, Fund
Raising and Support Services Com­
mittees. Their role is to offer the
guidance and direction that shapes
those departments. The Mothers'
Cupboard Food Bank Committee
meets monthly to generate new
sources of food for our clients food
bank. This group of volunteers

works diligently to access help from
our community.

Support Services:
If you are interested in working di­
rectly with people living with
HIV/AIDS, we may be able to match
you in our Buddy Program. Volun­
teer Buddies are matched with clients
on a one to one basis. They may be
able to help with practical skills such
as grocery shopping or meal prepara­
tion; or provide a social link into the
community. The client's individual
needs are met by volunteer buddies.
Training is provided.
Volunteers lend a helping hand in
many ways. There is no minimum or
maximum time committment re­
quired.
We gratefully appreciate
your donation of 2 hours of service
per month or 20 hours!
I hope this gives you an idea of all the
ways to get involved. If you’d like to
become a volunteer at ACT-B, feel
free to call me, Jo-Ann Jacomb at the
office (345-1516).

�Parting

Glance

The AIDS Committee of Thunder Bay acknowledges and
thanks our various funders:

&gt;
&gt;

Ontario Ministry of Health - AIDS Bureau
Health Promotion and Social
Development Office, Ontario
Region, Health Canada
&gt;
Thunder Bay WINS!
&gt;
All of the people involved in
general fund raising and the
support of many local businesses
and individuals.

The opinions and medical information
offered by “reACT-Believe” are those
of the individual authors and not
necessarily those of the staff and Board of Directors of the
AIDS Committee of Thunder Bay. Medical information
offered should be used at your own discretion. Please
consult your doctor.
Please address any comments or concerns to
reACT-Believe
P.O. Box 24025
Downtown North Postal Outlet
Thunder Bay ON P7A 8A9
(807)345-1516

0s*.

0***.

0s*.

0s*

0s*.

0s*.

ACT-B Abvisorvj Council
Director, Public Health
Laboratory
Mary Lee Berry
Ogden East End Health Centre
Richard DeVuono
Co-Chair
Gail Linklater
Co-Chair
Dr. Gordon Milne
Family Physician
Diana Smith
Public Health Nurse, Thunder
Bay District Health Unit
Nicky Tittley
Health and Safety Officer,
Thunder Bay Regional Hospital,
Port Arthur
Rev. Don Uhryniw
Current River United Church,
Council of Clergy
Pius White
Community Consultant
Fred Ball

ACT-B Boart&gt; of Directors
Rick Atkinson
Treasurer
Joyce Barnes
Director
James Budd
Director
Charlene Burford
Director
Richard DeVuono
Director
Maryanne Gabriel
Director
Mahlon Inksetter
Secretary
Carmen Klassen
Director
Gail Linklater
Vice President
Rob MacKay
Director
Noel Ward
Director
Darryl Williams
President

0s*

I want to become a member of the AIDS Committee of
Thunder Bay!
_____Enclosed is my $10.00 Membership fee.
_____I want to be a Supporting Member. I have
enclosed $25.00.
_____I would like to make a donation of $_____.

ACT-B Staff
Secretary
Education Coordinator
Support Services Coordinator
Fund Raising Coordinator
Volunteer Coordinator
Office Manager
Support Worker/Health
Promoter
Executive Director

Name:

Christa Alsch
David Belrose
Sheila Berry
John Books
Jo-Ann Jacomb
Lawrence Korhonen
Ian Ritchie

Address:

Michael Sobota

City, Province &amp; P.C:

rcACT-Bclicvc Contributors
Jo-Ann Jacomb
Editor
Richard Boon
Layout and Design
Ian Ritchie
Health Promotion Pages
ACT-B Staff and volunteers

Telephone:
X

X

X

X

X

X

XXX

�Promotion
Is Our Drinking Water Safe?
On March 28, 1996, the Globe and Mail reported
that there was an outbreak of Cryptosporidium in the
Collingwood, Ontario water supply. This is important for
people living with HIV/AIDS in Thunder Bay, because like
Collingwood, Thunder Bay lacks the necessary water
filters to stop Crypto from getting into our water supply. In
1993, 150 people in the Kitchener-Waterloo area were
infected, and towns in Alberta and Manitoba have also
reported outbreaks. The worst outbreak of crypto m North
America occurred in 1993 in Milwaukee Wisconsin;
400,000 people became ill and 100 people died. There has
also been reported outbreaks in San Francisco, Las Vegas
and Denver.
Symptoms
The symptoms for Crypto infection include; diarrhea,
intestinal cramps and vomiting. These symptoms usually
last several weeks. Although this parasite is normally not
fatal, it can be life threatening for people living with
HIV/AIDS, especially for those who are farther along in
their disease progression.

Treatment
Standard anti-diarrhea medications, intravenous fluids,
electrolyte management and oral rehydrating therapy with
appropriate fluids such as juice, broth or commercially
available products are usually recommended, but there is no
recognized, effective treatment for Crypto.

Prevention
In September 1995, the Center for Disease Control and
Prevention (CDC) issued prevention guidelines for HIV
positive individuals. These include:
S
Washing Hands frequently may be the best
prevention strategy.
S
Always wash hands before preparing food.
S
Wash hands with soap and water before eating
anything, after touching dirty diapers or after
touching clothing, bedding or surfaces soiled by
diarrhea.
S
Often overlooked as a source of Crypto, garden soil
may be contaminated by neighborhood pets or
farm animals in rural areas. Wear gloves while
gardening and wash hands when you are finished.
S
Practice safer sex. Crypto can be found on the
skin, in the genital area, including the thighs and
buttocks of a person infected with Crypto. Always
wash your hands after touching any animal. Farm
animals, particularly young ones, should be
considered a source of infection. Contact should be
followed by careful hand washing.

bvj Un Ritchie

S

Most house pets are safe. Young puppies or
kittens should be examined by a veterinarian for
infection. An HIV positive person should avoid
cleaning cat litter boxes or disposing of pet stools.
If help is not available, gloves should be worn and
hands washed after the gloves are removed.
S
Wash and/or cook all food. If safe water is a
concern, wash in water that is known to be Crypto
free.
S
Peeling fresh fruits and vegetables that will not be
cooked also reduces the risk of Crypto.
S
Unpasteurized drinks are not safe.
S
When travelling, especially in cities where
previous outbreaks have occurred, it is advisable to
drink only bottled water or boiled water.
S
Drinking water safety can be enhanced by boiling
water, filtering or drinking safe bottled water.
Boiling water for at least 1 minute will completely
kill Crypto.
Filtering water with an appropriate water treatment unit
can reduce the risk of infection. Not all water treatment
units are effective against Crypto; in fact, most are not.
The CDC guidelines of September 1995 recommend only 3
categories of filters:
1)
Microstraining filters that can remove particles
0.1-1 micron in size (make sure they are labeled
“absolute” not “nominal”).
2)
Units that work by reverse osmosis
3)
Units that meet the National Sanitation Foundation
International (NSF) Standard 53 for “cyst
reduction”.
Listen for local “boil water” advisories from the Thunder
Bay District Health Unit. They are required to issue a
warning if Crypto is detected in the water supply.
If you are camping or drinking lake water, a local Thunder
Bay store “Gear Up For Outdoors” has a product called
“Sweet Water” that will filter out Crypto. If you need
further information about Crypto or any other opportunistic
infections, please call Ian at 345-1516.
Source: Bulletin of Experimental Treatments for AIDS March 1996

�Good Food On A Low Budget
i
It's hard to make a small income stretch to afford all the food you need. Here are some
shopping and cooking ideas which can help you save money.
©

Plan what you will eat and make a list of what you need to buy. Buy the treats
only if you have extra money.

©

Read the flyers and plan some of your meals based on what foods are on sale.

©

Corner, Convenience stores are usually much more expensive than larger stores.

©

In larger stores, look for what is cheap. Often the most expensive items are placed at
“eye level” so you will pick them first. No-name and store brands are usually cheaper
than name brands.

©

Shop around the edges of the store first - this is where you will find the basics; milk,
meat, fruit, vegetables and bread.

©

Check the day old table. Use coupons - but only for items already on your shopping list.

©

Buy bulk items - you can buy the amount you need and bulk is often less expensive.

©

Avoid “convenience” foods such as packaged pizzas, canned spaghetti and frozen
chicken pies. They cost a lot! Many packaged foods can be made easily and cheaply
at home.

©

When buying cereals, plain cereal is the best buy, pre sweetened cereals cost more.
Cereals you cook (like oatmeal) are really cheap.

©

When buying milk products, buy skim, 1% or 2% in bags. It’s much cheaper than the
cardboard boxes.

©

Vegetables and fruits that cost less are apples, oranges, bananas, carrots, potatoes,
cabbage and turnip. In winter, frozen vegetables are a good buy.

©

Meat alternatives like eggs, beans, lentils and peas are the very best buys. Use beans
and lentils in soups and stews.

Coneider other options to save money on food:
Community Kitchens - Four to six people get together once or twice a month to cook large quantities
of food. Each person takes home several meals to feed their family. A great way to stretch you food
dollar.
Food buying Clubs - A group of people meet to shop for large, bulk amounts of food and
then divide the food and cost up. This really saves money!
Good Food Boxes - A box containing good nutritious food that is paid for at the beginning
of the month and delivered at the end of the month when food and money are running low.
The cost of the box is usually very cheap for the amount of food you get.
Coming to Thunder Bay Soon!
reproduced with permission from the Ogden East End Community Health Centre

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                    <text>rcACT-Believe
The AIDS Committee of Thunder Bay
Fall, 1996
Volume 9, Issue 3
NAtion^l AIDS Awareness Week!
September 30 - October 6, 1996
TBeme:

Substance Vse amS H1V/A1DS

The AIDS Committee of Thunder ♦ thinks that steroids are
Bay will participate in National
different from other drugs and
AIDS Awareness week activities
uses dirty needles...
and events from September 30 - ♦ is unaware of the risks of
October 6, 1996. The goal of this
substance use and unprotected
campaign is to raise awareness
sex...
♦
is afraid to seek help for drug
about the relationship between
substance use - which includes
addiction due to the stigma
alcohol and other drugs - and
attached to it...
HIV/AIDS.
HIV/AIDS has
generated a whole new set of
GETT/NG HtGH?
challenges when it comes to the
GBT7/NG HOT?
issue of substance use. The direct
harms associated with drug
injection in particular and the
indirect harms associated with
substance use overall have greatly
increased since the appearance of
j;":‘
S|pg&amp;S
Jr y
HIV.

'D

AIDS Committee of
Thvmber Boaj
Membership
Renewal Notice!
Our Annual General meeting will
be held in November. In order to
be an eligible voting member, you
must have a valid membership 30
days prior to the meeting. Please
help to make us strong. Renew
your membership today!
Memberships only cost Si0.00.
Use the handy form on the last
page of the Newsletter to renew.

fbONT TAKE CHANCER
WITH HIV/AIDS.

If you are, or know someone
A/woys use a fonrfoimi
who...
Each time. Every
♦ drank too much alcohol or
National AIDS
smoked too much pot at a
Awareness Week
party one night and then
September 30 to October 6
r mor» intefmahon coll:
engaged in unprotected sex...
♦ has not talked to their kids
about the risks of substance ♦ has a partner who uses
use, unprotected sex and
injection drugs and refuses to
HIV/AIDS..
use a condom during sex...
♦ does not have access to bleach
or new needles...
...then HIV/AIDS could affect
♦ uses dirty needles to inject you. (continued on page 4...)
alcohol so that it won't be
detected on the breath...

Under our Cover...
AIDS Awareness Week
Schedule of Events
“Opening More Doors”
Substance Use &amp; HIV
The AIDS Walk
Potpourri
Parting Glance
Insert

2
3
4
6
7
8

�AIDS Awareness Week
Schedule of Events
{as of August 30, 1996)

AIDS Walk
Lakehead University Outpost
Registration: 12:00 Noon
Opening Ceremony and 5 km. Walk: 1:00 p.m.
Entertainment and food to follow
Tree Planting Ceremony
Marina Park: 11:30 a.m.
Information Display
Lakehead University Agora
9:00 a.m. to 5:00 p.m.
Workshop “Substance Use and HIV”
Lakehead University Residence,
Conference Room A - 7:00 to 3:00 p.m.
Open to the General Public
Workshop at the Smith Clinic (details T3A)
Shaw Cable Television - Channel 7
Live Call-In Show 9:00 p.m.
Condom Slitz - Sharkey’s Pub
Confederation College - Evening
“Opening More Doors” Regional Counselling
Conference, Prince Arthur Hotel, begins at noon
Candlelight Vigil 7:00 p.m. Prince Arthur Hotel
Condom Slitz - Lakehead University Outpost
Evening
“Opening More Doors” Regional Counselling
Conference
Community Dance for Lesbians, Gays,
Sisexuals and friends, St. John
Ambulance
513 Fort William Road - 9:00 p.m.
Information Displays will be up at Confederation College and Intercity Shopping Centre during the
week. Call the office (345-1516) for details.

2-

-

�“Opening More Doors”
MW Ontario Regional HIV/AIDS Connselling Conference
During AIDS Awareness Week, The
AIDS Committee of Thunder Bay will
host its fifth annual regional counselling
conference, “Opening More Doors”.
Registrants from across Northwestern
Ontario will have the opportunity to
network with colleagues and learn more
about working with individuals and
families affected by HIV/AIDS.
The conference will be held on October 3
and 4, 1996 at the Prince Arthur Hotel.
Funding has been provided by the
Ontario AIDS Bureau, Ministry of
Health.
In the past four years, the counselling
conference has been a popular and
successful venture.
The participants
have been impressed with the quality of
the presentations
as well as the
knowledge of the facilitators.
The
networking has proven a valuable tool in
our regional work.

A wide variety of topics will be
addressed during this conference. They
include:
♦ Barriers facing individuals in
Northwestern Ontario:/
Issues
relating to smaller centers, rural life,
confidentiality, anonymity, etc.
♦ Issues relating to dying, death and
the grieving process.
♦ Counselling family members of
someone with HIV/AIDS
♦ Issues relating to youth: peer
pressure, sexuality and STD's.
♦ Issues regarding wills and funeral
arrangements.
♦ Drugs, alcohol and other chemical
dependencies as they relate to HIV.
♦ Counselling native populations.
If you would like more information
about the conference please call Karen
Ferland at 345-1516 or 768-0699 from
9:30 a.m. to 5:00 p.m.

It’s Mot Too L^te!
The Federal Government’s National AIDS Strategy ends in March 1998. This
strategy spells out the role and responsibility of the Federal government in
responding to HIV and AIDS in Canada, including the delivery of funds to
community based AIDS organizations. Please write to your Member of Parliament,
calling for a renewal of the National Strategy in support of national research funding
and local community activities.

Stan Dromisky, M.P.
(Thunder Bay-Atikokan)
1500 S. James Street
Thunder Bay ON P7E 6N7
Fax: 577-1905
3

Joe Comuzzi, M.P.
(Thunder Bay-Nipigon)
180 Park Avenue, Suite 210
Thunder Bay ON P7B 6J4
Fax: 345-4752

�Get To Kvtow More About Drugs,
THE LINKS

(continuedfrom front cover....)

The three main links between substance use and
HIV/AIDS involve:
♦ needle sharing,
♦ impaired judgment or heightened sex drive due to
drug use; and
♦ cultural expectations people have around sex and
drugs, especially alcohol.

All communities are affected by substance use - but
in different ways. Needle and syringe sharing among
people who inject drugs is a major factor in the
spread of HIV. According to the World Health
Organization, people who use dirty needles to inject
drugs are the second largest, and in some places, the
fastest growing group of AIDS cases in developed
countries.

Injection Drw5 Vsc *y\X&gt; H1V/A1DS

Although alcohol consumption and non-injection
drug use do not directly affect the spread of HIV,
there are many indirect impacts associated with their
use. Being under the influence of a substance may
lower inhibitions or impair perceptions of danger,
making unprotected sex seem less risky.
Needle and syringe sharing among people who use
injection drugs is a major vehicle for the spread of
HIV. Sharing needles allows HIV to pass directly
from the bloodstream of one person to the
bloodstream of someone else. When an individual
injects drugs, some blood gets pulled back in the
needle and syringe. The blood left in the needle and
syringe is shot into the bloodstream of the next
person who uses it. If the equipment is not sterilized
with bleach before it is shared and one of the
individuals is already infected with HIV, the virus is
very likely to be passed on.

The above risk factors may seem obvious. Not so
obvious, however, are the underlying reasons why
people turn to drugs and alcohol in the first place.
This campaign explores how self-esteem and
depression can lead to both excessive substance use
and unprotected sex. As well, the campaign tries to
break down some of the stigmas that surround both
substance use and HIV/AIDS. Failure to respect the
rights and dignity of people who use drugs may
promote the hidden use of drugs and impair our
efforts to stop the spread of HIV/AIDS.

When the virus is present among drug injectors, and
when unsterilized injection equipment is shared, the
spread of HIV infection can be very rapid indeed. In
Milan, Edinburgh, and New York, the prevalence of
HIV infection (the percentage of people with HIV)
among drug injectors grew rapidly, with 50 percent
or more infected within a few years of the first
appearance of the virus in these populations.

IN THUNDER BAY CALL

The
Exchange
•
•
•
•
•

Needles/Syringe Exchange
HIV/AIDS Education
Counselling &amp; Referral
Condoms
Bleach Kits

Phone: 625-9767

(Source: Addiction Research Foundation and the
World Health Organization's Global Programme on
AIDS.)

Pager: 626-7308 (Janet)
626-7507 (Don)

4-

-

�ThefdeK a*d *Duidtcct
f&amp;DS

jla*Uf-dac (Z&amp;MHiUKttty
r%w43£ &amp;eHfae

‘Tteua

ttecentUf in
t&amp;e 'Hecva. . .

Many groups and individualsfrom around Northwestern
Ontario are invoked in AIDS work Ifyou would like to
promoteyvi rorganization or activities, subrrntyour articles
to reACT-Believe for inclusion in our next newsletter. The
nextpublication is scheduled to be in your mailbox at the
begintwigofDecetriber.

ONTARIO

The “Opening More
Doors ” Counselling
Conference is a regional
initiative. Have you
registered yet?

*Dupie*i yt'FDS
&amp;Muticttee 'Hfi attct
fS.cc*uu*ufr!

We would like to ex­
tend an invitation to all of
our neighbours in North­
by Kevin Crigger
western Ontario to join us
Chairman, Dryden &amp;
in this event.
District AIDS Committee
If you would like more
details regarding the walk,
Dryden Ontario is now or about our services,
offering support services please leave a message at 1
for persons affected by - 807-221 - AIDS (2437).
HIV/AIDS!
All messages are confiden­
The Dryden and Dis­ tial.
trict AIDS Committee has
been operating officially
jd&amp;tytac
for about a year . The di­
rectors have volunteered
countless hours from their
own busy schedules to or­
My name is Louise
ganize functions which Marcil. I am a volunteer
promote AIDS awareness with the AIDS Committee
and education in Dryden of Thunder Bay and have
and in the surrounding been for four years.
communities.
Presently, I live in Longlac
On September 29, and work at the Longlac
1996, we will be hosting Community Health Centre
our second annual AIDS in Health Promotion.
Walk: A Walk For Life.

My role is to facilitate
presentations for any size
of group and to access
material and resources
regarding
HIV/AIDS
related issues. I also offer
short term counselling and
ongoing
support
to
individuals and/or family
members who are affected
by HIV/AIDS. As part of
the health care team at the
Health Centre, I am able to
provide referrals to our
primary care physicians for
medical support.
NOTE:
Primary care
services are limited to
clients
within
our
catchment area: Longlac,
Caramat,
Long
Lake
Reserve
#58
and
Ginoogaming
First
Nations. All other services
are available to anyone
who comes in or calls the
health centre. I am also
available to travel to
Geraldton.
If you are in the area and
require
information,
support or a liaison to
ACT-B, please call me at
(807)876-4887 .

�^ecenttcf, i*t t&amp;e 'TIcom,.

.

.

Taken from Thunder Bay’s Chronicle Journal, Monday August 24, 1996

AIDS grows among natives
Numbers approach epidemic proportions across Canada
by Warren Goulding
The Canadian Press

Canada's aboriginal people are waging a losing
battle against AIDS and health professionals say the
situation is approaching epidemic proportions.
Official statistics show the aboriginal rate of
infection far exceeds that of mainstream society.
But natives who work with AIDS victims say even
those numbers are low.
Between five and seven per cent of Alberta's
140,000 aboriginals, including Metis, may be
infected, said Jo-Anne Daniels of Edmonton's
Feather of Hope Aboriginal AIDS Preventions
Society.
Some reserves and tribal groups in British
Columbia have rates of infection approaching 10
per cent - 100 times the rate in the overall Canadian
population, said Rod George of Healing Our Spirit,
a B.C. group working with infected natives.
Health Canada estimates that one in 1,000
Canadians is infected with IIIV, the virus that can
lead to AIDS.
"In one study, we found that one of the tribal
groups with about 7,000 members had a 10-per­
cent infection rate," George said.
"That's 700
people in one tribal group."
Eighteen AIDS-related deaths have been
reported in the group so far in 1996.
George said the infection is most widespread
among B.C. natives. The problem is particularly
acute in Vancouver's downtown east side where
three people are diagnosed with the virus each
week.
"I think the younger generation seems to feel
invincible to it," he said. "They seem to have the
idea that only gay people or needle users are going
to get it."

Denial is a major problem among many aboriginals.
George's study revealed half of native women refuse to
be tested for HIV or won't reveal test results.
An estimated 600 native women in B.C. are HIV
positive, said George. "Many of them don't say
anything for fear of abuse, violence or being ostracized
or shunned - things that native communities do."
AIDS activists in other provinces are discovering
similar trends and patterns of denial and
discrimination.
"It's a disease that's killing our children," said
Daniels in Edmonton. "It's claiming our future and our
past at the same time. We're in a lot of trouble."
As of January, Health Canada statistics show 176
reported AIDS cases among aboriginal people, or 1.4
per cent of the total number of cases.
Health Canada researchers blame unprotected sex
and injection drug use as the leading causes of the high
infection rate among natives.

AIDS is a global epidemic. We ARE
affected in Northwestern Ontario.

�Alcohol, Sex A&gt;it&gt; H1V/A1DS
People who use injection drugs and share unclean
needles are at great risk of being infected with HIV.

Some F^cts To Consibcr
♦

As of April 1996, 1047 AIDS cases in Canada
could be attributed to injection drug use. Of these,
484 cases (354 men and 130 women) could be
directly attributed to injecting drugs, and 563 cases
involved men who have sex with men and who also
use injection drugs.

♦

Of the total adults in Canada with AIDS, 3.6%
have identified their only risk factor as injection
drug use. Another 4.2% of those people with AIDS
identify two possible risk factors - injection drug
use and being a man who has sex with men.
Therefore, the proportion of AIDS cases in which
injection drug use is a factor is 7.8% - almost
double what it was before 1987 when it was 4%.
Because the epidemic among injection drug users in
Canada is in its early stages, we can expect the
proportion of injection drug user cases among all
AIDS cases in Canada to increase over the coming
years.

♦

♦

The incidence of HIV among injection drug users in
Montreal is estimated to be five new infections per
100 users per year, which is one ofthe highest rates
in North America.

Alcohol, Other Dru^s *r\Z&gt; H1V/A1DS
The role that alcohol use may be playing in the spread
of HIV infection has received relatively little attention
in Canada. We know that alcohol and sexual risk
often coincide - in terms of venues, opportunities for
sexual encounters and in terms of individual
behaviour. Studies in various populations have found
correlations between alcohol use and sexual risk.
Interestingly though, many researchers now think that
our cultural expectations around alcohol and sex are
more important than the physical effects of the
substance.
Generating dialogue on this issue is extremely
important. People need to explore their own thinking
about alcohol and sex and to what extent we are all
influenced by social attitudes.
Some studies say that there is a correlation between
substance use and the practice of unsafe sex. Others
contend that there are other contributing factors such
as poverty, racism, lack of education, misogyny,
internalized homophobia, etc.

Other 1 mks
♦

♦

Research has indicated that alcohol, as well as
street drugs, damage the immune system, leaving
the user open to infection and disease.
The cause of AIDS is a type of virus (called a
retrovirus) which changes the structure of the cells
it attacks. It may require the presence of an
already damaged immune system before it can
cause disease.

Since 1994 in Vancouver, there has been a steady
increase from 2% to 6% in the proportion of
injection drug users who test positive for HIV (Source: "Alcohol drugs and AIDS: what's the
(among those who go for HIV testing).
connection?", San Francisco AIDS Foundation.)

(Sources: Health Canada’s Laboratory Centre for
Disease Control: Second National Workshop on HIV,
Alcohol, and Other Drug Use Proceedings, 1994:
Horizons 1994: Alcohol and Other Drug Use in
Canada, Health Canada and the Canadian Centre on
Substance Abuse)

-

5-

�Imagine
if something you do every day could help fight AIDS.

Like \VAlk1vt5 for instance!
Sunday, September 29th, starting from the Outpost at Lakehead
University, the people of Thunder Bay will walk a 5 kilometer course
and return to the Outpost for refreshments and entertainment.

As never before we neeS \\our kelp.
Though there is some hope in the treatment of AIDS, that will not
stop it from spreading. The trend in Thunder Bay parallels national
patterns with people becoming infected at a median age of 23. This
means that many are becoming infected three to five years before
that. We cannot become complacent now. So join us on Sunday
September 29th.
Before you Walk, collect as many pledges as you can. Think of a
friend you would like to walk with and ask if they would also collect
pledges. Call the office and let us register you as an official pledge
collector for the AIDS Walk.
On the same day over 60 communities across Canada will also be
walking. Last year over $2,500,000 was raised to help the fight
against AIDS in 40 communities.

All mouctj r*isct&gt; in Thur\S&gt;cr

will stevj here!

First prize for most pledges collected is a trip for two to Toronto and
accommodations at the Toronto Colony Hotel. Other prizes include
massage gift certificates by Jeannie Tuomi and Kathryn Loftus and
one nights accommodation at the Nor’Wester Hotel.
Locally, the Walk is sponsored by 94 FM, the Argus, Canadian
Airlines, Domino's Pizza, The Finnish Bookstore, Janzen's
Pharmacy, Lakehead Travel Agency, Kathryn Loftus RMT, MDS
Laboratories, McEachern Marketing, Mediacom, Molson, North
Algoma Confectionery (442 N. Algoma St.), Nor'Wester Resort
Hotel, The Outpost Pub, Rainbow Printers, Toronto Colony Hotel
and Jeannie Tuomi RMT.
AIDS WALK CANADA
A PLEDGE IS THE FIRST STEP

Call the AIDS Committee office for more information - 345-1516.
6-

-

�'PotfauwU

uy-

&amp;Aeeaecal&amp;e (fAatlenye &lt;t
Succeaa!

fuat to hold cfou and Aiac you liAe *Tve
dane aa "tatty tune* aya.
*7o ^eel laved and needed.
*) Attacv that aameday tAeae ^eelittya- cvill Ae
ntctte attee ayain.
fuat to- have aaid yoad-Aye to cfou.
AiAe you- cvanted to and *1 needed to da ao

Thank you to all the businesses
and individuals who entered our
first annual Cheesecake Bake-Off.
The 31 entries were delicious!
Special thanks go to Anne Ciemny
and Christa Alsch for their
invaluable organizational skills.
Thanks also to Stokes, Zellers &amp;
Coles’s Book Store for their
generous donation of prizes. We
gratefully acknowledge our judges
- Brenda Jakubowski, Floranne
Faulkner and Andy Weiler.

Aodly.
*) lave- (face veny much and *) altvaya tvcll.
'poneven- you tvcil 6e in my tAouyAta.

We gratefully acknowledge a grant from the Norman M.
Paterson Charitable Foundation toward the purchase oj
a new agency vehicle.

‘Day, eveny tvaAiny moment.
“When *} loaA (mound and (AinA yaune

*Z/tp (f-ominy Sventa-

tAene.
*) (veil pictune you amiliny. coitA anrna- open
cvede.
&gt;HiyAtf 'When *7 tunn in my 6ed and fcttd
only emptineaa-.
*7

vmII

cvicA (fou tAene cvitA me.

7o hold you once ayain and cvAiapen in
youn can.
07lty dean- acveet man,
*)'H aee cfou on the otAen aide.

9&lt;U

On October 26, 1996, the trio
3hoadtwap t&amp;uued/ will be
hosting a benefit concert for
the AIDS Committee of
Thunder Bay and the
Thunder Bay Symphony
Orchestra. Featured music
will include show tunes from
“Les Miserables”, “Crazy for
You”,
“Miss
Saigon”,
“Showboat” and dozens
more. The concert will take
place at St. Paul’s United
Church, 349 Waverley Street
at 8:00 p.m. Tickets: $10.00

ACT-B
and
Definitely
Superior present an evening
with performance artist David
McLean.
'Ttavelofae is
a Solo
performance which explores
issues of gay identity, male
intimacy, spiritual searching,
desire and loss in the midst of
the AIDS era.
The
performance will be held
November 29, 1996, 8:00
p.m. at a location TBA.
Tickets are $5 for students,
ACT-B &amp; Definitely Superior
members.
$10
general
admission.

Tickets for both events will be available at the ACT-B office
217 South A Igoma Street. Information ? 345-1516

�PArtin5 GIaucc
The AIDS Committee of Thunder Bay acknowledges and
thanks our various funders:
&gt;
&gt;

Ontario Ministry of Health - AIDS Bureau
Health Promotion and Programs Branch, Ontario
Region, Health Canada
&gt;
Thunder Bay WINS!
&gt;
All of the people involved in
general fund raising and the
support of many local businesses
and individuals.

The opinions and medical information
offered by “reACT-Bclicve” are those
of the individual authors and not
necessarily those of the staff and Board of
Directors of the AIDS Committee of Thunder Bay.
Medical information offered should be used at your own
discretion. Please consult your doctor.
Please address any comments or concerns to
rcACT-Believe
P.O. Box 24025
Downtown North Postal Outlet
Thunder Bay ON P7A 8A9
(807)345-1516

a***
a*'*.
I want to become a member of the AIDS Committee of
Thunder Bay!
_____Enclosed is my $10.00 Membership fee.
_____I want to be a Supporting Member. I have
enclosed $25.00.
_____I would like to make a donation of $_____.

Name:
Address:
City, Province &amp; P.C:
Telephone:
&lt;9*^

&lt;9^

&lt;9^&gt;

&lt;9^

&lt;9^»

&lt;9^

ACT-B Abvisotnf Council
Director, Regional Public Health
Laboratory
Mary Lee Berry
Ogden East End Health Centre
Richard DeVuono
Co-Chair
Gail Linklater
Co-Chair
Dr. Gordon Milne
Family Physician
Diana Smith
Public Health Nurse, Thunder
Bay District Health Unit
Nicky Tittley
Safety Coordinator,
Thunder Bay Regional Hospital,
Port Arthur
Rev. Don Uhryniw
Current River United Church,
Council of Clergy
Pius White
Community Consultant
Fred Ball

ACT-B Boarfc of Directors
Rick Atkinson
Treasurer
Joyce Barnes
Director
James Budd
Director
Charlene Burford
Director
Richard DeVuono
Director
Maryanne Gabriel
Director
Mahlon Inksetter
Secretary
Carmen Klassen
Director
Gail Linklater
Vice President
Rob MacKay
Director
Noel Ward
Director
Darryl Williams
President
ACT-D StAff
Secretary
Education Coordinator
Support Services Coordinator
Fund Raising Coordinator
Regional Counselling
Conference Coordinator
Jo-Ann Jacomb
Volunteer Coordinator
Lawrence Korhonen
Office Manager
Ian Ritchie
Support Worker/Health
Promoter
Michael Sobota
Executive Director
Carri-Anne Whidden AIDS Awareness Week
Coordinator
Christa Alsch
David Belrose
Sheila Berry
John Books
Karen Ferland

rcACT-Believe Contributors
Jo-Ann Jacomb
Editor
ACT-B staff and volunteers
Typing by Anne Ciemny and Jason

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                    <text>reACT-Belicve
The AIDS Committee of Thunder Bay
Winter, 1996
Volume 9, Issue 4

Substance Vse Outreach Project
hits Thvmber Bavj streets
Over the next seventeen months, a Substance Use
Outreach Project (SUOP) will be present on the
streets of Thunder Bay. This project is designed to
promote HIV prevention in the local substance using
community over a limited time period.
This
population is difficult to reach and is increasingly at
risk of HIV infection. The project will evaluate the
effectiveness of a three-part innovative approach.
1) A Peer Ambassador Program will recruit and train five
members ofthe target population to do peer outreach by
sharing information, providing condoms and offering
alternatives and/or referrals to health services.
2) A Bar Outreach Program will offer several “Bar Nights ”
in local pubs, promoting HIV/AIDS awareness and
prevention.
3) An Advertising Campaign will be created to provide
prevention information through creative transit ads,
electronic displays, posters, information cards and
matches.

Program Coordinator, Janet Adams, says “this
program incorporates some exciting and innovative
approaches to disseminating HIV prevention
strategies
and
education
to
marginalized
populations.”
This project is coordinated by the AIDS Committee of
Thunder Bay and will run until March 31, 1998.
Funding for the project comes from the last of the
federal government’s National AIDS Strategy. This
funding ends in March 1998, although HIV/AIDS
continues to spread locally — especially in the
substance using community.
For more information about the SUOP call Janet at
345-1516.

Vr»t&gt;er the cover.....
SUOP hits the streets
Agency Activities
Youth Outreach.
Special Friends
Healing Our Nations
Reflections
Parting Glance

1
2
3
4&amp;5
6
7
8

Health Promotion Insert: Hepatitis

�A

5

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M

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Fvoit&gt;r^i5m5
News

Annu&amp;] General
Meetm5

by John Books

by Jo-Ann Jacomb

It has been an extraordinary year — one
of many challenges.

ACT-B has completed 11 years of work
and on November 19 hosted it’s 10th
Annual General Meeting.

I want to thank everyone who has lent
their support to us in the past year. I hope
you have enjoyed the events organized by
the AIDS Committee.
Recently, 355 people attended the annual
AIDS Walk at Lakehead University.
More than $10,500 was raised to support
the work of ACT-B.
It was very
gratifying to see so many people join in
the walk on September 29th. Thank you
to The Outpost for their assistance in
making the event so successful. Thank
you also to everyone who collected
pledges.
We are planning another Healthy Sex
Cabaret in March. Join us for a little fun
after the long difficult winter!
And Art AIDS, our annual art auction will
be held in April. If you are an artist or
crafts person, we would appreciate your
contribution to this event. The auction is
one of the best of its kind in the city and
helps to bring in more than $6,000 in
revenue for ACT-B. This year we hope
to add items donated from various

t
i
c ft
s

Outstanding volunteers were recognized
for their work on behalf of ACT-B. Karen
Ferland was credited for her unfailing
contribution over the years and for
coordinating the past five “Opening More
Doors” regional conferences.
Gail
Linklater was given a plaque of
appreciation for her six years of service on
the board of directors. Thanks were also
expressed to retiring board members
Richard DeVuono and Mahlon Inksetter.
The membership elected the 1996-97
board of directors. They are listed on the
last page of this newsletter.
The Guest Speaker at the AGM was Mark
Bulbrook, Executive Director of the
Ontario AIDS Network. He spoke about
the Krever Inquiry, AIDS in the
hemophiliac community, and AIDS in the
third world.

It
ft

2

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-

�Vouth Outreach —
Northern Prifce
by David Belrose, Education Coordinator
Working with Northern Pride youth
group and doing HIV education has
shown first hand the challenges
posed
by
homophobia
and
heterosexism.

Growing up lesbian, gay or
bisexual in Northwestern Ontario is
still a major challenge. Negative
attitudes by family members, peers,
teachers at school, and religious
groups
help to foster an
atmosphere of great difficulty for
many of these teens.
Since February 1995 a support and
education group — now called
Northern Pride — for lesbian, gay
and bisexual youth has been
running in Thunder Bay. The
group was created to assist lesbian,
gay and bisexual youth to develop
the knowledge and attitudes that
will allow them to gain control over
and enhance their well-being.
It also provides an educational
component that includes issues of
healthy decision making, self­
esteem, negotiation skills, safer
sex, self-image, dealing with
stigma,
homophobia
and
community development. As well,
it offers a safe and confidential
setting for lesbian, gay and
bisexual youth to meet, discuss
issues of common interest, explore
feelings and share concerns.

Parents, teachers and counsellors
need to recognize the problem and
begin to work to make schools safe
for everyone including lesbian, gay
and bisexual youth.
1 -800-268-YOUTH
Studies have found that
oppression and homophobia
contribute to higher rates of
suicide, alcoholism and drug use
among lesbian, gay and bisexual
youth.
The atmosphere of
homophobia and heterosexism in
high schools, families and
elsewhere, combined with a lack of
social support, can make it very
difficult for lesbian, gay and
bisexual youth to develop the
sense of self-esteem that will
assist in making healthy choices
around sexual and substance
using behaviours.

Participation in the group is open to
youth, up to age 25, who are
lesbian, gay, bisexual, or who wish
to explore issues of their sexual
orientation. The group adheres to
the principles of: confidentiality,
non-judgmental,
respectful of
diversity, respectful of the right to
self-determination in terms of
identity.

As co-facilitators of Northern Pride,
Barbara Spencer and David Belrose
are prepared to work with any
individual or group to help create a
safer
and
more
supportive
environment for lesbian, gay and
bisexual youth.
Call 807-345-1516 or 807-6226121 for more information.

A support and education group
for gay, lesbian, bisexual youth.
Call 345-1516 for details.

3

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�Special friends....
Darkle Dollar
by Jo-Ann Jacomb
Colourful? Effervescent? Unique
and unusual? How shall I begin to
explain
ACT-B’s
support
worker/health promoter?
Standing only 4-feet 10-inches tall,
Daryle is indeed a spit fire. Her life
history and personal experiences
make any Sunday night “Made for
TV” movie a dull affair. Daryle has
lived life to the limit and is not
afraid to talk about it.
Adopted by the Cano family at
birth, she has since met her
biological family. (This story in
itself is good enough for the
National Enquirer!)
Running away from home in her
teens, Daryle became a heroin
addict and consequently contracted
Hepatitis C. 8 1/2 years of her life
have been spent incarcerated in the
Kingston Penitentiary. She will be
on parole for the rest of her life.
Sound like a depressing story? Not
so. Out of life’s greatest tragedies,
Daryle has managed to find positive
lessons and strength.

background
credibility.

that

gives

her

Daryle is deeply sensitive to the
needs of clients because, in many
cases, she “has been there.”
She serves on the Board of
Directors of the John Howard
Society and is frequently asked to
speak to groups about her
experiences.
Daryle recently became a nonsmoker. She quit because “it was
making the dog sick.” Her latest
addiction is to bingo which she
plays (and wins at) regularly.
Her dream is to live in a log cabin
somewhere in the wilderness of
Northwestern Ontario. She gains
her strength from the Native
Culture and is a Jingle Dress
Dancer.
Daryle adds life and character to
ACT-B. She brings a uniquely
different perspective to this work
and we all learn from her
experience.

She has been recovered from the
heroin addiction for 18 years.
While in prison, Daryle gained a
Social Work degree and now uses
her experience to help others.

DArms
hope...
A view from tVn's
sibe
by Rob MacKay
I spoke at ACT-B’s regional
Opening More Doors Conference
in early October. What follows are
excerpts
from
that
speech
interjected with some of my
questions, thoughts and concerns
about the changing face of AIDS
care.
“My new glasses, my grey hairs
and Hope.
This person with HIV never
thought about aging. When I got
my new glasses I asked my
optometrist with some concern,
‘Why do I need glasses? What is
wrong with my eyes?’
He replied quite simply, ‘Nothing.
You are getting old.’
You see, I had no hope or
expectation of aging. The thought
had not entered my mind. I was
aging — my eyes are failing..../like
that! I now wear my new glasses as
a badge of honour — a rite of
passage.
Whenever I get my hair cut,
inevitably, someone will notice my
newly revealed grey hairs. My
mother will say,‘R - O - B!!! Look
at all those grey hairs!’ My wife
will say, ‘Are you ever getting old! ’

She speaks the language of the
streets, yet has the theoretical

continued on page 5....

4

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�Health Promotion
HEPATITIS C
by Daryle Dollan, Support Worker/Health Promoter
With the changing face of AIDS in our community, we are seeing more and more men and
women becoming infected through sharing needles while using intravenous drugs. In many of
these cases, it is common to find HIV in conjunction with Hepatitis B (HBV) and/or Hepatitis C
(HCV).
Those of you who know me, are aware that I have a personal interest in this area. As a former
intravenous drug user myself, I contracted Hepatitis B in the early 1970's, and apparently I also
contracted Hepatitis C around the same time period (it was known as non-A, non-B hepatitis
back then). So I have a vested interest in the treatment options (or lack of them) for Hepatitis C.
First of all, HCV is a virus that infects the liver and causes hepatitis, or inflammation of the liver.
This leads to varying degrees of liver damage, including an increased risk of cancer of the liver.
It is estimated that 2% of the world's population is infected with Hepatitis C. The infection rate
in specific groups is much higher. For example:
- Among intravenous drug users, the infection rate is 16%
- Within the population ofpeople with hemophilia, the rate of infection is 70%
- Among those who have received blood transfusions, the rate is 31 cases per 1000
transfusions prior to 1985, and 12 per 1000 in 1990.
The most common method of transmission is through sharing unclean needles. Hepatitis C can
be spread through unprotected sex, although this is a less common method of transmission.
A simple blood test will be able to detect the presence of antibodies to Hepatitis C in your blood.
It is a good idea to be tested twice to confirm diagnosis. A specialist can then monitor your liver
function over time, and may recommend a liver biopsy to assess the amount of damage that may
have occurred. This is a relatively simple procedure that is done in day surgery. It is not
recommended for people with hemophilia because of the risk of internal bleeding.
After the initial infection (called "acute" hepatitis, despite the fact that there isn't anything cute
about it), one of two things can happen. Either the virus can no longer be detected, or the
infection becomes chronic. With chronic hepatitis C, some people (about 20%) will develop
cirrhosis. Basically, this is liver damage that is irreversible, and can lead to liver failure and/or
cancer of the liver.
You may have Hepatitis C without being aware of it because some people don't have any
symptoms, while others may have symptoms such as fatigue, muscle aches and pains, etc. I was
not aware of my Hepatitis C status for seventeen years! The easiest way to be sure is to get a
Hepatitis C antibody test.

�TREATMENT OPTIONS
The most common treatment of Hepatitis C is with alpha interferon. Interferon is a hormone that
your body produces naturally to combat viruses. It has been reproduced and can be injected to
increase the level of interferon in your system. There are varying degrees of success with alpha
interferon treatment. Approximately 50% of those treated with interferon respond to treatment.
It is a VERY expensive treatment and is normally not covered by a drug plan, so you will have
to check on your medical coverage. Other treatments that are being tested are Ribavirin (in
combination with interferon), N-Acetyl Cysteine or NAC, which is believed to enhance the
effectiveness of interferon, and Beta-interferon.

HEPATITIS C AND HIV CO-INEECTION
As mentioned earlier, it is common to find Hepatitis C in people that contracted HIV through
sharing unclean needles. HIV and HCV co-infection increases the risk of serious liver disease.
Hepatitis C can be more severe and difficult to treat in people with HIV. Many of the drugs used
to treat HIV can be toxic to the liver. As well, those that are co- infected with HIV and 11CV
have a lower response to treatment with interferon, and interferon can lower the white blood cell
count resulting in bacterial infections in HIV positive individuals.
TAKING CARE OF YOVRSELF
The best thing you can do for yourself if you are HCV positive, or HIV and HCV positive, is to
make some lifestyle changes:
* Eat a healthy, balanced diet.
* DO NOT DRINK OR AT THE VER Y LEAST, DRINK MODERA TEL Y!
Alcohol abuse will increase your chances of developing cirrhosis and/or cancer ofthe
liver.
* Avoiding drugs and smoking is also recommended, but again, moderation is an option
ifyou absolutely cannot (or WILL NOT) quit.
* Get lots ofrest, reduce your stress level and exercise regularly.
If you have any questions about HCV please talk to your doctor. You can also call Daryle at the
AIDS Committee of Thunder Bay, or contact the Canadian Liver Foundation at 1-800-563-5483
or the Canadian Hemophilia Society at 1-800-668-2686.
I would like to give credit to the Canadian Hemophilia Society for many of the facts and statistics
used in this article. They have published an extremely informative and valuable booklet entitled
"HEPA 77775 C - AN INFORMA TION BOOKLET FOR PEOPLE INFECTED WITH THE
HEPA TITIS C VIRUS, AND THEIR FAMILIES." (April 1995)

�DARING TO HOPE...

What scares me about “NEW HOPE” is that I may
have been able to have all my dreams redefined once,
but don’t for a minute assume I can survive it again or
even want to try.

.... continuedfrom page 4

Of course, they don’t know how much I enjoy hearing
this. I like my grey hairs! For me, it’s a sign of aging,
of perhaps — hope!

The mention of a new drug is scary to me. Scary
because I know that tenuous hope can hurt me. Hope
may very well not be something that we have control
over.
Whether or not we choose to commit
EMOTIONALLY to that hope is the question. How
much should I invest in HOPE?

HOPE
A huge word, a difficult word.
Several months ago, sitting at my computer watching
the live broadcasts of the XI International Conference
on AIDS from Vancouver (which carried the theme
One World, One Hope), I began to get a very
unexpected feeling. And it was not a very pleasant
feeling. It should have been but it was NOT.

My message in all this? Be cautious in what you say
or offer people that are either infected or affected.
Even offering HOPE may be experienced differently
than you expect.
If you ask my wife about my new glasses, be prepared
that this may remind her that time is going by and will
sadden her. If you tell my mother that my grey hair
makes me look older, don’t be surprised if she smiles
at the prospect of her son aging.

For the very first time, I was feeling HOPE around the
prospects of eradicating HIV from the body using a
new class of pharmaceuticals called Protease
Inhibitors in combination with other drugs.
This HOPE was hard to digest, integrate or even feel
comfortable with.

Don’t tell me about a new treatment that offers HOPE,
unless you plan to be there with me if it should fail.

Just over four years ago, I sat in a doctor’s office and
had my hope for a future taken away. This was no
small thing. I lost the vision and hope for many
things.
The expectation of seeing my young
daughter’s wedding day; the hope of a long life; seeing
the world; loving again; being loved; being held
without fear; holding without fear. Yes, I lost a whole
lot of things.

THE CHALLENGES
My thoughts on how new treatments
may have an impact on the way we look
at AIDS care and support.

Of course I replaced those “hopes” with new ones.
Shorter ones. A different hope. So when I feel NEW
HOPE, it threatens to give all that back to me and once
again turn my life upside down. A scary thought.

Our model for care has been built, designed and
reinforced by “helping people to die.” Even the most
sceptical of minds cannot dismiss the possibility of a
longer, healthier life for people with HIV infection in
these times of Protease Inhibitors and “The Cocktail.”
In the face of such substantial change in the
management of HIV/AIDS, service providers such as
ACT-B must examine these new times in order to
respond appropriately.

The HIV+ community has been given hope before.
We have history in this area and we have learned from
that. Failed drugs such as AZT, the tat gene inhibitors
and others have, for a brief time, given us hope.

This examination will change over time. As our
service users live longer and healthier lives we must
continue to consult them directly. Only THEY can
help us understand their changing needs.

Emotionally, I cannot afford the luxury of HOPE for
the risk it carries is too great.

continued on page 7 ...

I lost hope!!

5

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�Healing Our NMiovts
November 9-13
Ha) ifax, Nova

ScotiA

The 4th Annual Canadian Aboriginal Conference on HIV/AIDS and related issues was held in Halifax, Nova
Scotia from November 9-13. The Theme of the gathering was “Healing our Nations. ” Approximately 300
people from across Canada and the United States attended to discuss ways of combatting HIV/A IDS.
Two members ofACT-B attended the conference and present their reports...
Sandy Johnston, Proud mom &amp; supporter

Brenda J. LeSage

The reason I wanted to attend this conference was to
support my son who is HIV-positive and to support
others who may be affected. I find that there is so
much support needed in the aboriginal community,
not only from our nation, but from our immediate
families. I believe that with this unconditional love
behind them, our children can stay healthy longer.
My son is a perfect example of this.

I was lucky to be chosen to attend this wonderful
gathering of all peoples across this nation who are
concerned about HIV/AIDS. This conference was one
of the most exhilarating and emotional events that I
have been to.

We must open our hearts, minds and eyes. Only then
will some of the beliefs be cast aside and we can truly
be one nation. I am pretty sure that was the Creator’s
plan in the first place.

The elders taught us to be proud of ourselves and this
illness; to use it to our best advantage. I learned to
forgive myself as well as others. I learned that I had to
take a good hard look at myself whether I want to or
not! I also found out how important it is to teach our
children and grandchildren about HIV/AIDS.

Kevin Barlow, who put it all together, was a powerful
speaker. All the presenters and keynote speakers were
terrific! Such courage for these people to share their
From the conference I heard the horror stories of stories with us.
people being turned away and families shunned
because of the virus.
All the workshops I attended were excellent and very
informative. They included: HIV &amp; TB - Dual
We can no longer lie to ourselves or hide for Infection Issues; Healing through Humour; Grief and
HIV/AIDS is infecting or affecting our nation greatly. Multiple Loss; “Legend of Pagosi” Micmac Medicines,
What I learned from the conference was not only how Traditional Usages and Gathering Methods; and
to take away some of my fears but to overcome the Extremist Attitudes: Maintaining Balance in
fear of the virus in other people.
Aboriginal HIV/AIDS Service Delivery.

I was overwhelmed at the close knit group of people.
We all stand out in our own special way in contributing
to this dilemma. I knew when I left Halifax that I must
try to do my part. I have since run for the Board of
Directors at ACT-B and was elected! I am anxious to
share my experience with others at the ACT-B.
Meegwetch

6

-

�The Holiday Season is a time for
reflection. A time to review the
year and take stock of all the good
things that have happened. Many
people have helped us in our work
at the AIDS Committee during
1996 and we would like to take this
opportunity to say “thankyou” to:

* Vicki Suttie for making the silent
auction at our Annual General
Meeting such a success; raising over
$500 for the Emergency Financial
Assistance Program.

* Employees of Pizza Hut who
donated $80 from their tips to
Mother’s Cupboard.

* Members of the fundraising
committee for their ideas and support
and a special thanks to all those
dedicated volunteers who assisted
with fundraising events.

* Ray Laird and Ryan Bureyko for
coordinating benefit socials during
the year.

* Jennifer Peter for her diligent work
on the Social Marketing Campaign
during her placement with ACT-B.

* “Broadway Bound” for hosting a
first rate benefit concert in support of
the AIDS Committee and the Thunder
Bay Symphony Orchestra. They
donated $700 to each organization.
* Our tireless primary care physicians
who support our PHA’s to the best of
their knowledge, skills and abilities.
* Pius White for his public leadership
at our AIDS Walk, mail solicitations
and support letters for various
fundraising proposals.
* The AIDS Awareness Week
Steering Committee members and a
special thank you to Carri Whidden
for her work coordinating the week’s
events.*
* Karen Ferland for coordinating our
5th Annual Regional “Opening More
Doors” conference.

Canadian Airlines for their
sponsorship of the AIDS Walk.
And a big thanks to the planning
committee!
* The Senator Norman Paterson
Foundation for contributing to our
“Vehicle Fund.”
* William Roberts and all the
performers in the Healthy Sex
Cabaret for bringing humour to this
issue.
* Mike’s Mart store on Red River
Road for their sales of Nevada
Tickets.
DARING TO HOPE
continued from page 5 .. .

* Sandy Johnston for cleaning our
refrigerator! Huge Job! Big Thanks!
* Anne Ciemny for coordinating the
“Cheese Cake Challenge” and Mr.
Sub for donating the use of their
cooler.
* The AIDS Walk is one of ACT-B’s
largest events. Thanks go to: The
Outpost at Lakehead University for
hosting the event. Norma Jean
Newbold from Lakehead University
Residence for her recruitment of
students to support the walk. MDS
Laboratories, Janzens Pharmacy,
Domino’s Pizza, North Algoma
Confectionary, Glaxo Wellcome,
Lakehead Travel Agency and

Although estate planning will
remain an important part of the
assistance to people infected with
HIV, we may now want to offer
PHA’s educational goals. This
gives them an opportunity to live
productive lives in the context of
their limitations.
Regardless of the improvements in
HIV/AIDS
care, there will
undoubtedly be many that continue
to die, get sick and require the
support of agencies like ours. How
do we respond to the person newly
diagnosed with HIV? Surely not the
same way we did 2 - 4 years ago.
There is no hope of getting back
those that we have lost or cure the
pain that has been experienced by so
many. But I do have HOPE. A
different HOPE! MY HOPE!”

�V*rtin$ GIaucc

J|
ACT-B Abvisorvf Council
Director, Regional Public Health
Laboratory
Ogden East End Health Centre
Mary Lee Barry
Douglas Cave
Addiction Research Foundation
Richard DeVuono
Co-Chair
Gail Linklater
Co-Chair
Dr. Gordon Milne
Family Physician
Murray Nielsen
Thunder Bay Indian Friendship
Centre
Diana Smith
Public Health Nurse, Thunder
Bay District Health Unit
Nicky Tittley
Safety Coordinator,
Thunder Bay Regional Hospital
Rev. Don Uhryniw
Current River United Church,
Council of Clergy
Pius White
Community Consultant

The AIDS Committee of Thunder Bay acknowledges and
thanks our various funders:
&gt;
&gt;

Fred Ball

Ontario Ministry of Health - AIDS Bureau
Health Promotion and Programs Branch, Ontario
Region, Health Canada
&gt;
Thunder Bay WINS!
&gt;
All of the people involved in
general fund raising and the
support of many local businesses
and individuals.

The opinions and medical information
offered by “rcACT-Belicvc” are those
of the individual authors and not
necessarily those of the staff and Board of
Directors of the AIDS Committee of Thunder Bay.
Medical information offered should be used at your own
discretion. Please consult your doctor.

ACT-B Bo^rb of Directors
Rick Atkinson
Joyce Barnes
James Budd
Deborah Emery
Carmen Klassen
Steacie LaChance
Brenda LeSage
Rob MacKay
Bruno Valente
Noel Ward
Darryl Williams, President
Pius White

Please address any comments or concerns to
rcACT-Belicve
P.O. Box 24025
Downtown North Postal Outlet
Thunder Bay ON P7A 8A9
(807)345-1516

ACT-B St^ff
Substance Use Outreach Project
Coordinator
Christa Alsch
Secretary
Education Coordinator
David Belrose
Support Services Coordinator
Sheila Berry
John Books
Fund Raising Coordinator
Interim Support Worker/Health
Daryle Dollan
Promoter
Jo-Ann Jacomb
Volunteer Coordinator
Lawrence Korhonen
Administration Coordinator
Clifford Ray
Futures Program
Executive Director
Michael Sobota

Janet Adams

Vcsl 1 wAtit to support ACT-B this
holfc&gt;A\j season* 1 know thM m\\
contribution will realty covmt! Here is
mvj bonMion of $
....... - .
Name:
Address:

rcACT-Bclicvc Contributors
Jo-Ann Jacomb
Editor
Richard Boon
Design and Layout
ACT-B staff, volunteers &amp; members

City, Province &amp; P.C:
Telephone:

8

-

-

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                    <text>reACT-Belicve
The AIDS Committee of Thunder Bay
Spring, 1997
Volume 10, Issue 1
Plet&gt;5c

To

Renew

■National

AIDS

Strategy

by Michael Sobota, Executive Director, ACT-B

Prime Minister Jean Chretien, in a speech in
Vancouver on April 29, 1997, announced his
government’s commitment to renew the National
AIDS Strategy (NAS). The current NAS is scheduled
to expire in about 10 months. The fact that the Prime
Minister himself made this announcement, and that it
is committed in writing in the Liberal Party’s current
“Red Book”, is a significant achievement in overall
HIV/AIDS policy development.
Many, many individuals participated in the
advocacy efforts aimed at the Federal Government
toward renewing the NAS. The AIDS Committee of
Thunder Bay, together with its sister agencies in
Ontario and other National partners, have been
lobbying extensively for the renewal for more than a
year. We want to thank all of you who responded to
our requests for letter writing and petition signing.
We thank local Members of Parliament, Stan
Dromisky and Joe Comuzzi for the time they gave in
meetings with us, and for taking public stands in
support of renewing the NAS. We thank the Prime
Minister for making this promise.
While the Prime Minister’s announcement is a
welcome one, we are well aware that this commitment
is being made during an election campaign. The
actual commitment as stated in the Liberal Party’s
new “Red Book” says:
"The HIV/AIDS epidemic is a third critical health
challenge facing Canada today (Ed. note: together with
breast cancer and smoking). An estimated 20,000
Canadians now suffer from AIDS, while close to 45,000
Canadians are infected with HIV. The bulk of the AIDS
epidemic lies ahead of us, not behind us; another 10,000
to 20,000 Canadians are expected to contract AIDS by the
year 2,000.
In 1993, this government launched Phase II of the NAS,
providing $40.7 million annually forfive years to combat
continued on page 7.. .

AN ELECTION ISSUE

Vr»t&gt;er

the

cover......

AIDS Strategy Renewal
Education Update
Here And There
Agency Activities
Teaching Tool Developed
Dear Robbie
Who’s “In Control”?
Parting Glance

1
2
3
4
5
6
7
8

Health Promotion Insert: Viral Load Testing

�E&amp;ucMioti Update
Substance {/sc Outreach
Project (SX/OP) by Janet Adams

The changing; face of AIDS
by David Belrose, Education Coordinator

This year’s social marketing campaign
has focused on the changes that are
happening in HIV infections in our
region. We have tried to make people
aware of the fact that increasing
numbers of people are living with
HIV/AIDS in Northwestern Ontario and
they come from all walks of life, all
ages, all racial and ethnic backgrounds
and both genders.
Along the same lines, the Canadian
AIDS Society has declared the theme
for National AIDS Awareness Week,
September 29 to October 5, 1997 to be
“The Changing Face of HIV/AIDS.”
Think about ways that you can help
make your school, your agency , your
community
more
aware,
more
compassionate and safer.
Plan to
become involved in AIDS Awareness
Week this year. Call us for ideas or
assistance.

ACT-D Library

HIV/AIDS is a
risk—especially if
you drink before
sex or use injec­
tion drugs. HTV/
AIDS can be
prevented. Learn
how to prated
yourself. Call:

I-807-3HS-I5IG
■kaketb
AIDS Committee
of Thunder Bay

In spite of our efforts to get the word
out, our well-stocked resource library
continues to be little-known in the wider
community.
We
have
received
compliments
from knowledgeable
people about the richness and diversity
of our holdings on HIV/AIDS and
related issues.
Whether you are a person with
HIV/AIDS, a family member, a health
care professional, a student working on
a paper or an interested member of the
public, this library is available to you.
Books, videos and other material can be
used in the library itself or, in most
cases, borrowed for up to two weeks.
Our library is located at 217 S. Algoma.
2-

-

The Substance Use Outreach Project
(SUOP) has been running since December
1996. Five peer ambassadors have been
trained to do outreach. You may have seen
them at your favourite bar, fitness club,
coffee shop or mall, handing out condoms,
sharing information about safer sex, harm
reduction, HIV and substance use.
If you take the city bus, you will see our
ads. Four ads have been designed to
highlight the relationship between
substance use and the risks of HIV. Each
ad will run for three months on all 49 city
buses. The ads will also be made into
posters.
We have produced cards and match
books that provide info and tips about
harm reduction, safer using and safer sex.
The cards talk about local agencies
offering anonymous testing, needle
exchange, detox, assessment, drug
treatment and support for people infected
with HIV or affected by HIV/AIDS.
Over the next year, we will be hosting
several mini cabaret nights in local bars.
We’ll offer information, free stuff and a
Tiny Sex Theatre Play entitled “Ken's
Night Out". The peer ambassadors will be
at the bar night to answer any questions
about harm reduction, safer sex, HIV and
substance use.
If you would like some information
cards, matches or posters, call Janet at the
AIDS Committee - 345-1516.

�Here..... &lt;\nt&gt; there.....
Volunteers honoured...

AIDS specialist to visit...

On Wednesday, April 2, 1997, AIDS
Committee of Thunder Bay volunteers
were honoured at our annual Volunteer
Appreciation Night. Pizza, punch and
popcorn were on the menu, and the room
was abuzz with chatty friends catching up
on gossip.
The 80 volunteers in
attendance were entertained by the
Thunder Bay Theatre Sports League’s
high paced improvised theatre games.
All volunteers received a certificate of
appreciation, red ribbon pin and pen.
Volunteers who contributed over 50
hours of service were also awarded ACTB T-shirts.
Three outstanding volunteers were
recognized. Linda MacKay and Anne
Ciemny have both contributed over 200
hours of service as receptionists during
1996. Pius White was presented with the
coveted “Volunteer of the Year’* award
for his superlative achievements as an
advocate, spokesperson, board director
and volunteer.
The AIDS Committee commends over
155 volunteers for their dedication and
excellence in voluntarism.

Dr. Richard Fralick, an HIV/AIDS
specialist from Toronto, will be visiting
Thunder Bay to provide consultation for
people living with HIV/AIDS and their
physicians. This pilot project will be re­
evaluated in six months.
Dr. Fralick’s first clinic was held at the
Immunology Department at St. Joseph’s
Hospital on Wednesday, May 14. There
were more clients seeking appointments
than could be accommodated on that day.
If you wish to see Dr. Fralick, you must
have a referral from your physician. If
you don’t have a physician, contact Sheila
Berry at the AIDS Committee.
For
further information about dates and
booking procedures call 345-1516.

Did you know...
- between 2,500 and 3,000 new
HIV infections are reported in
Canada each year.
- SOURCE The Globe &amp; Mail.
February 15, 1997

Amsterdam Conference....
Mayor's Salute....

ACT-B volunteer and board member,
Pius White, will be attending the 3rd

On Wednesday, April 16, in celebration
of National Volunteer Week, two ACT-B
volunteers were honoured at the Mayor’s
Salute. Mayor David Hamilton bestowed
“Certificates of Achievement” on Linda
MacKay and Pius White for their
commitment to the AIDS Committee. 70
volunteers from 35 agencies throughout
Thunder Bay were recognized at this
event.

International Conference on Home and
Community Care for persons living with
HIV/AIDS. The conference runs May 21 24 in Amsterdam.
The theme is “Meeting the needs of the
infected and affected.”
Pius has been awarded a full scholarship
by the conference organizers. Watch for a
report in the next reACT-Believe\

Don't HIV/AIDS

is final And it's
occurring more
in women, our
young people
and aboriginal
population. Find
out what you
can do. Call:

I-807-31S-ISIG

■^03%
AIDS Committee
of Thunder Bay

3-

-

�!

A
5

Fvmt&gt;rAism5

News
bvf ]ohn Books - Fundraising Coordinator

c
n
c
M

A
c
t
i

V

i
t
i
c
£

i.

Thank you to all those who have
supported the AIDS Committee during
this past year. I am very happy to report
that we were able to surpass our
fundraising goal of $80,000. We could
not have done this without the hard work
and the support of so many people in our
community.
But this never ending fundraising
wheel moves on and this year, we must
raise $84,000. Our new campaign began
with the fourth annual Art AIDS Auction.
Though the auction was a success in many
ways, fewer patrons attended than
anticipated and we fell $2000 short of our
$6000 goal.
It was, however, a
remarkable effort and one that we can be
proud of. The craft and art community
donated generously, and those patrons
who attended enjoyed the event
thoroughly.
In mid July, during the
Harbourfest celebrations, we will again be
hosting the Cheesecake Challenge.
Professional and amateur chefs may enter,
with prizes for the best cakes in both
categories.
If you are interested in
entering or would like to volunteer, call us
at 345-1516
The big event of the year will be
the AIDS Walk Thunder Bay, to be held
on September 28th. We need your help to
make this the most successful Walk ever.
Our goal is to raise $18,000. Roughly
translated, 180 walkers need to raise $100
worth of pledges each. There are many
ways you can get involved: be a volunteer
on the Walk Committee; ask your family,
friends and co-workers to sponsor you;
form a challenge team with your friends.
Pledge forms will be available at the
office in July.

Cofne W&lt;\1k With VS!
4-

-

Yom said ipM'd always be ttnere
but snce yoM fieard tfie news,
tfiere's a distance float (oas come
between ms
tfiaf I don't understand.
Yom said iyoM'd always bve me
no matter wfiat came our way
Now someone close to me loas tfie wms.
I can't fiod yoM anywhere.
I need your support and understanding.
I need you to let me 6now
tfiat tfngs between ms are sti tfie same,
becaMse I need yoM io my fe.
by
Sandy Joftosfon
AIDS Walk Thvmfcer Bau
Svmfcavp September 2$, 1997
Lakekeab Vniversitvj Outpost
Supporting tke
services provided bv*
jjipf tke AIDS Committee
^
wttrtMHbi
□

□

ffi

§

of Thunder Bavj in
the fi&lt;zht acainst
AIDS
Yes, I want to participate. Please
send me more information.
Name:...................................
Address:................................
Postal Code......................
Yes, I want to help as a volunteer.
Telephone.............................
Return to:
AIDS Committee of Thunder Bay
P.O. Box 24025
RPO Downtown North
Thunder Bay ON P7A 8A9

�Health Promotion
by Darylc Dollart, Support Services/Health Promoter

Viral 1oat&gt; testing
What is viral load testing? What do the results
mean and why should you have a viral load test
done? In this issue of reACT-Believe, I would like to
answer those questions for you.

What is a viral load test?
Quite simply, a viral load test measures the amount
of virus (HIV) in the blood. It is not a complicated
procedure and is very much like a blood test. Your
doctor can order the test on a special form, and you
will be asked to go to the lab (usually on a particular
day). The lab worker will draw some blood, and
send this blood to a lab in another city where the
viral load tests are done. The results of this test will
be returned to your doctor, who will discuss the
results of the viral load test with you.

What do the results mean?
The results of a viral load test can be a good
indicator of where the virus (HIV) is going or how
much damage it is doing. For example, if your viral
load is high, the virus is doing damage to your
immune system and could progress more quickly to
AIDS than if your viral load is low.

Why should I get a viral load test?
There are good reasons to get a viral load test done.
The results of viral load tests, when looked at with
your T-cell counts (also known as CD-4 and CD-8
counts) are the best way to decide when and what
kind of treatment or therapy is necessary.
In managing your health, it is best to have TWO
tests done: a viral load test, and T-cell counts.
Because results can vary, it is advisable to get
another series of THE SAME TESTS done, 2-4
weeks later. This will provide you and your doctor
with a more stable base (“base line”) to look at when
deciding what your treatment options are.

Before starting any kind of new therapy, it is a
good idea to have a viral load test. Then, after you
have been on the therapy for 4-6 weeks, another
viral load test can show whether the treatment is
working. For example, let’s say that based on the
results of your CD4-CD8 counts and viral load
tests, you and your doctor decided to try a
combination therapy consisting of AZT, 3TC and
Indinavir. Six weeks later, your next viral load test
showed a big decrease and one month later (and
another viral load test later), it showed a continued
decrease. This is a very good sign that the
combination therapy you are using to combat the
virus is working.

A word of warning....
You may have heard
that some of the new
combination therapies
(including a protease
inhibitor) can lower the
amount of HIV in a
person’s body (as
measured by a viral load
test) to undetectable
levels. This does not

mean that you are
cured, or that you no
longer have the virus,
but these therapies can
make you feel healthier
and, in some cases, can
dramatically improve
your health.

�Kc\\ to Antiviral

*rsi&gt; StMus

Nucleoside Analogues: act on early stage of reproduction of HIV virus
GENERIC/CHEMICAL
NAME

BRAND NAME

MANUFACTURER

APPROVED IN...

PAYMENT STATUS
ONTARIO

AZT - Zidovudine,
Azidothymidine

Retrovir

Glaxo Wellcome

Canada, 1987

Sunnybrook list

ddC - Dideoxycytidine

Hivid

Hoffrnan-LaRoche

Canada

Sunnybrook List

ddl - Didanosine

Videx

Bristol-Myers Squibb

Canada

Sunnybrook List

Lamivudine

3TC, Epivir

Glaxo Wellcome

Canada - developed here

Limited Use Product

d4T - Stavudine

Zerit

Bristol-Myers Squibb

Canada, July 8, 1996

Limited Use Product

Protease Inhibitors: block later stages of viral reproduction
GENERIC/CHEMICAL
NAME

BRAND NAME

MANUFACTURER

APPROVED IN..

PAYMENT STATUS

Saquinavir

Invirase

Hoffrnan-LaRoche

Canada

Limited Use Product

Indinavir

Crixivan

Merck &amp; Co.

Canada, Sept. 18, 1996

Limited Use Product

Ritonavir

Norvir

Abbott

Canada, Aug. 14, 1996

Limited Use Product

Nelfinavir

Viracept

Agouron

Experimental

None, no EAP or CA

Non-nucleoside Reverse Transcriptase Inhibitors (NNRTI): delay replication of the virus
GENERIC/CHEMICAL
NAME

BRAND NAME

MANUFACTURER

APPROVED IN..

PAYMENT STATUS

Nevirapine

Viramune

Boehringer-Ingelheim

USA, Pending - Canada

Expanded Access Program

Delavirdine

Rescriptor

Pharmacia &amp; Upjohn

Pending - Canada, USA

Expanded Access Program

Loviride

no brand name

Janssen

experimental in Europe

none, no EAP or CA

Sunnybrook List - Sunnybrook manages this distribution to hospitals in Ontario and the drugs on it are available without cost to anyone
for whom they are prescribed, regardless of income.

Limited Use Product - These drugs are listed in Section III of the Formulary (the main list of drugs) but have a Limited Use status. For 3TC
and Saquinavir, this means that an HIV registered physician must prescribe them and must fill out a Limited Use/Nutrition Products form.
This form is given to the patient along with the prescription and the patient gives both to the pharmacist.

Facilitated Access List - This is Section 6 of the Formulary (#35) and is comprised entirely of products used in the treatment of people with
HIV/AIDS. They must be prescribed by an HIV Registered physician, in order to be covered by ODB, TDP. There is no form, nor letter,
that the physician needs to provide to patients nor to the Drug Programs Branch of the Ministry of Health. Many private insurance carriers
will also cover these drugs. It is a fairly simple process for a doctor to become a registered HIV physician. None of the above drugs is on
this list.

Section 8 - This is a letter that your doctor writes requesting Section 8 approval, to pay for a drug through ODB or TDP, which she
prescribes for you. If you intend to submit a TDP claim for a Section 8 drug, the date of the Section 8 approval must be earlier than the date
on which the prescription was approved. Your doctor will know how to do a Section 8, remind him if you are planning to submit a TDP
claim, to include this information.

Expanded Access Program (EAP) or Compassionate Access (CA) - This is free access to the drug, often in an experimental protocol.
These are offered by the drug company, primarily before approval by Canada. Often one’s free supply is continued for a period of time once
it is approved. Your doctor makes application for you.
ODB - Ontario Drug Benefits - To get these benefits you must qualify for FBA or be a senior. Neither ODB nor TDP pays for drugs that
are experimental. They must be approved/released by Health Canada.

TDP - Trillium Drug Program - This is also an Ontario Ministry of Health program. It is an income based program for which you apply
annually (April 1 thru March 31). It’s intention is to give financial assistance to people who are not eligible for FBA/ODB and who have
high drug costs. Your pharmacist will have application/information packets. Use only the packets/applications with the orange stripe. TDP
will NO longer accept the green striped application.
Printed with permission from Hemophilia Ontario, AIDS Program (416) 972-0641
Information subject to change and was accurate on December 19, 1996

�AIDS Teaching Tool Developed
for Aborism^l People
Article reprinted with permission from Canadian AIDS
News, Volume ix. Number 2, fall 1996. Poster reprinted
with permission from Gabe Kakeway.

H1V/A1VS Wheel
An interpretation of the medicine wheel based
on the ancient symbol of the circle explains how
HIV affects all aspects of life: physical,
emotional, mental and spiritual. It also shows
how a person living with HIV passes through
cycles of growth from an infant, to a youth, an
adult and an elder. The concept and design of
this wheel came from Leonard Johnston, who
with Frederick Haineault, were co-founders of
Healing Our Spirit, the BC First Nations AIDS
Prevention Society in Vancouver. Leonard and
Frederick used the HIV/AIDS wheel to
incorporate Aboriginal teachings into their HIV
prevention work. Leonard and Frederick have

both since passed away due to complications related
to AIDS.

HIV/AIDS Teaching Turtle Poster
This poster integrates the HIV/AIDS wheel into
the body of an animal recognized as a spiritual guide
by Aboriginal people. The turtle symbol includes
the colours of the four directions: east as yellow,
south as red, west as black, north as white. The
colours of the four elements of creation are also
noted: blue for water, green for plants, brown for
earth and purple for fire. The poster shows how a
person living with HIV can find support and healing
from the physician or traditional healer, counsellors
and family, and community members. This tool is
unique because it identifies staying healthy as being
in tune with the environment. The concept and
design for this tool came from Gabe Kakeway of
Grand Council Treaty #3 in Kenora, Ontario.

�dear robbie; IMHO
by Rob MacKay
Well, here we are with a new issue of Re-ACTBelieve. And for all you information hungry
readers, we have a new feature!
''dear robbie; IMHO", will attempt to answer all
those hard to ask questions in a fun and
informative way.
if you are one ofthose acronym hounds and can't
quite figure IMHO, it stands for "In My Humble
Opinion". However, a good friend of mine once
told me that it really means you can say whatever
you want in print, as long as you end it with
IMHO.
dear robbie,
I was recently in a situation that I didn't know how to
handle and I need your advice. In the staff coffee
room at work, we frequently run into problems with
people using coffee mugs other than their own. One
of my co-workers, sick of retrieving her cup, placed
an "HIV Positive" sign on her mug as a deterrent. I
was infuriated and felt that our AIDS education efforts
had somehow failed- What could I have done to
address this situation*’
Signed, Infuriated-

interesting questions, if you feel you need more
information, be sure to ask our knowledgeable
Education Coordinator at ACT-B.
IMHO; robbie

dear robbie,
My boyfriend was in a fight and came home with
blood on his shirt. Is dried blood infectious*’ Do I
run a risk of contracting HIV if I wash his clothes with
mine*’ Should I be tested*’
Signed Scared.

Dear Infuriated,
Why drink from it of course! Sometimes the only
way to combat ignorance is to confront it. Your co­
worker was very clever to capitalize on unrealistic fear
to get what she wanted- Unfortunately her goal is
very selfish and shortsighted- You, my friend, a re
seeing the larger and more important picture. You
may however be wrong in assuming we have failed at

AIDS education in North America has had a
monumental effect on reducing infection rates and
increasing knowledge about transmission. But as they
say, "it ain't over till the horizontally challenged lady
sings". So, sit back, pour yourself a cupa Java in that

Dear Scared,
HIV is a very difficult thing to transmit. Unless you
get the blood Cor other body fluid) of an infected
person in your blood stream, you are not at risk.
Also, HIV is a very fragile virus, outside the "host", it
dies very quickly. Soooooo, unless your boyfriend
had unprotected anal intercourse with the man before
he beat him up, you don't have too much to worry
about. The "should you be tested" question I cannot
answer. You may very well have other risk factors,
robbie suggests you seek out a trained HIV counsellor
or educator so that you can examine ALL your risk
factors before deciding if you should be tested-

marked cup, and be prepared to answer some

IMHO; robbie.

AIDS education. We just aren't done yet.

Please address your questions for "dear robbie" to teACT-Believe. Address is on page 8.
6-

-

�Who’s “hi Control”?
ACT-B Publishing Success Story
Over the years, ACT-B has produced a
variety of successful prevention and
education materials. Most recently, we
reprinted IN CONTROL Maintaining
Healthy Sex: A Brochure for Gay and
Bisexual Men.
This brochure, developed in
Thunder Bay, has sold over
12,500 copies — many of them in
the United States.
In a simple and visually
appealing way, IN CONTROL
looks at the difficulties men face
in trying to consistently practise
safer sex. Copies of the brochure
are once again available. Please
call 345-1516 for a sample copy
and pricing information.

DiO you know. . .
The Toronto Department of Public Health
reports that 65% of males and 47% of
females will have had three or more sexual
partners by the time they graduate from high
school. And, despite the barrage of safer sex
messages aimed at teenagers, only 27% of
adolescents report using a condom the first
time they had sexual intercourse.

-SOURCE: The Globe &amp; Mail,
February 15, 1997

continuedfrom page 1. . . .
the AIDS epidemic. This investment together
with the efforts of provinces, the medical and
research community, community organizations,
and people living with HIV and AIDS has led
to tangible progress in research, education,
prevention , care and treatment. Canada now
has an effective community support network,
while research and fast-tracking of drug
approvals has led to improved drug therapies
and new hope for those living with HIV and
AIDS.
As the incidence of HIV and AIDS
continues to increase, however, it is clear that
we must continue our efforts. A new Liberal
government will extend the National AIDS
Strategy at current funding levels for an
additional five years (Ed. Note: through March
31, 2002)".
The above is an election promise. At this
writing, we do not know who will form the next
Federal government. From the Liberals’ own
words, it is clear that AIDS is an election issue.
If you want further details about what you can
do during and after the election campaign, call
our office at (807)345-1516. And again, thank
you for all of your support.
-

-

Rick Atkinson Receives Gary Gillum
Awart&gt;
This award is presented to three Canadians
who demonstrate exemplary achievements in
promoting social responsibility in credit
unions. Rick has been on the Bay Credit
Union Board since 1989. He has also served
on ACT-B’s Board for the past 6 years. Rick
has worked as a community legal worker in
many capacities and provides representation
and legal advice to clients in all areas of
“poverty law”. He has always been a strong
advocate
of
social
responsibility.
Congratulations Rick!
Jo-Ann Jacorub fakes leave of
absence!
Volunteer Coordinator Jo-Ann Jacomb (also
known as Jo-Ann Waytowich) will be running
her play “/ Can Sing! (Can 7 I?)” at Magnus
Theatre this summer. Replacing her from
June 15 to August 2 will be Carrie-Anne
Whidden. Good luck to both of you!

7-

-

�Parting GLvicc
ACT-B Afcvisorvf Council

Mothers Cupboard Gives Thanhs!

Fred Ball

The AIDS Committee of Thunder Bay has been operating a small
food bank called Mother’s Cupboard for the past four years. We
would like to thank our community partners who generously
donate to this project:
Comcare
Confederation College Students
Kellogg’s
Current River United Church
Saan
Knox United Church (Shuniah)
Lakehead University Students
Psi Master Chapter Beta Sigma Phi
St. John’s Anglican Church
Thunder Bay Whiskey Jacks

Director, Regional Public Health
Laboratory
Ogden East End CHC
Addiction Research Foundation
Co-Chair
Crossroads Centre
Family Physician
Thunder Bay Indian Friendship
Centre
Public Health Nurse, Thunder
Bay District Health Unit
Safety Coordinator,
Thunder Bay Regional Hospital
Current River United Church,
Council of Clergy
Co-Chair

Mary Lee Barry
Douglas Cave
Richard Atkinson
Gail Linklater
Dr. Gordon Milne
Murray Nielsen
Diana Smith
Nicky Tittley

A special thank you goes to the First Presbyterian Church on Grey
Street, who set aside Sunday, May 11 as a food drive day for the
AIDS Committee. We were astonished and very grateful when
boxes and boxes of food arrived at our door. Thank you for your
most generous contribution.

Rev. Don Uhryniw
Pius White

ACT-B Bo^rb of Directors
Rick Atkinson
James Budd
Carmen Klassen
Brenda LeSage
Bruno Valente
Pius White

If you would like to make a donation of non-perishable food to
Mother’s Cupboard, please contact ACT-B at 345-1516.

Joyce Barnes
Deborah Emery
Steacie LaChance
Rob MacKay
Noel Ward
Darryl Williams, President

ACT-B StAff
Janet Adams
Christa Alsch
David Belrose
Sheila Berry
John Books
Daryle Dollan
Jo-Ann Jacomb
Lawrence Korhonen
Michael Sobota

The AIDS Committee of Thunder Bay acknowledges and thanks
our various funders:
&gt;
Ontario Ministry of Health - AIDS Bureau
&gt;
Health Promotion and Programs Branch, Ontario
Region, Health Canada (ACAP)
&gt;
All of the people involved in general fundraising
and the support of many local businesses and
individuals.

Substance Use Outreach Project
Secretary
Education Coordinator
Support Services Coordinator
Fund Raising Coordinator
Support Worker/Health Promoter
Volunteer Coordinator
Administration Coordinator
Executive Director

reACT-Bclieve Contributors
Jo-Ann Jacomb
Editor
Richard Boon
Design and Layout
Rob MacKay
Writer
ACT-B staff, volunteers &amp; members

Yesl / want to become a member of ACT-B! /
know that mif contribution will realty count!
Here is mif donation of $lo.oo___, $20.00___ or

The opinions and medical information offered by “reACTBelieve” are those of the individual authors and not necessarily
those of the staff and Board of Directors of the AIDS Committee
of Thunder Bay. Medical information offered should be used at
your own discretion. Please consult your doctor.

$90.00___.

Name:
Please address any comments or concerns to
Address:

reACT-Bclieve
P.O. Box 24025
RPO Downtown North
Thunder Bay ON P7A 8A9
(807) 345-1516

| City, Province &amp; P.C:
Telephone:
8-

-

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                    <text>rcACT-Believe
The AIDS Committee of Thunder Bay
Fall, 1997
Volume 10, Issue 2

AIDS Awareness Week Issue
The Changing Face of AIDS
“Most Canadians think AIDS is someone else’s
problem. They are sadly mistaken.
HIV/AIDS
continues to exact an enormous toll on our society.
Medical care costs alone amount to at least $100,000
per person living with HIV/AIDS, but when indirect
costs are factored in, this number rises to $650,000.
Most devastating is the loss in terms of human life.
More than 14,500 AIDS cases have been reported in
Canada and at least 50,000 Canadians have contracted
the virus. Each year, between 3,000 and 5,000 people
are infected. Over half of these are younger than 25.
The recent good news is that new treatments have
helped lead to a decline in AIDS deaths. The disturbing
reality is that HIV infections have increased since the
early 1990’s.
This preventable virus that we have known about for
over a decade is spreading. Each year, an increasing
number of women, gay and straight youth, Aboriginal
people and injection drug users are becoming infected.
The rising rate of infection means there is an increased
need for new, bolder prevention messages, and
increased care and support for people living with HIV.
One way or another, we’re all affected by AIDS. I

urge everyone to play safe, to learn more about HIV
prevention, and to help reduce the spread of this
dangerous and costly virus.”
Jann Arden
Canadian singer-songwriter Jann Arden is serving as
spokesperson for the Canadian AIDS Society’s 1997/98
National AIDS Awareness campaign. The campaign is
being launched on September 28, the date thousands of
Canadians will be walking to show support for continued
AIDS prevention, education, treatment and support.

Under Our Cover...
AIDS Awareness Week Schedule
“Opening More Doors”
AIDS Walk
Let’s be Social
“Dear Robbie”
Here and There
Parting Glance

AIDS
We're all
affected^

2
3
4
5
6
7
8

�AIDS Awareness Week
Schedule of Events
Saturday, September 27

AIDS Awareness Week Kick-Off Social
for the gay, lesbian, bisexual, &amp; transgendered
community and friends
518 Fort William Road 9:00 p.m.

Sunday, September 28

Thunder Bay AIDS Walk
5 km. walk from Lakehead University Outpost.
Registration at noon, walk starts at 1:00 p.m.
Prizes, games, activities, music, food, friends and
fun!

Monday, September 29

Tree Planting Ceremony
11:30 a.m. Marina Park (Wilson Headland)

Tuesday, September 30

Positive Talk About Staying Negative
A workshop for gay and bisexual men.
8:00- 10:00 p.m. ACT-B
Information Display - Confederation College

Wednesday, October 1

Bar Night “Ken *s Night Out” Confederation
College - Sharkey’s Pub 9:00 p.m.
Information Display - Confederation College

Thursday, October 2

Bar Night “Ken’s Night Out” Lakehead
University - Outpost 9:00 p.m.
Candlelight Vigil - 7:30 p.m.
Call ACT-B for details.
“Opening More Doors” Regional Counselling
Conference
Information Display - Intercity Shopping Centre

Friday, October 3

“Opening More Doors” Regional Counselling
Conference continues
Information Display - Intercity Shopping Centre

Saturday, October 4

Information Display - Intercity Shopping Centre
PHA Retreat (continues Oct. 5 and 6)

Other Events
Information Display - Village Clinic, Thunder Bay District Health Unit, Victoriaville Mall all week
Information Display - Smith Clinic, St. Joseph’s Care Group all week
To be announced - Lakehead University, Port Arthur Collegiate Institute
2-

-

�“Opening More Doors"
NW Ontario Regional HIV/AIDS
Counselling Conference

I
,

The AIDS Committee of Thunder Bay will be hosting
its 6th annual regional counselling conference, “Opening
More Doors” during AIDS Awareness Week. This year’s
conference will take place on October 2nd and 3rd at the
Prince Arthur Hotel. Funding for the conference has been
provided by the Ministry of Health - AIDS Bureau.
The conference will offer workshops on HIV
counselling issues and the development of support systems
in Northwestern Ontario for those living with HIV/AIDS
and their caregivers. This year’s topics include:
0 Counselling issues relating to the needs of PHAs
(Persons living with HIV/AIDS) who have children;
such as disclosure, guardianship and treatments.
0 Barriers that people living with HIV/AIDS face in NW
Ontario: Issues relating to living in smaller centres,
attitudes, confidentiality and accessing resources.
0 Issues relating to youth peer pressure, sexuality and
sexually transmitted diseases.
0 Counselling issues related to drugs and other chemical
dependencies.
0 Counselling clients on current medical options.
0 Women’s issues: creating risk awareness for women
leading to the early diagnosis of HIV/AIDS.
0 Pre and post-test counselling for individuals who want
the HIV anti body test.
0 Death, dying and the grieving process: a focus on
spiritual and emotional issues.

“This is one of thefinest
conferences I have attended.
People from around our
region so often feel isolated,
especially when dealing with
HIV issues. It was terrific to
share ideas with others from
Northwestern Ontario.
Excellent!”

Due to the overwhelming response to the conference,
we are currently placing people from outside the city of
Thunder Bay on a waiting list. There are still openings for
registrants from Thunder Bay. The fee for the conference
is S30.00 which includes all workshops and lunch on
Friday, October 3rd. A $10.00 fee will be charged for
those wanting to attend the opening or closing plenaries
only.
For more information about the conference, contact
Joanne Books, Conference Coordinator at 345-1516 or
346-9388.

3-

-

�AIDS WALK Thunder Dai/
Have you registered for AIDS Walk Thunder Bay
yet? It’s not too late! Form a team; encourage your
friends from work or school to join you. Support
each other as you collect pledges. Bring a pet, wear
a costume, have your pel wear a costume, bring the
kids; there will be something for everyone!
This year’s Walk will be the biggest and best
ever with activities for children, entertainment, food
and games. The 5 km. Walk will begin at Lakehead
University’s Outpost at noon on September 28. As
a pledge collector, you will be joining thousands of
Canadians in over 60 communities as they help to
support the cause of HIV/AIDS.
The lucky person who collects the most pledges
will receive a trip for two to Toronto with a stay at
the Delta Chelsea Hotel (courtesy of Lakehead
Travel, VistaJet and the Delta Chelsea.) Second
highest pledge collector receives a night’s stay at the
White Fox Inn with dinner and breakfast (courtesy
1

YES!

of the White Fox Inn ), and third prize is an evening’s
stay at the Prince Arthur Hotel and show tickets
(courtesy of the Prince Arthur Hotel.). Other prizes
will be awarded for pledges greater than $150.00.
All money raised in Thunder Bay stays in Thunder
Bay. The pledges you collect are used to fight
HIV/AIDS here in Thunder Bay on three levels:
♦ Support Services for persons living with
HIV/AIDS in Thunder Bay and the region.
♦ Education
♦ Policy and Advocacy
The active client case load of the AIDS Committee
of Thunder Bay has doubled in one year. HIV is
gaining ground quickly!
Be a part of the solution! Fax your completed
registration form to 345-2505, call us at 345-1516, or
mail it to: Box 24025, RPO Dwntn. North, Thunder
Bay ON P7A 8A9.

I’ll raise money and walk ‘til my shoes fall off to fight AIDS
and support people with HIV/AIDS. Please send my Walker
kit right away.

Name:
Street Address:

Apt. No.:

City:

Province

Postal Code:

Home Phone: ( )

Work Phone: ( )

Fax: ( )

Employer/School/Organization
Age:
Sex:
□
□
□
□
□

Team Name (if any):

□under 18
C]l8-25
□ 26- 35
□ 36-45
□over 50
□M □F
Please send me 1 2 3 4 5 Pledge forms, (circle one)
I’ll take the lead in forming a team. Please send me a Team Leader’s kit.
In addition to walking, I can volunteer my time. Please call me.
This is my first AIDS Walk Canada.
I can’t make it on September 28. I want to donate. Please call me.

4-

-

:

�Vrotezisc Inhibitors
by Deirdre MacLean, CA TIE
This document has been reviewed by CATIE s treatment information staffbut not yet by an external reviewer.

General:
Protease inhibitors are a new class of drugs taken to
fight HIV infection. Saquinavir (sold as Invirase),
ritonavir (Norvir), and indinavir (Crixivan) are approved
for sale in Canada. Several other pharmaceutical
companies have protease inhibitors in development.
Agouron’s protease inhibitor nelfinavir (Viracept) is in
Phase III clinical trials. Glaxo-Wellcome, in partnership
with Vertex, has Phase II trials underway of a product
known as 141W94 (if you’re reading G - W material) or
VX-478 (if you’re reading Vertex material). Pharmacia
&amp; Upjohn have a third generation protease inhibitor
under development. Many other manufacturers are also
working on HIV protease inhibitors.
Drugs that fight HIV infection are called
“antiretrovirals” because HIV is a retrovirus. These
drugs interfere with the viral life cycle in order to stop,
or at least slow down, the progression of HIV disease. A
brief review of how HIV replicates will help explain
where and how antiretroviral drugs work.
How HIV infects cells
The core of HIV is made up of two stands of the genetic
material called RNA wrapped in a protein coat. It is
surrounded by an envelope made of fat and protein.
HIV is not alive. All living things, even single-celled
organisms like bacteria, fungi, or protozoa, must
breathe, eat, excrete, and reproduce. Viruses do none of
these, except reproduce.

cells. Different types of cells have different receptors.
The HIV envelope has “spikes” on it, called gpl20,
which happen to fit into the CD4+ receptor on a cell’s
surface and act like a key, unlocking the receptor and
allowing HIV to enter the cell. Two kinds of immune
system cells have CD4+ receptors and can be infected
by HIV: macrophages and CD4+ lymphocytes (also
called “T4 cells” or “CD4+ cells”).
After HIV has bound to the CD4+ receptor, it enters the
cell and begins the process of replication with the help
of its own chemical messengers called enzymes. First,
the enzyme reverse transcriptase converts the genetic
material of the virus (RNA) to match the genetic
material of the cell (DNA). Then, this new viral DNA
(also called proviral DNA) enters the nucleus of the
cell. A second enzyme, integrase, inserts the proviral
DNA into the cell’s own DNA. The virus has now
“hijacked” the cell and starts making new viral RNA.
Some of this RNA will become the genetic material
contained in new viruses. Other viral RNA will go on
to make the proteins which will coat the new virus.
These proteins are produced as long strands of
polyprotein which must be cut into the appropriate
sizes. The enzyme protease (or proteinase) works like
scissors to cut or cleave the polyprotein. Finally, the
viral proteins and viral RNA are assembled into new
HIV and bud off the cell’s surface.
How protease inhibitors work...

The process of making more viruses is referred to as
replication rather than reproduction because the virus
simply makes copies of itself. Replication can happen
only after HIV has inserted its genetic material into the
genetic material of a cell.
Once HIV has entered the body, it infects cells which
have a CD4+ receptor on their surface. A cell is covered
with different receptors, like a face can be covered with
freckles. Cells use receptors to communicate: they let
information, in the form of tiny molecules, in and out of

Protease inhibitors are drugs that interfere with the
action of the protease enzyme. They block the scissors­
like action of protease so that new viral proteins cannot
be cut to the right sizes. If the viral proteins are not the
right size or shape, new virus cannot mature, and as a
result, will not be able to infect other cells.
Protease inhibitors not only work at a different stages in
the viral replication cycle than reverse transcriptase
(RT) inhibitors, they also work in different cells. As
mentioned above, both CD4+ lymphocytes (CD4+ cells

�or T4 cells) and macrophages can be infected by HIV.
CD4+ lymphocytes usually die within 48 hours of
being infected with HIV. Macrophages, however,
may live for several months, continually producing
new virus. Thus macrophages become “reservoirs” of
HIV. RT inhibitors (like AZT, ddl, ddC, d4T and
3TC) seem to work only in CD4+ lymphocytes, but
test-tube studies of protease inhibitors indicate that
they may work in both CD4+ lymphocytes and
macrophages.
Drug interactions
The protease inhibitors, and many other drugs, are
metabolized (broken down) in the liver through the
actions of the cytochrome p450 enzymes. Some
drugs can inhibit these enzymes, which means that
they perform less effectively. Others can induce
these enzymes, which means that they perform more
effectively. Potentially dangerous drug interactions
can result. For example, taking a drug which induces
the actions of p450 enzymes can cause a second drug
to be metabolized more efficiently; which may lead to
reduced levels of the second drug in the body. As a
result of the lower levels, that second drug may not
have a beneficial effect. A drug which inhibits the
p450 enzymes can cause higher levels of a second
drug to circulate in the body, which could produce
potentially dangerous side effects.
Side effects
Although protease inhibitors are more powerful drugs
than nucleoside analogues, they seem to be better
tolerated. However, all three drugs can cause side
effects that range from mild and annoying to severe
and potentially dangerous. In clinical trials to date,
the most commonly reported side effects of
saquinavir are weakness or fatigue, nausea, diarrhea
and headache. Ritonavir, especially in the first three
or four weeks of treatment, can cause moderate to
severe nausea, vomiting and diarrhea. “Dosing up”
from half the recommended dose to the full dose over
two weeks can help reduce the side effects. Indinavir
users must drink an extra 1.5 litres of water daily in
order to prevent kidney stones.

Resistance &amp; cross-resistance
Over time, as HIV makes copies of itself, the virus can
change its structure. These changes allow HIV to resist
the effects of antiviral drugs. Resistance to protease
inhibitors seems to appear after 12 weeks of treatment.
Combining protease inhibitors with one or more
nucleoside analogues may delay the development of
drug resistance. To limit the risk of developing drug
resistance, protease inhibitors should be taken every
day, precisely as prescribed. If a dose is missed, the
next dose should be taken as soon as possible. Never
double a dose to make up for missing one.
Some studies, both in test tubes and in people, have
shown that protease inhibitors may be cross-resistant.
This means that if HIV becomes resistant to one brand
of protease inhibitor, it may also be able to resist the
effects of other protease inhibitors. The development of
cross-resistance will limit the choices of antiretroviral
treatment. For example, ritonavir and indinavir are
cross-resistant, which means that someone will
probably not benefit from switching from ritonavir to
indinavir.
Summary: the good stuff
Many researchers, clinicians, and people living with
HIV are understandably excited about the arrival of the
protease inhibitors.
Dramatic results in CD4+
lymphocyte increases and viral load drops to below
detectable levels have been reported. There have also
been reports of ailments like persistent thrush or hairy
leukoplakia clearing up after a few weeks or months of
using protease inhibitors. If these promising results last
for two or three years, protease inhibitors, especially
when used in combination, will be a major step forward
in HIV treatment.
Reproduced with permission from Community AIDS
Treatment Information Exchange (CATIE). For more
information contact the CATIE's Information Network
at 1 -800-263-1638.

�AIDS AWARENESS WEEK

KICK-OFF SOCIAL
an event for the gay, lesbiani, bisexual &amp; transgendered
community and friends

Saturday, September 27, 1997
St John Ambulance
518 Fort William Road
9:00 pm till 1:00 a.m.
Cost: $6.00

a joint project of the AIDS Committee of
Thunder Bay and Community Partners

Friday, October 31,1997
Location to be announced
(call 345-1516 for details)

9:00 p.m. till 1:00 a.m.
Cost: $6.00
Wear your most outrageous
costume and party down!
Discount priced tickets are
available for members.
An event for the gay, lesbian, bisexual &amp;
transgendered community and friends!

5-

-

�dear robbie; IMHO
by Rob MacKay
"dear robbie; IMHO", will attempt to answer all
those hard to ask questions in a fun and
informative way.
if you are one of those acronym hounds and can't
quite figure IMHO, it stands for "In My Humble
Opinion". However, a good friend of mine once
told me that it really means you can say whatever
you want in print, as long as you end it with
IMHO.
dear robbie,
People keep calling me an "AIDS Victim". This bugs
me because I don't feel like a victim at all. What's
your take on this, how could I respond?
Signed,
Victim no more.

Dear Rubber boy,
I wish I did have the answer to your question! if we
knew exactly why people don't always follow safer sex
guidelines, the work of our education departments
would be a lot easier. The truth is there are almost as
many reasons why safer sex fails as there are people
having sex. They break down into three main
categories. Don't like condoms, "I'm not going to get
it", and tack of education. The most common
complaints about condoms are they take away
spontaneity, intimacy and reduce sensations. The ones
who don't think they will get HIV have a sense that
they are invincible. Although not limited to, often
these are younger people. Lack of education is not
necessarily caused by the information not being
available, but barriers between the information and
the people that need it. These barriers include
Organized Religion, School systems, conservative
parents and others.

"Victim Noun: One who is harmed or killed by
another: a victim of a mugging" That's the definition
according to The American Heritage Dictionary.
Looks like we are victims after all... NOT. What that
definition does not say but implies is that the "harm"
was intentional. In my case and in many others there
was no intent to cause harm. I don't feel like a victim
and therefore I am not one. Individuals and the
media have used the "victim" word to describe People
Living with HIV/AIDS for years. We can't let a single
word be used to clump us all into one big group.
When someone uses the word to refer to me, I simply
correct them. Victim no more, It's time for you to
define for yourself whether or not you are a victim of
HIV infection, and be bugged no more.

That is a quick look at some of the reasons safer sex is
not always practiced- The question now becomes,
"How do we address these issues and effect change?"
Many things have been tried by our educators, some
successful others not so successful. I would LOVE to
hear from my readers on their ideas! How about it?
You be "EDUCATOR FORA DAY"!

IMHO; robbie.
dear robbie,
Why do you think people are still having such a
difficult time practicing safer sex? I know that it's a
real drag to use a condom every time, but I will
because 1 want to be safe, what do you think?
signed,
Rubber boy.

IMHO: robbie

Please send your education ideas for "dear robbie" to t-eACT-Believe. Address is on page 8.
6-

-

�Here &lt;*ni&gt; There . . .
OOPS! You May Have
Expired!!!

“Learn New Skills and Network on
Current Critical Issues in HIV/AIDS”
“Breaking News . . in HIV/AIDS: Getting Together Learning Together”, a skills building symposium
featuring institutes in treatment, prevention, education,
care/counselling/support,
and
organizational
development will be held at the Westin Harbor Castle in
Toronto, ON, January 15 - 18, 1998. Health care
professionals (doctors, nurses, social/mental health
workers), and policy makers will join with the staff and
volunteers of AIDS service organizations to learn new
skills, network, critique best practice models in
HIV/AIDS work, and share their perspectives on current
and critical issues in HIV/AIDS.
For registration information, contact Lorie Dunbar at
the Canadian AIDS Society, (613)-230-3580, ext.l 19.

Don’t check for your death certificate.
But do check your membership card). If
your membership card says 1997, you are
alive and well and an eligible member of
ACT-B. If your card has any previous year,
or you don’t have a card, you are in real
trouble!
ACT-B’s Annual General Meeting
(AGM) is fast approaching. It will be in
November (exact date and location still to be
determined). But you must be a current,
eligible member at least 30 days prior to the
AGM to be able to vote. Members elect our
Board of Directors. Most members renew
their membership in the fall, prior to the
AGM. If you take out a new membership
now, it will be good for the remainder of
1997 and all of 1998.
We need your active, alive support.
Please renew your membership now (use the
handy form on the last page of this
newsletter). And call us next month about
the date, location and special guest speaker
for this year’s AGM!

Trivia Quiz
Can you name this ACT-B board member? Who ♦ Attended an international AIDS Conference in
Amsterdam and had his wallet stolen?
♦ Spent until 5:00 a.m. at the police station filing his
report - only to receive a copy written in Dutch?
♦ Had the suitcase with ALL the souvenirs “go
missing” on the way to the Amsterdam Airport?
♦ Manage to make it back to Canada with no I.D.?
If you guessed Pius White, you would be correct! Despite
all these DISASTERS, Pius reports that the conference
was an excellent way to make many personal and
professional contacts. The highlight of the journey was
attending the AIDS Memorial Day services. Pictures
from his trip are on display at ACT-B.

Fort Frances AIDS Committee???
Some folks in the Fort Frances area have
been busy generating interest in the
development of an AIDS Committee or
group. If you live in the area and would like
to get involved, please call Mary King at
(807)274-3266.

Goodbye Jo-Ann!!
The AIDS Committee of Thunder Bay bids a fond
farewell to Jo-Ann Jacomb, Volunteer Coordinator and
editor of reACT-Believe. She leaves to pursue a career in
theatre and music. Good luck Jo-Ann!

7-

-

�iy

Parting OUticc
ACT-B Abvisorvf Covmcil

Thank- You Thunder Bay!

Fred Ball

This summer, the AIDS Committee of Thunder Bay
hosted our second annual “Cheesecake Challenge” at
Harbourfest. We were able to raise $400 from this event
and would like to extend our thanks to all who entered,
judged and volunteered. Special thanks go to Anne Ciemny
and Joyce Barnes for coordinating this event. We would
also like to thank the Thunder Bay Art Gallery - Gallery
Gifts, Thunder Bay Whiskey Jacks and Magnus Theatre for
donating great prizes!
On August 20, we held an AIDS Walk Media launch and
Pancake Brunch. Many volunteers helped to make this
event possible. We extend our sincere thanks to Marge
Cross, Lisa Clarke, Raili Clarke, Madyson Clarke and Myra
Thompson for flipping the best pancakes this side of
Finland! Ann Garwood also did a terrific job of soliciting
donations of food from Maltese Grocery, Village Market
and Safeway. Thank you all for making the pancake brunch
possible!

Mary Lee Barry
Douglas Cave
Richard Atkinson
Gail Linklater
Dr. Gordon Milne
Murray Nielsen
Diana Smith
Nicky Tittley
Rev. Don Uhryniw
Pius White

Director, Regional Public Health
Laboratory
Ogden East End CHC
Addiction Research Foundation
Co-Chair
Crossroads Centre
Family Physician
Thunder Bay Indian Friendship
Centre
Public Health Nurse, Thunder
Bay District Health Unit
Safety Coordinator,
Thunder Bay Regional Hospital
Current River United Church,
Council of Clergy
Co-Chair

ACT-B Bo*rt&gt; of Directors
Rick Atkinson
James Budd
Deborah Emery
Steacie LaChance
Rob MacKay
Pius White

Joyce Bames
Charlene Burford
Carmen Klassen
Brenda LeSage
Bruno Valente
Darryl Williams, President

ACT-B Staff
Janet Adams
Christa Alsch
David Belrose
Sheila Berry
Joanne Books
John Books
Daryle Cano
Jo-Ann Jacomb
Lawrence Korhonen
Kyle Poluyko
Michael Sobota
Carri Whidden

The AIDS Committee of Thunder Bay acknowledges and thanks
our various funders:
&gt;
Ontario Ministry of Health - AIDS Bureau
&gt;
Health Promotion and Programs Branch, Ontario
Region, Health Canada (ACAP)
&gt;
All of the people involved in general fundraising
and the support of many local businesses and
individuals.

Substance Use Outreach Project
Secretary
Education Coordinator
Support Services Coordinator
Counselling Conference Coordinator
Fund Raising Coordinator
Support Worker/Health Promoter
Volunteer Coordinator
Administration Coordinator
Development Assistant
Executive Director
AIDS Awareness Week Coordinator

rcACT-Believe Contributors
Jo-Ann Jacomb
Rob MacKay

Editor
Writer ACT-B staff &amp; volunteers

Vest / want to become a member of ACT-B! /
know that my contribution wiU really count!
Here is my donation of $1C.OO__, $20.00___or
SfO.OO__ .

The opinions and medical information offered by “reACTBclicvc” are those of the individual authors and not necessarily
those of the staff and Board of Directors of the AIDS Committee
of Thunder Bay. Medical information offered should be used at
your own discretion. Please consult your doctor.

Name:
Please address any comments or concerns to
Address:

rcACT-Believe
P.O. Box 24025
RPO Downtown North
Thunder Bay ON P7A 8A9
(807) 345-1516

City, Province &amp; P.C:
Telephone:
8-

-

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